Breast Cancer Now Forum

Hmm, tricky.  I suspect most blogs will highlight people’s difficult experiences with this drug, and those who aren’t having any problems possibly wouldn’t bother reporting ‘good news’.  Everyone’s experience is unique, there’s certainly lots to weigh up, I’m hearing you! ... View more

I too have muscle and joint pain.  Have you ever suffered from constipation as well? I seem to have upset stomach and some gassiness as well. I started letrozole in April 2020 so haven't been on it long.  Hopefully, it improves soon. ... View more

Not everyone experiences side-effects, but withdrawal of HRT in May 2018, on diagnosis has been so nasty for me, that I have no desire to accept letrozole. At 66, I don’t expect to live long enough to have a life afterwards especially as the risks of all the conditions I anticipated appearing on my death certificate are increased by the drug. It’s easy for me, as I only had a tiny tumour, negative nodes, Grade I. Admittedly HER2 +, but even so, very limited benefit from longer, nastier treatment. For younger folk, the pros and cons weigh up differently; for me, the chances of dying from non cancer conditions seemed higher with more treatment than without. ... View more

Thanks Mai - a really good thing to publicise . ... View more

Flip Fellow Flushers,   Jeez hasn't it been unbearable. Tho' today I actually felt quite cold!! I feel a right miz in Summers, I try not to complain about it because I think it's lovely for other people to enjoy. I used to find daily Evening Primrose helped, but I understand that it may not always be suitable for certain BC ladies, due to controversy about whether it mimics oestrogen too closely. There's are other studies that state it helps prevent oestrogen driven cancers by latching onto the oestrogen receptors, rather than the oestrogen itself. If you're thinking of trying, it may be best to check with onco's first. But I switched to high dose fish oils this year and they also seem to help me. I certainly notice if I forget to take one. My flushes are natural menopausal though, not induced by Tamox or the like. But can't really see the difference really. Both due to decreased or inhibited oestrogen.  Lilacmoon - Yeh sounds very much down to Tamox. I was only on the tabs for two months at 46, so was premenopause at the time, and I remember thinking and saying, I now know what women are complaining about. I came off it due to feeling it exacerbated  my depression.   I'm keen to know how you get on with Sage Tea and Acupuncture girls. Keep posting will you. Delly xxx  ... View more