Breast Cancer Now Forum

Hi Julia   i am interested in your fasting, I think I will give that a go. If you were to do weekly T how would you do the fasting as you would not eat much for four days out of seven?    Kim xx ... View more

That's strange that the breast care nurse said that you are not diagnosed when you have been given the details of your tumor. If it was me I would want the operation quicker too, I would make a nuisance of myself and talk to the breast care nurse again and if no joy there try to get a second opinion. I had my operation 3 weeks after diagnosis and that seemed a long time. I am not sure how long other people have had to wait? I was worried that my tumor had grown from biopsy to surgery but they did say they don't grow that quickly. I am sorry you have had this diagnosis it's a roller coaster for sure. This forum is such a good place to come to for support and also to know that you are not alone in this journey.xxx Kim  ... View more

Hope you don't mind be popping by here just been reading your posts and seeing what side affects your are having. Tomorrow I see the oncologist for,the final decimal on chemo. Last time I saw him he sad chemo would give me a 5 % increase I life at 10 years and my tumour was grade 3. But because of a bad airway from previous cancer treatment not BC I am worried how chemo might affect my throat. A couple of you have mentioned sore throats and I jus wondered how they are? Is it sore just at the top of your throat or does it go further down to your larynx? I have had the oncotype test done and get the results tomorrow. I am doubtful it will be low as I have been researching and grade 3 tumours are usually high. I am also having a MRI because of hip,pain and a liver ultrasound tomorrow., it's certainly d day for me. Kim xx ... View more

Dear Netti   i am so sorry you are going through this. When I read your post about the elephant in room it rang so true.i was diagnosed a month ago and how I hate that I have this very unwelcomed travelling companion now.    I have been an obsessive googler the main time is at night when I wake up at 2.00 in the morning and reach for the iPad.    The waiting is the absolute worse thing and when you get your results you can plan and there is more of a sense of calm.    I hope that you have good news with your results but if not then there is lots of support on here which is such a help. You are not alone in all you have been through so far.    Big hug    Kim  ... View more

I am 50 and also hormone positive which I have thought is a good thing as there are hormone treatments to help. I felt so sick before seeing the oncologist today but somehow knowing more of what's going on has helped me feel better. Maybe I am in denial and tomorrow I will be a gibbering wreck again. I am thinking about cleaning cupboards out and getting organised if I am going to feel rotten for 6 months. I am such a googler of everything that's what I must try to stop. X  ... View more

I have that long message waiting. They also talked to me about genetics and we're going to send me somewhere to talk about that as my family has such a bad history of breast cancer. I really worry about my daughter because of all this . Glad you gave a supportive hubby too ! They must find it do hard too watching us go through this. How's your cording ? Mum had that but it got sorted with physio. Hope you are feeling ok with your busy week .  Kim X  ... View more

I asked the oncologist what he would decide if it was his wife but he wouldn't say, rotter ! He seemed to be vering towards chemo, I am glad I am having the oncotyoe test. I went for a walk with my hubby tonight and he said he is expecting the test to high. He just has a feeling it was a bad one. Another two week wait. Although I do feel calmer not sure why? He said if I was going to have chemo I could be starting in 3 weeks. I am going to try to be super healthy to prepare my body for the onslaught.  ... View more

Just got back from oncologist and he says at the moment I have a 5% increase in survival if I have chemo, I am now having the oncotype  test to see how that affects the percentage. I am thinking at 5%vi should have chemo  ... View more

I wonder how many you need to post before you can do it? I just tried to send it again but didn't work so that's why. I will keep it saved until you can get them. X   ... View more

I just written you a long instant message to you but it wouldn't let me send it as I think you need to enable messaging ? X  ... View more

Hi Bookworm    hi how are you doing with half term? I went to Macmillan. Today and had a chat with a breast cancer nurse there. I don't know why but today I feel terrible and cannot stop crying and feeling my life is so different and will be cut short. Everyone keeps telling me to be positive but today I just can't and then worrying the stress of feeling like this is affecting the cancer. I found out today it's the worse grade 3 scoring 9 which has thrown me into a spin. I am thinking who will come to my funeral then panicking that because I am thinking this its a premonition. I am so sorry to feel so bad because on here people seem so positive and fine. I want to run away but can't .    Kim x  ... View more

Hi Hazel    I am so glad to read this post . Yesterday I felt a lump at the side of my scar and thought oh my goodness it's come back already. The roller coaster continues !    Kim x ... View more

Hi Vintage   i have had exactly the same kind of feeling on the outside of my boob going up to my underarm and then felt it today at the sight of where my lump,was removed. I had my WLE and SNB on the 20th May I initially thought it was my lymph nit knowing where to go after the lymph nodes where removed. Now I have had it near my cleavage side where the lump was I think it must be a nervy pain. It's a very weird feeling .    ... View more

Thank you so much for replying. I am so similar to your situation Charys 14mm no nodes clear margins stage 3.i have problems with my airway from previous thyroid cancer treatment so this has been worrying me with his this would be with chemo. I have read you can get a sore throat. I have been wondering about the oncotype dx test. Although I am really not wanting chemo if it came back as a high risk I would have to. But by not having it am I burying my head. Also as I am due to discuss this with the oncologist this week I don't know if there any other factors in the pathology report that would top the balance to chemo.  ... View more

Hi Bookworm that's such good news about your margins, so no more surgery! I can totally understand waiting room nerves you just sit there feeling so sick inside. The breast surgeon was pleased with my surgery, I went with loads of questions but he said the oncologist is the person to,talk to now about everything. I see him next week to talk percentages and chemo. If it was grade 2 they wouldn't be talking about chemo. I watched some clips of Victoria Derbyshire going through her treatment including chemo ones and it was helpful if you can google them have a look. We are so not alone in this journey so many go through it. What's your plan of action now ? Kim xxx ... View more

Hi Bookworm my results were increase from grade 2 to 3 no lymph nodes and clear margins, going to see breast surgeon tomorrow to discuss all this and then oncologist next week. It's so,weird I want to the shops for the first time since surgery and felt like I was different from all the other shoppers because I had cancer. Wonder if I will ever feel normal again? I was lying in bed last night with a pain in my hip and thought it's there . A month ago I was just getting on with my life now it's turned upside down. Cleaning the house seems to be a therapy which I throw myself into but then every now and then I get a wave of horror at what's happening. My mum had breast cancer 11years ago and had to go back for a re-excision and she has been fine. Good luck with your results let me know . Kim xxx ... View more

I had good news today that my lymph nodes were clear. After my grade increase to 3 yesterday I had another sleepless night . But got this result  today and feel so much calmer . I too didn't want to say on here  because others have had not such good news. The waiting for results is so hard, I couldn't concentrate on anything, I love Chelsea flower show but it passed me in a blur. I haven't been able to concentrate on anything just my fear. I haven't slept properly since diagnosis. I go off ok but then always wake up,at 2 and just lay there with my head in a spin. I will now have an appointment with the oncologist for a treatment plan . X    ... View more