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rebcrab91
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11-05-2016
10
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10-07-2018
11:28
Hi Ladies, I’m about to switch over to weekly Paxlitaxel a horrendous experience with Docetaxol. I’ve been trying to work where I can during treatment but I’m slightly worried about if this is going to be possible whilst having weekly treatment. Do you feel rotten the whole time during weekly treatment? Or are there still good days! & Has anybody been able to work during weekly Paxlitaxel? Any advice would be greatly appreciated. Rebecca
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26-06-2018
10:53
Hi NoteRed, Thanks for your reply, i'm glad to hear your side effects were manageable, were you able to get on with daily activities as usual? and did you get much nausea. I did have FEC and i found it quite difficult if im honest, for me i had a lot of nausea, headaches, fatigue and felt generally unwell however the worst of it only lasted 5 days then each day i picked up a little bit more. I had to stop the G-CFS inection as it was giving me fevers. However, i have spoken to others who found FEC more manageable than me so it really is person specific. Good luck and if you have any questons just ask 🙂 Rebecca
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25-06-2018
05:14
Hi I’m Currently on my second BC battle- last time I had FEC-T chemo struggled a lot with it but got there. This time I’m also on FEC-T chemo with added Herceptin but my body is really struggling. I am just about to move onto the T (Docetaxol) and I’ve asked for a reduced dose as I found it really difficult last time! They have given me 2 options- either docetaxol once every 3 weeks at a reduced dose of 80% or switch to Paxlitaxel once a week. Has anyone had or is on weekly Paxlitaxel? And if so how have you found it? Did you experience a lot of nausea? Or other side effects? And what was it like having weekly chemo? Currently I’m pretty much in bed for the first week and then I’m able to enjoy is the other 2 weeks so I’m worried il just be unwell 24/7 if I move to weekly chemo. Any advice would be really appreciate Rebecca
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19-03-2018
09:55
Thank you so much for your reply, so sorry to hear that you also have had a recurrence. Its interesting that your chemo changed the second time round, im guessing because theres been a recurrence they think they need to try difference drugs. You are completely right, the waiting is the worst part- i just want to know what the plan is so i can plan my year and see what we can do in regards to the wedding. I'm seeing the oncologist this weds (21st) so hopefully they will let me know everything then. I'm just hoping they work with me on my start date if needed so that i'm not on my 'bad week' during the wedding. Thank you again for the reply and i hope that you are doing well 🙂 Rebecca xx
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15-03-2018
03:50
Hi all, I was diagnosed with BC in 2016 aged 24, had chemo, lumpectomy, radio and hormone treatment. Sadly in January i was diagnosed with BC again in the same breast but in a slightly different place and its now HER2+. I had a mastecomy 6 weeks ago and LD reconstruction and im due to start chemo soon and herceptin. I havent seen my oncologist yet so i dont know if im going to have the same chemo or before, has anyone else on here had chemo with recurrence and if so, did you have the same chemo or a different combination of drugs? and last time i had an 18 week cycle, did anyone elses cycle change or stay the same as before? its driving me crazy waiting to find out as im due to get married in May which is likely to be in the middle of the chemo. If anyone can share any of their own experience that would be much appreciated. Rebecca
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01-03-2018
03:08
Thanks for you reply- really appreciate it. It’s nice to know it’s normal, well not nice but you know! I’ve been using aloe Vera gel and antihistamines which have been helping but if it doesn’t get better/change il get back in touch with my Breast care nurse. Thank you again! X
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27-02-2018
11:29
Hi all, I’ve recently started on my second BC diagnosis in 2 years. This time I’ve started with a mastectomy and LD reconstruction- chemo and herceptin to follow. I’m just over 2 weeks post surgery and things had been improving well but a few days ago I started to get intense itching under my reconstructed Breast and around the scarring under the armpit. It’s got worse over the last few days and I’ve now developed a horrible rash in both places which seems to be spreading. My BC nurse and surgeon saw it yesterday and weren’t concerned but it’s causing me absolute agony and it makes me want to rip my skin off! I barely slept at all last night as it’s so bad. They told me to just use something like E45 cream which doesn’t touch the sides. I’ve put some cocoa butter on today which has soothed it slightly but I wondered if anyone else experienced something similar and if so what helped!? Any advice would be much appreciated. Rebecca
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25-06-2016
02:20
Hi Helen, It's great reading your post and hearing about your experience so far! You also sound like your keeping upbeat which is amazing :). I too am having neo-adjuvant chemotherapy and I have just had my three FEC (this was hell awful nausea and like you became neutropenic after number 1 sigh!) I am due my 4th in a few weeks and will be going on to taxotere- I've read some horror stories about the side effects of this part and I'm starting to become very anxious so I wondered how you found this part!? I'm hoping its more manageable than the FEC! I'm also due for surgery although due to being only 24 I'm not sure what I'm having yet as they want to do genetic testing to help decide. Ita really nice to hear about others experience to help make me feel more normal!! Rebecca x
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12-05-2016
12:12
Thank you for your advice and support, I really appreciate it 🙂 . I called the unit this morning and they were really helpful and have advised I see my GP asap today to see if it's an infection or not and hopefully they will give me stronger painkillers also. They stressed it was most probably my gums rather than my teeth and unfortunately is a side effect of the chemotherapy. Thank you again for your support and I now feel much more comfortable calling the helpline for advice. Rebecca xx
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11-05-2016
03:19
Hi all, i'm 24 yrs old and was recently diagnosed with invasive ductal breast cancer. I have only just started FEC-T chemotherapy and i had my first cycle last Thursday (5th May) felt pretty grotty the first 4 days, bit of nausea, fatigued achey and had a migrane for 2 days ( they suggested this was because of one of the anti-sickness drugs and i ended up seeing an on-call GP who gave me strong painkillers to help, which they did!). The day after i felt great and much more like myself however i woke up yesterday with awful tooth ache in 3 corners of my mouth (all where wisdom teeth are partially growing through,) but its worse in one corner inparticular. Today the pain is even worse and my cheek feels quite swollen, although i am eating its extremely hard to chew and its a constant pain. I am taking co-codamol and using cortisol which eases the pain slightly but its still quite agonising and i am aware i am not allowed any dental work doing. Has anybody else experienced bad tooth ache on FEC before? Im not sure if the pain is a side effect, or that my wisdom tooth has coincidently dug into my cheek (its done this previously). If you have experienced agonising tooth ache on FEC before what did you do? im worried about calling the chemo ward as i dont want to be a pain and im not registered with a dentist yet as i moved once i was diagnosed to be closer to my family. Its really getting me down as apart from this i think i would be feeling fine now and i dont know what to do. Any advice would be much appreciated. Thanks, Rebecca
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