Breast Cancer Now Forum

Hi Katydaw, I'm sorry you aren't finding the support great. I've had some amazing support from family and friends but have found people definitely forget all about it once treatment is over. They don't seem to realise you still have a lot of recovery (physical and mental) to do at that point. How is your little boy getting on? My daughter is 1 next month! I have no idea where the year has gone. My eldest will be 6 soon too which is even more scary!xx ... View more

Hi Melia, I will be half way through rads tomorrow (10 of 20) and so far haven't had many side effects. Getting a little pink and sore the end of last week, but not too bad. I've been driving myself to and from appointments without any problems and plan to do so for the rest. xx ... View more

I'm sorry I can't help Caz, but I was wondering if you had joined any support groups on Facebook? They are amazingly supportive and I know there are separate groups for secondary ladies, where I'm sure someone would be able to answer your questions better. Wish I could help more xx ... View more

I hope it goes by quickly. 4 weeks feels like a lot at the moment because it's every day, but I'm sure it will be over soon enough and I can start thinking about Christmas with my family. Can't wait this year!!xx ... View more

They have told me my clavicle area will be targeted too. The radiographer said it is because they know the lymph nodes there are the next place it would spread to and so they like to "sterilise" the area. I was a bit taken aback at first but once she explained it it makes sense. I'm glad you aren't finding it too bad so far Colista. I can't help but think the hardest bit will be going every day and so not being able to get much else done between that and the school runs. I'm probably being naive though and it will be a lot worse than that!!!xx ... View more

I know what you mean. I don't mind going through all of it as long as it's done the job. But I have no way of knowing my response to chemo. I can't decide if that's a good thing or not. I still think you should try not to be downhearted until you get proper answers about your response. I know that's easier said than done!! I'm starting rads on the 1st November. Will be exactly 3 weeks between last chemo and starting. Having 15 and 5 boosters. So should hopefully be done by the end of November.xx ... View more

I think we are going to constantly have our security shaken. It comes over me in waves. Sometime I feel ok about it all, then other times I'm a wreck worrying about all the what ifs and possibilities. I've finished chemo but waiting to start rads now. It feels so good that the end is in sight. And so scary that after rads that's it. Just out in the big wide world hoping for the best!! I can understand you being upset that the choice is taken away, even though you wanted to go for mx anyway. It feels so out of control on this journey so feeling like you can make that decision for yourself makes a big difference. And if you are anything like me I over think everything and convince myself that there's more to everything than there probably is!!!xx ... View more

Hi netti, I had surgery first so don't have experience of knowing how well chemo worked on the lump. But from speaking to other ladies, I don't think you can know the real response to chemo until after the lump has been removed and analysed. Some ladies have had their lump shrink, but when it's been examined after removal there were no living cancer cells and so they still had a pcr. MRI can't show what is going on at cell level, so there is still hope yet so try not to worry too much until you get the path report back xx ... View more

Thanks Colista, so hard knowing the best way to go about these things isn't it!! Maybe I'll start once rads are finished as that will be a good bit of time since chemo then. Seriously can't wait to be back on the up from this last round. I'm so tired and hate feeling so useless for the kids xx ... View more

Hi Warcol, When did you start the tumeric? I finished chemo on Tuesday (woohoo!!!) So wondering when to think about starting it. Will be starting rads 1st November. Hope you get on ok next week. I got worked up about the planning appointment but have no idea why because it was completely fine if course!! AnnDaw I'm glad you are moving on well. Gives us all some hope that we can return to a new normal I'm sure xx ... View more

Hi Colista, I am going to friend request you too for an add to the group if that's ok. Thank you x ... View more

Tom, that's great to hear. Thank you!x ... View more

You can very often see or feel a firm "cord" running along your arm. I had a very prominent bit in the crook of my arm and could follow it either side of what I could see. Like Pam, it hasn't lasted thankfully. xx ... View more

Good luck today Marina xx ... View more

Good luck today Bookworm. It must be so gruelling having only 2 weeks between treatments. I already feel like my next one is almost on top of me and I have another week to go! I had the exact same thought when I was feeling awful this cycle...it is as much a battle of the mind as of the body. Alex, well done on taking charge and going for the crop. Hopefully the reduced weight on the follicles will slow down the shedding. Unfortunately for me I kept losing even after my first shave and found the little bits more annoying than long strands as they are harder to collect up and get rid of! Found it better when I went for a number 1 on the clippers and hardly notice the stubbley bits coming out. Hope everyone else is well. This weather is really depressing. So hard to do anything fun with the kids for their holidays when it is pouring with rain practically every day! xx ... View more

Sorry, that should say younger not young xx ... View more

Hi Marina, if you search on Facebook for Young Breast Cancer Network (UK) it will take you to their public page. If you message them from that they will join you to the private group. They will ask you a bit about your diagnosis etc, just to make sure everyone added is genuine. Good luck for Friday xx ... View more

Wow Bekah, that is incredibly rare! I'm not surprised the drs were shocked. I've been a midwife 8 years and have never known anyone have one. It's something we read in the books but never really come across! You certainly like to do things in style 😉 xx ... View more

That sounds exactly like me last weekend Oncewild. I started to lose hope of the nausea and grotty feeling ever lifting. But this weekend was a completely different story. I took my son to a birthday party Saturday and generally felt so much better. So hopefully it won't be long before you are feeling good again too. I totally agree though, I have no idea how I'm going to let them do it to me again next week!! Last cycle seemed long and I was waiting to get on with it and cross another off. This time I spent so much of it feeling awful that I can't believe I have to start the whole thing again so soon! I just keep thinking that at least that will be half way through, and my last FEC. So that feels like quite a good milestone. How is everyone else feeling now? How's your PICC line doing now Pookie? Hope you're getting on ok with the injections and they are doing their job. Madhatte and Hazel, how are you both doing? Hope the weekend was good for you xx ... View more

It's good to hear you sounding positive Bekah, I was wondering how you were getting on. Sounds like a busy time with hospital appointments, but definitely good things are moving for you. I remember feeling like I was living at the hospital in the beginning. I'm glad you joined the Facebook group too. It's a really supportive place. Think I might have said hi to you actually 😊 Sounds like you went through a lot when you had your little boy! But it's good that the area on your liver is getting smaller and it's just looking like a blood clot. Fingers crossed it keeps shrinking until it's back to normal. Pam, I hope you enjoy the time with your mum for her birthday. This whole thing definitely makes you appreciate every time you are there for birthdays, concerts, days out. Every little thing is much more meaningful now xx ... View more