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Mollymop
Member
since
04-06-2016
74
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27
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30-10-2018
08:15
I had quite a major reaction to my fourth infusion of Taxol however with an adjustment to my pre meds I continued on it weekly for almost two years. I had no further issues. I had a similar reaction to Taxotere three years earlier. Wishing you the best with your treatment x
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09-08-2018
10:05
I had weekly Taxol for 21 months, it kept me stable all that time. I was active throughout and it didn't stop me doing anything. Have been on Kadcyla for just over a year, I do admit this one is much easier x
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25-05-2018
06:30
1 Hug
My lung mets were discovered the day before my planned mastectomy in February 2013. My Consultant still said to go ahead with the surgery as he said it would give me the best chance. I am well and active and have just had another stable scan on Kadcyla. It will be 6 years in July since my primary diagnosis, never feel you are doomed there are lots of options ahead of you x
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18-01-2018
05:20
Yes I did this - almost 5 years ago!! Pay no heed to what the letter says and go and enjoy yourself xx
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03-11-2017
04:04
Hope you are well MaggieMac ❤️ I suspect I was stage iv on initial diagnosis, I had a clear CT initially (September 2012) then lung mets showed up February 2013. Still here though so I am not complaining! xx
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25-09-2017
11:39
Not bone mets but I had a mastectomy after being diagnosed with lung mets in February 2013. I have remained largely stable and have an active life. Hope this helps you xxx
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31-07-2017
10:18
So sorry you are feeling like this. I had my first Kadcyla last Tuesday. I didn't take steroids (Dex) on the three days following the infusion (I had advised my Consultant I didn't want to take them) so was expecting to feel a bit grim. It was not too bad, a tiny bit of nausea (took one Motilium tablet), felt a little like I had the flu and my nose is running a lot! I hope you have good results with it - feels very much like a chemo to me, not sure about well tolerated xx
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19-07-2017
01:36
Just wanted to add you are an inspiration FF and just what I needed today xx
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19-07-2017
01:34
Good luck Waffles xx Thank you FF xx scan showed slight increase in size of lung mets (have had lung mets for almost 4 and a half years and everywhere else is still clear so can live with that result!) so my Consultant recommended a change to Kadcyla which will be my fifth line chemo after secondary diagnosis. Feel a bit up and down today but will bounce back I am thinking of you all xxx
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12-07-2017
02:38
I had my three monthly CT yesterday so once again waiting for results. It is 5 years next week since I was diagnosed with cancer - it never gets any easier. Sending lots of love and Stable Mabel vibes to anyone else waiting xx
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05-07-2017
10:45
1 Hug
I am so sorry you are in this situation. I was diagnosed with primary breast cancer in July 2012 and with lung mets in February 2013. I have been on chemo since that time which has been largely doable. I am active and walk a lot with my dog (Molly). My sons were 14 and 11, they are now almost 20 and almost 17. I am determined to see them grow up. You will feel better once a treatment plan is in place, sending lots of love xxx
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03-06-2017
03:02
I have had lung mets since February 2013, I have remained largely stable on chemo since August of that year. I am currently on GemCarbo (since January 2017), I have had four blood transfusions on GemCarbo due to low counts however feel fine. I walk around six miles a day with my dog (Molly) and recently completed an 8 mile sponsored walk for a local hospital. I don't feel tired at all. You do sound like you may need a dose adjustment?
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02-05-2017
10:37
Thank you Carolyn ❤ I am very lucky I have been largely stable since 2013. It will be 5 years in July since my primary diagnosis. Secondary was February 2013, Would like to think that will give others with lung mets some hope xx
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02-05-2017
09:56
Had my CT results this morning, was good news - stable with some reduction. Am so relieved I can't put it into words. Thank you for your good wishes ❤ am thinking of everyone going through this xxx
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