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jellyjem
Member
since
11-06-2016
17
Posts
2
Hugs
09-12-2018
08:50
Emsx - it’s horrible isn’t it and I’m sick of jumping through hoops, I’m happy with my weight now, really don’t feel that I need to loose any more. Has anyone told you why? I just have a feeling it’s a cost saving exercise rather than us really needing to have a BMI under 30.
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05-12-2018
07:43
I had a left side only mastectomy 2 years ago and was told at the time I couldn’t have an immediate reconstruction as my BMI was too high. I have since lost 5 stone but have about another stone to loose and I just can’t shift it. I’ve been the same weight for most of this year. Go to slimming World, do Zumba twice a week and the gym twice a week so I’m quite fit now but I just can’t shift this last stone. Has anyone had a reconstruction with a higher BMI? I’m wondereing why I need to loose yet more weight,
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15-03-2018
04:05
Hi, I'm a bit late to join the party but hoping someone will be able to help me with information for delayed recon. I am two years on from my left side only mastectomy and I will hopefully be able to go on the waiting list for a DIEP flap recon once I have lost 20 lbs (so far I've lost over 4 stone). I can't live with myself long term with only one breast and I'm hoping the recon will help me feel like "me" again.
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16-02-2017
11:15
I've looked everywhere and all the mastectomy bras seem to be really old fashioned and ugly. I had a left sided mastectomy without recon last April and everything has healed really well but my remaining breast is large (GG) and I just can't find any nice underwear. I want a pretty bra, and think I deserve one after everything I've put my body through. Does anyone know if wired bras are okay? I've been thinking about maybe buying a normal wired bra and then sewing a pocket into the left side to hold my fake boob but I wear a silicone boob and I'm worried the wires might damage it. Anyone tried this?
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29-06-2016
11:41
Sorry but this is going to be a depressing post, i need some advise as i feel likd im falling appart. I had chemo followed by a left sided masectomy in April and rads. I have not had a reconstruction and im a double H on my remailing boob so really lop sided. I want to have a reconstruction but my surgeon has told me I have to loose weight first and wait at least a year for everything to heal. I'm in my early 40s and before the cancer diagnosis I was happy with the way I looked, now I really hate the way I look and it's really getting me down. My GP put me on antidepressants a few weeks ago but they don't seem to be helping. I just don't know how to deal with my emotions. I was coping OK until this week but now I just feel like crying all the time and I feel so angry. How do I come to terms with only having one breast? I feel like all my feminity has been stripped from me. Please tell me it gets easier?
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21-06-2016
09:39
Jill - you are lucky, I'd love to be able to walk to the hospital, I have a 2 hour round trip everyday which is exhausting and expensive. Kitty - great news that you have finished, it must be a weird feeling but you can always join the blub-club with me 😥 .
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20-06-2016
10:57
Posted too soon - I agree Lou there are lots of people worse off than me at the unit I go to too. My heart goes out to the boy you mention and it must be awful for his parents seeing him go through everything. Are we not allowed the odd glass of wine? I thought it was OK now and again in moderation.
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20-06-2016
10:51
Hi Jill, everyone is lovely here. If you want to know what rads are like have a read of the blog on this site titled "Radiotherapy I knew what to expect but the reality was quite different" it really sums it all up for me. I'm on day 12 of 15 so only another 3 to go. Im using the same cream prescribed by my GP for my eczema (sorry but the name escapes me) twice a day plus Aloe Vera Gell from Holland and Barret. Physically I'm OK but I still feel very emotional. I should have had an appointment with my oncologist today but when I got to my appointment I was told he left 2 weeks ago. I felt ridiculously abandoned, I wanted to shout "no he can't leave me" 😲 had to have a serious word with myself, he's an oncologist not my partner, he is allowed to leave and find another job.
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19-06-2016
09:59
Your right, I can't wait for my life to get back to normal again but at the same time I'm scared of loosing all the support and having to go back to work and act normal when I've changed so much.
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18-06-2016
12:10
Hi everyone, sorry about my misserable post last night, I'm feeling a lot better today. My skin really isn't that bad, it's just blistering in z couple of places and I was feeling sorry for myself. I only have another 4 sessions left, going to do my best to be more positive. My suggestion for song choice is Union of the Snake by Duran Duran in reference to my scaley boob (I was a huge Duranie back in the day) xxx
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17-06-2016
10:29
1 Hug
Thanks Charts, i hadnt thought of a wet flannel its helping and I've also taken a couple of parecetomol. Don't have a lot left on that side to shake around after the masectomy 🙂 I'm not normally this misserable but have to admit I'm feeling very sorry for myself tonight. The whole process just drags you down sometimes, I'm fed up of it all.
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17-06-2016
08:46
1 Hug
I'm a bit late to the party but please can I join in? I had number 11 of 15 rads today, ive been coping OK until today but but this was the first of the booster rads and it really hurts tonight. Im librally coated with Aloe Vera Gell but its itching like hell and feels like it's burning from the inside tonight. OH is not helping he seems to think he can jolly me out of it with stupid jokes,he's driving me mad.
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12-06-2016
10:12
Naz, thank you xxx I know I have a lot of thinking to do. It's all still really early days for me, I'm still having treatment for the cancer never mind the recon. All any of us can do is try to gather as much info as we can I suppose and maybe if we decide to go ahead not expect too much from the reconstruction.
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12-06-2016
09:58
Naz, thank you xxx I know I have a lot of thinking to do. It's all still really early days for me, I'm still having treatment for the cancer never mind the recon.
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12-06-2016
08:51
Blimey...... I've hust read the whole post and it's shocked me and opened my eyes. I was diagnosed with a large breast cancer tumour Halloween 2015. I had chemo followed by a left sized masectomy without reconstruction in April and I'm nearly (hopefuly) finished with radiotherapy, just another 9 sessions to go. Im 44 and a double H on my poor remaining boob. I always thought my boobs were my best feature until the bloody cancer struck and I've been focusing on next year and having the reconstruction to get myself through all this. Although my surgery is heeling well I feel horrible and cry most days about how lopsided I look. I'm under no illusions that a reconstruction will look like my boob used to look but at least I thought I'd give me my shape back. I can't imagine living the rest of my life like this, I hate the fake boob, I just want to be able to wear a normal bra again. I don't know what I'm asking here and I know I'm rambling, I'm just really shocked and saddened that so many of you hate the reconstruction so much.
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11-06-2016
09:44
Im a double GG and I was disparing of finding anything until someone recommended Asda to me, I can't get my size in store but can order them online. The bras are comfy and only £8 each and they even come in nice colours. Have a look on Asdas website and search for post surgery. Good luck.
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