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rs123
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since
12-06-2016
15
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27-07-2016
04:59
had WLE & SNB on 12/7 and due to get my results tomorrow however today I have received a letter in the post advising me that a chest CT scan has been arrange for me next week. am assuming this means my surgery results are not good and that it's likely the cancer has spread. am so scared I feel sick at the thought of what I'm going hear tomorrow
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01-07-2016
01:02
Hi Jo Good to read your post as it appears we are on similar paths. initial appt on 6/6 told 99.9% sure it's bc. Biopsy results on 13/6 confirmed it. unfortunately I only have my WLE inc removal of nipple due to lump placement on 12/7 plus SNB so many sleepless nights and hours of worrying to go yet! im frightened of having a general anaesthetic but equally want this thing out now so wish it was sooner! Guess the waiting for the results of the op is going to be difficult too. glad you're op went well and you are feeling ok, hope mine goes equally as smoothly! ruth
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29-06-2016
06:42
Thank you all so much for the reassurance, it has helped me to calm down. I've found these forums so helpful right from when I waiting for my initial referral to the breast clinic. a friend has just been round to bring me chocolate which always helps! I really do appreciate the support on here from people who obviously have their own struggles that they are dealing with and yet take the time to respond to help others.
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29-06-2016
05:43
Thank you for all the helpful replies. It's just set my brain off again on a 'how long as it been there before I noticed' and 'where else has it spread to in the meantime'. Am trying to organise lots of things for the next 2 weeks to try and keep myself busy and occupied with other/nice things. thinks it's knocked my confidence in the staff too as its changed from 2.1 to 3.8 depending on which bit of paperwork you're looking at it even though all relates to the same tests!
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29-06-2016
03:17
Thanks charys, think I'd just got my head round the diagnosis and was struggling with the 3 week wait till surgery anyway then this has just thrown me.
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29-06-2016
12:56
I've just been for my pre op and had an appt with BCN first. I'd been feeling fairly calm up to now other than having to wait till July 12th for WLE and SNB however I saw a letter that had been sent to my gp that said the mammogram showed the lump was approx 3.8 cm whereas last week when I got my biopsy results I was told the mammogram showed the lump was 2.1 cm !!! There was a second bit of paperwork in the notes re the mammogram that said 2.1. Am now completely stressed out that the lump is virtually twice as big as I initially thought. she tried to say that when the dr does the clinical exam it's only a guess that he thought it was 3cms but that the mammogram was more accurate however I pointed out the letter wasn't just talking about the clinical exam it also specifically said mammogram result 3.8. she went off to ask the dr re the discrepancy and apparently he said when he saw the mammogram result was 2.1 he went to query it as he had felt something larger and the radiographer had said yes it could be bigger than the 2.1. am now so worried as don't know what to believe and what is correct. she said at he exact size can't be known till its removed and that just because it's larger doesn't necessarily mean it's more likely to have spread but my mind is now working overtime.
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25-06-2016
07:38
Thanks for the reply Jill, i agree I just want it out even if that means having an op. At the moment my bigger fear is the worry that it has spread so that's overtaking the general anaesthetic fear! Once my surgery gets closer I'll no doubt start panicking more but I hope I just go on autopilot like I did with the mammogram and biopsies. op is on July 12th and I'm hoping to get a few days away with my boyfriend the week before to have some relaxation.
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25-06-2016
07:32
Hi sue its ER+ and HER- . She explained that meant radiotherapy after surgery and tamoxifen for 10 years but also said that could change after the surgery result. Some test (doxy something) was mentioned as a possibility to see if chemo would be beneficial. im praying for clear margins, clear nodes and vascular system so that the treatment plan doesn't change.
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24-06-2016
10:47
I've not had a scan or mri. The mammogram showed lump was 21mm. The ultrasound didn't show anything re nodes so I'm taking that as a positive sign although I know that could change once I have the surgery and they do further tests. Im assuming that if sentinel node clear then I wouldn't have further scans. Also assuming that after surgery to remove lump and sentinel node the diagnosis could change and the treatment plan can alter. Was told it was 'provisional grade 2'
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24-06-2016
07:13
1 Hug
Thanks for your reply Sue, at the moment they've just mentioned the surgery as the first port of call and that if there aren't clear margins they may have to operate again or even go for a mastectomy depending on the result...... am trying to think positive and hope that one operation will be enough and that there will no further surgery/chemo necessary. only radiotherapy and tablets mentioned so far. the breast nurse did say something about possibly having the other breast reduced in the future to even things up. I have my pre op next week and have to go and see my breast nurse before that appointment where she said she'd give me more information re the operation and recovery and also show me photos of what to expect. Maybe the nipple reconstruction option will be mentioned then. To be honest at the moment I'm not remotely bothered about having wonky boobs or only one nipple! Just want the cancer removing and hopefully to be told it hasn't spread. Convinced myself that all the various aches and pains that I've had over the past year aren't just down to age or the fact that I'm not very fit but are actually cancer spreading to others parts of my body.
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24-06-2016
05:13
Hello all, I've just been diagnosed with invasive ductal, ER+, HER-. I'm due for breast conserving surgery on July 12th - forgotten the exact name but am losing my nipple as lump is just behind it. Also sentinel node removal. was given the choice of mastectomy but Dr said I was suitable for the breast conserving surgery. hope I've made the right choice! It seems the best outcome would be this surgery then radiotherapy then Tamoxifen for 10 years however I know after the surgery it could all change and there could be further surgery/chemotherapy depending on what they find. i seem to be very up and down at the moment, quite calm one minute then the next I am convinced that the cancer has spread everywhere else in my body either via lymph nodes or bloodstream! I'm a pessimistic person at the best of times so am struggling to remain positive. Am dreading the operation anyway as I've never had one and am feeble at anything medical - I often faint just having a blood test!! So unsure how I'm going to cope. If the results after the surgery are not good then I really don't know how I'm going to cope, I need a switch to just turn my brain off to stop it thinking such dark thoughts. finding these forums has been a real help as I can see I'm not only in these thoughts. It's just all the waiting!!
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13-06-2016
08:51
Unfortunately got the news I didn't want to hear, I do have breast cancer. Back next Monday for biopsy results. Managed to get through all the tests no problem, seem to have gone on auto pilot mode.
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13-06-2016
08:22
The thought of having another week's wait for results makes me wonder how I'll manage to get up and go to work each day! My immediate worry is getting through the tests because I'm so useless at anything medical. If it's possible to faint whilst standing up having a mammogram then there's every likelihood that that is what will happen. my tummy is churning like mad already but I've managed to make myself eat some breakfast. hope your tests go well today Jill.
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12-06-2016
10:06
Thanks for the reply Jill. Yes my boyfriend is coming with me. Presume I'll have various tests on my own then he can come in for any result which my mind will probably not be able to compute. i had wondered about painkillers...ibuprofen?? I'll have to speak to a pharmacist first to check OK to take them in addition to some other medication I'm already on. Im not expecting to get much sleep tonight 🙁
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12-06-2016
10:49
Hi all I have an appointment with the breast clinic tomorrow having visited the Drs 10 days ago about a large lump I have had for a couple of months. My breasts have always felt quite lumpy and get sore around my period so I waited till after my period to see if it went but it didn't. Then in the time it took for me to get a Drs appt my nipple has changed in appearance in that it has gone flat as though it is thinking of inverting. The dr agreed she could feel 'the area' I was concerned about and because I mentioned other symptoms such as the nipple plus a couple of months ago I had a spell of 3 or 4 days where I kept feeling a bee sting like pain on and off in the same breast she was going to refer me for tests. I am so worried about every aspect of the appointment. I'm not good with medical things and in the past have fainted just having a blood test done! I believe mammograms can be painful anyway and as my breast feels really sore just touching the lump I am dreading how painful the mammogram will be with really firm pressure on the same place. I am obviously concerned that as the lump feels quite big (about 6cm to me) and the other symptoms too all add up to it not being something and nothing. My mind has really gone into overdrive and gone beyond worrying about if it is cancer and also what if it is cancer but that is has spread elsewhere and cannot be treated. I have been having all kinds of horrendous thoughts and really don't know how I've got through the past 10 days of worry but am paranoid that this just the beginning and there will be far worse things to worry about after tomorrow. Sorry to waffle and I know that at the moment I don't really have a specific concern but I just can't get a control over my brain wandering!
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