Breast Cancer Now Forum

Tina50 · ‎09-08-2016

Hi all i had a double mastectomy a few weeks ago and I'm feeling good with tissue expanders. My lump was lobular containing 2cm of cancer and 3 cm of pre-cancer and I've been told that I'm borderline for chemo. I guess it's good news that it's not "needed" but I think it's going to be "recommended" for us to make the final decision. Meeting the Oncologist this afternoon for the first time to discuss it and I wondered if anyone has some advice or questions we should ask to help us make the decision. Thanks Tina

Tina50 · ‎27-07-2016

Hi all I wondered if anyone has any advice here. My daughter is 6 and seems to be handling my hospital visits and "be gentle with Mummy" messages well. She knows I have a lump in my booby and that the hospital are helping to make me better but she's asking 2 questions we're struggling to answer: - now that it's out, what did the lump look like, and - how did it get in there Does anyone have good answers for these two? Thanks Tina

Tina50 · ‎26-07-2016

Hi there Quick update: my summer recovery plan has now gone. I had SNB a week ago and then a double mastectomy last Friday. I was due to have implant reconstruction at the same time but ended up with tissue expanders. I'm reading up about it but now I'm looking at another surgery in 6 months with nipple reconstruction 3 months later. Now it feels like it's never ending but I'm trying to focus on the positives that the lump has gone and my nodes were clear. Chemo is still an option and I'll hear about that next week. I came home yesterday, the pain is manageable but I can't sleep as I'm used to sleeping on my side which isn't possible at the moment and night time tv is rubbish. Anyway, thanks for the responses. It feels like I asked that question a lifetime ago already. Good luck all x

Tina50 · ‎26-07-2016

Hi all I had a double mastectomy on Friday and expected to come out of surgery with implants. I woke to find that "my skin was too thin" so I have tissue expanders instead with implants now not planned for 6 months. It was quite a disappointment but I'm learning to focus on the good news that the lump has gone but as I wasn't expecting this, I hadn't educated myself on what it was all about. Is anyone going through the same and can let me know how it's going? Thanks Tina

Tina50 · ‎05-07-2016

Hi all I live in Holland, I'm 50 and diagnosed last week with a hormone induced, 5.2cm lobular tumour. They're 95% certain it's not in my lymph nodes and are recommending a full breast removal (and reconstruction I hope). They've not recommended radiotherapy or chemo yet but hormone therapy for 5 years. I'm pretty calm about it all as it feels like once the surgery is done within the next month I'll be on the road to recovery with just a daily pill to remind me of my summer. Am I totally underestimating what's about to happen to me? Has anyone had removal and reconstruction without needing radiotherapy or chemo? Are there side effects of the hormone therapy that will be life changing? Thanks for any advice

Breast Cancer Now Forum

Borderline for chemo - how to decide?

Talking to my daughter - 6 years old

Re: Am I underestimating what's about to happen?

Tissue expanders

Am I underestimating what's about to happen?