Breast Cancer Now Forum

He never actually named the alternative just said there was one but would cause joint pain, so not much help l'm afraid ☹️ We will get through this! I know my posts may come across as l'm struggling but l'm not, you wouldn't believe the ridiculous things that make me laugh,every day, (maybe l'm hysterical?!) My approach is definitely one day at a time & take as much control over my treatment as l can because at the end of the day l figure it's my body, my choice   Hang in there 😉 ... View more

So sorry to hear that Charys. Is there no alternative to Tamoxifen for you? At my check ups with the oncologist (last one was prior to me discovering my loss!) l was always asked how l was coping on it, offerred anti depressants for the hot flushes (no thank you 😬 ) & told l could have an alternative , but it would likely give me joint pains, so l opted to stay on it. That may well change now, honestly you're damned if you do, damned if you don't sometimes ... View more

Ha ha ha, me too! Always from someone who,s not actually been on Tamoxifen, just keep taking the tablets eh? 🤓 😇 😉 ... View more

Same here & thanks for the support, a study in Germany has concluded women who expect the worse from Tamoxifen have more side effects, what a load of codswallop! I've been really fortunate compared to some, my cancer was caught early , l went through the radiotherapy well & apart from hitting the menopause with a vengeance,sticky eyes, weight gain & lightheadedness (did l say fortunate?? ha ha) so l really was clued up & expected no real dramas,,,,,,,,,, THIS however, was never brought up. Like l said , if it was shrinking a man's penis then l'm damn sure they wouldn't be fobbed off with its all in the mind! Here's hoping my GP & oncologist can do something  ... View more

I went to my GP yesterday & she was really sympathetic. Said she'd never come across this but has written to my oncologist to see what if anything he knows or if he can change my meds. Macmillan had no 'evidence' of this but referred me to this forum & guess what? It was first raised on here in 2009!!!!! 6 years before my diagnosis! l know it's not exactly something that comes up in everyday conversation but for god's sake, if there was a drug that had a side effect that shrunk a penis the whole damn world would know about it! l really think this should be reported to the Drug agencies because even if it's a rare side effect women should be told ... View more

I emailed Macmillan to ask about this very same thing & got referred to this forum.Thank goodness! I feel like an absolute freak! breast cancer & its treatment really is 'the gift that keeps giving',,,,,,,,,or in this case,,,taking away! wouldnt mind if it was losing my hairy legs or the excess weight l've piled on lve been on tamoxifen since May last year & if this is how it's going to be l may well ask to come off it There is l'm sure many more women with this problem, (& yes, it is a problem!) but maybe they're too embarrassed to ask about it. l'm really hacked off because l haven't lost my libido just really struggle to orgasm .l know some men have difficulty finding the clitoris but when you're struggling to find your own it's just not on! Anyone asked their oncologist about this? ... View more