Breast Cancer Now Forum

Sue C

Jill I take amitriptyline for pain. Take it at night and helps with sleep too xx

Sue C

Hi Gloria Try private messaging Funnyface as she does still use the site from time to time. Sue xx

Sue C

Superdrug do have an online service, but it's not something I've tried. Always worth a go? Hope you get lucky x

Sue C

Hi Sandra I have accord too and get it from Superdrug without any problem. I’m also in Sussex! sue xx

Sue C

Thank you both for your replies. Michele, if you can, stick to the monthly injections as they are more reliable and effective x

Sue C

Hi Ladies For those of you on zoladex, do you know whether you can have the injection a day before or after its due? How much wiggle room is there? Sue xx

Sue C · ‎01-08-2020

Hi Janey Thank you for response. It turned out to be a fracture so huge sigh of relief 😌 . I'm having another bone scan in a few weeks to check. Ive been put on a bone strengthener to see if this helps and the pain has nearly gone. Sadly, I think letrozole causes alot of problems ( for me) including bone thinning. I hope you get on OK at the drs. Sue xx

Sue C · ‎12-07-2020

Hi I haven't experienced palpitations from the zoladex. However, I have noticed it when anxious. Maybe more to do with your return to work? Might be worth having a check up with your gp. Hugs xx

Sue C · ‎08-07-2020

Hi Lucy Thank you for your reply. I have found that some side effects come and go. Or maybe I just adjust! I sometimes get those headaches that you talk about and have found it was when I was dehydrated. Make sure you keep your fluid levels up. Plus, I worked out that ibroprofen worked better than paracetamol. I don't know whether I can switch meds yet. But I'm getting to the point where I can't manage all the side effects now. Best wishes Sue xx

Sue C · ‎07-07-2020

Hi Ladies Having now been on letrozole for almost 4 years, I seem to have most of the side effects! The latest one is numbness in feet, which I'm assuming is nerve damage. Anyone else had this? And did it improve? Thinking of asking onc to switch to tamoxifen.... Sue xx

Sue C · ‎03-06-2020

Hi R That's great news 💕 So glad for you x The research programme sounds great. How did you get on that if you don't mind me asking? Sue xx

Sue C · ‎15-05-2020

Hi R, I'm pleased for you, and hope all goes well. They will be wearing ppe, and you'll wear a mask. Plus everything will be cleaned. I hope this provides confidence to others reading this that the mammograms will be going ahead. Sue xx

Sue C · ‎14-05-2020

Hi Gaileigh Please be reassured that you had your treatment very recently, so it is highly unlikely that there is anything to be concerned about. The first mammogram is used as a marker so they can compare going forward. Having said that, I do understand your anxiety. It's such a difficult time. Is it possible to call your bcn? I think things will gradually change in the hospitals, so they will be able to carry out more routine tests. So I'm sure your mammogram won't be delayed for too long. Sue xx

Sue C · ‎13-05-2020

Hi I'm in West Sussex xx

Sue C · ‎13-05-2020

Hi Ladies Just wanted to let you know that I had my annual mammogram today. Got a call only yesterday to say come in. So obviously they are now trying to get through these, although I'm sure it will depend on your hospital. Anyone reading this, I would say phone your bcn if possible as a gentle reminder. It is possible for them to do it with the appropriate Ppe. Sue xx

Sue C · ‎05-05-2020

Hi Welcome to the forum. I'm on letrozole so can't comment about anastrozole. But I don't get itching or hot flushes with it. Just because people post on here with se, doesn't mean that you will get them. Ladies are more likely to post if they have problems than not. With any supplements, check with your oncologist first. In my experience, they tend to shy away from any extras as it could interfere with the meds. Best wishes Sue xx

Sue C · ‎25-04-2020

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Sue C · ‎25-04-2020

Hi all Apologies if this has been already asked, but have all routine mammograms been cancelled across the country? Mine is due next month, but have not received a letter either way. Sue xx

Sue C · ‎01-04-2020

Hi Ladies Just needed to share my worries. For the last 3 months, I've been experiencing pain in my rib. After a bone scan and a ct scan, something has shown up, but they don't know what it is yet. Its only one isolated hot spot, with no other spread. I'm not optimistic. The pain isn't improving, especially at night. I've got a phone consultation tomorrow with the oncologist. What happens from here? How do you cope with the pain? Don't need this on top of the state of the country atm. It's all so stressful and the anxiety at times can be overwhelming. Thanks in advance Sue xx

Sue C · ‎09-03-2020

Hi Thank you for your reply. Diagnosed 2016, had lumpectomy, chemo and rads. Currently on letrozole and zoladex. Impossible not to assume the worst! And the more I think about it, it becomes more sore! Having gone through bc before, I know this is the hardest part.... Tests and waiting. Just really struggling atm 😢 Hugs xx

Breast Cancer Now Forum

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