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vwalker2653
Member
since
06-09-2016
8
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1
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26-09-2016
04:49
Hi Charys, Thank you. I wish you all the best too!! Such toxic drugs. I wish the treatment was a bag of jelly babies every day. Veronica
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23-09-2016
08:19
Well there are 2 other aromatase inhibitors, but same problems. I had severe allergies to all of them and so take nothing. It is stressful. I just try and eat low fat and walk a lot. I try to stay away from additional estrogen like meat and dairy, take supplemental vitamins and minerals, turmeric, and cruciferous vegetables. I also use grapeseed extract. Since I stopped, my onc doesn't care either. I see my GP. Luckily a great guy. Oh, I take fosamax and lipitor since they are supposed to both be great for BC. But I have osteoporosis and high lipids, so that won't work for everyone. Johns Hopkins Medical Center in Baltimore has a website where you can ask questions. Just google them. Veronica
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23-09-2016
08:03
I mentioned ibuprofen only because it's yet another otc that has untoward side effects. A medication some people take every day for the ache and swelling of joints associated with use of BC meds.
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23-09-2016
06:25
Hi, I had severe allergic reactions to both Tamoxifen and Aromatase inhibitors. Facial and lip swelling, hives, blood pressure 280/160 with a heart rate of 140. So I have stopped (not that I ever really started) Have messaged my onc, but he hasn't responded. They all seem so bored and disinterested. Anyway, I've just been eating healthy, trying to walk more. My tumour was 5mm DCIS and 5mm IDC. I had a bilateral mastectomy and my nodes were not involved. July 2016. I have osteoporosis of the spine. I take fosamax 35mg/week because I can't tolerate 70 mg. I just hope for the best. Cheers, Veronica
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23-09-2016
06:10
I take aspirin every day. 81mg as a preventative measure for ACS. It is a medication that has been around for over 100 years and yes, there is a risk for bleeding. Ibuprofen also has a risk of causing bleeds and heart attacks. Aspirin is fairly benign considering all the other poisons we take after a diagnosis of breast cancer.
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06-09-2016
11:57
1 Hug
I wasn't told that, I had to look it up. In fact, I wasn't told anything by my onc. He just said I was to start letrozole and walked out. My onc does not interact with me. I have seen him once since diagnosis end July. I am not taking letrozole since I have to get Prolia for osteoporosis which I had to call him about. It's a freaky med and I am stressed about all these chemicals that I am not sure I want to take. I suspect lack of support is the reason a lot of women quit these drugs. Hardly any advances for early stage BC in forever....that's why, tam is still around after 30 years. I am an RN, but cardiac. This is a whole new learning curve for me. I want 10mg tam, since I had hives, terrible esophagitis and facial swelling with the 20mg he eventually called in for me after much ado. He hasn't done any blood work, but has charged my insurance (I live in the US) over $1000 for a 10 minute visit. During which time he never once answered any of my questions. I have never experienced such a lack of compassion. See you in a year, he said as he walked out. I was told to get my labs from my GP. They are the only show in town with 20 oncs. How do I tell him he's fired and get another onc? BTW, half life for tam is 5-7 days. Which means that 5-7 days later,you still have half the tam in your body. So I don't get the 20mg thing. Feel neglected, ignored and depressed. My love to all with the 1 out of 8 disease.......Veronica
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06-09-2016
09:33
Please don't split your Tamoxifen. They state not to do so. Reasons: It decreases bioavailability of the drug, causes airborne powder (you're not supposed to inhale it) Causes esophageal and stomach issues and if you are a caregiver, you should handle antineoplastics as little as possible.
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