Breast Cancer Now Forum

Hi Dragonfly. From talking to my Oncology Team, neoadjuvant Chemo is used prior to surgery for people with TN IDC. They do this to shrink the tumour as much as possible so that minimal surgery is required (hopefully - depending on Genetics) I'm at a similar stage to Kat33 - had 1 cycle of FEC Chemo and 5 to go ! If you have any questions, ask your team. I always go to appointments with a list of questions. Got to write them down or I'd forget. I've had the genetics blood test and am awaiting the results. Meeting my surgeon tomorrow and am planning to ask for a double mastectomy anyway. Psychologically, i want them gone and I'm confident he will help me make the right decision. Keep in touch and wish you all the best. It's an emotional rollercoaster but plenty of lovely ladies on here and on the secret FB page to ask any questions xx ... View more

Hi Kat. Thanks for getting back to me, really appreciate it. Would love to hear from the girl and her story - thanks for offering to share that with me. I don't know if it's the done thing but I'd be happy to swap email's / mobile numbers to keep in touch ? Thinking of you and your gorgeous wee boy. We can do this !!!!!! Xx ... View more

Hi Ladies Can I please have the FB details ? I am newly diagnosed with TNBC. Struggling with this rollercoaster i have landed up on ! I am in Aberdeen, 37 years old and a Mummy to a 6.5 year old girl. I felt a lump, was told it was a Cyst but on USS it showed up to be a Cyst and also a 2cm IDC lurking alongside. They think Stage 1 but Grade 3 so starting Chemo in next week or so. TNBC gets a lot of bad press on the Internet but my docs etc are all so positive that it's treatable and not life threatening. Any help / advice would be greatly appreciated. Thanks so much xx ... View more

To say i am all over the place and terrified is an understatement. I have loads of support but at the same time, I feel so alone. My experience of Breast Ca has not been a good one as I lost a very close friend in Feb this year - also TNBC. All the professional's I have spoken to arent positive that this can be cured with treatment - treatable and not life threatening is what they are saying. I am struggling to remain positive as often as I would like. I am due a routine breast MRI and CT next week as well as meeting with the Oncologist for the first time. Any tips / advice would be very much appreciated. The Breast Care Nurse said people "DO beat this and live to be old ladies" Talking to you helps Nikki as what I need is positive reassurance. Thanks for getting back to me with your story xx ... View more

Hi Nikki Were you triple negative also ? X ... View more