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Skye
Member
since
30-09-2016
68
Posts
22
Hugs
22-11-2021
06:57
1 Hug
Hi Helen Anniversary dates are always a horrible reminder of how we felt when we were diagnosed I still remember mine vividly and that feeling of a death sentence being passed - no matter what the consultant said, I was convinced that my number was up! Now, I look back and realise the fear was caused by a lack of knowledge and not knowing anyone who was in the same situation as me. I’m one of those people who has to know everything possible, I research, I look for positives, I try to negate the bad bits and look for ways where I can deal with/minimise the side effects. Every day you’ll feel better and your strength and energy will return. It’s such a great feeling when you wake up and don’t think or feel the effects of cancer. As Anxious Soul has said, be gentle with yourself. There is no rush with this journey, and if you have to take things at a slower pace - or even find an alternative way to do things - then please do. We can all be a bit too hard on ourselves instead of allowing ourselves the time and patience we need. Keep us updated with your progress, it’s always great to hear how others are doing. Have a wee hug from me! xxx
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22-11-2021
06:35
1 Hug
Hi Anxious Soul Great that you’re now 3 years on - every day is a blessing isn’t it. Hopefully, by now you’ll be feeling a lot better, like me! Have you heard of the new drug Inhertu that’s been developed? This is for those you’ve developed secondary HER2 cancer. Every year there are more and more new developments to help fight against this horrible disease. As each year progresses, the worry becomes a little less. Big hugs to you xxx
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29-09-2021
10:03
6 Hugs
Just wanted to let everyone know that even though this diagnosis is scary, I’m now not waking up and thinking I’m going to die. It’s a fabulous feeling knowing I’ve came this far and I want to give hope to other people out there! Stay strong and trust in your medical team and BC nurse. Big hugs everyone. ❤️
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12-04-2017
01:18
Hi Welshcake I started on Oetrozole on 20/3/17 - Femara brand. I've always taken it at night. Have slight aches in legs and heavin as in arms, but no sickness or other SE's. Taking Collagen to help with aches and paracetamol. Let me know hie you get on. Skye
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14-12-2016
12:27
Hi Sue H-S Saw your post re CO-Q10 with another member Bibby44 - it was back in July. I've sent her a msg but I dont know if she'll respond. Did you find this helped you? I noted that you said you had to come off because it was interfering with your Chemo. I'm due to start Herceptin and 4th Chemo (which is Taxotere) on 4/1/17 and wonder if I should start on CQ-Q10 before that. Thanks for any help/info. Skye x
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14-12-2016
12:23
Hi Bibi44 Can you give me any more info on Co-Q10/Pycnogenol - are they two separate things or are they both the same. I'm due to start Herceptin and 4th Chemo (which is Taxotere) on 4 January 2017 so wonder if I should start on Co-Q10 before that. Many thanks. Skye
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29-11-2016
04:55
1 Hug
Hi Swampy1901 Re your backache pain - I started taking Arcoxia when I first got the pains after the first cycle. I've continued taking it every day with Omeprazole (I was taking both for a previous condition and stopped when I didn't need them). I'm on Day 8 of my 2nd cycle and I've not experienced any pain at all since the first cycle. Arcoxia, I think is cumultive so it might be worthwhile starting on it asap if you want to get the benefit. Hope things improve. Big hugs Skye xxx
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29-11-2016
04:52
Hi Angie Sorry to hear that you're having a hard time. Have you tried Omeprazole or Lansaprazole for your heartburn, I've been taking it since I had the injection into the stomach for white blood cells and I've only suffered once in the early hours of the morning. Worth a try. Hope you feel better soon. Big hugs Skye xxx
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29-11-2016
04:44
Hi Everyone I'm at Day 8 of my 2nd FEC and went back to work yesterday. I did feel tired, but not exhausted. Had the usual headaches for the first 4 days after treatment, but other than that I've been okay. Did wake up early hours on Thursday with heartburn, but it didn't last for long. Haven't had any back pains after the white blood cell injection, so I'm glad about that. Last cycle they were so blood sore. Most of my hair has gone now 😞 and I've got a LGFB session booked for 5 December so that'll be great. Does anyone know if you should shave your head to get rid of the little that's remaining? I'm finding that I can't get comfy in bed as my hair is stubble like and keeps irritating me when I'm lying down. Big hugs to everyone Skye xxx
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29-11-2016
04:34
Hi LuckyStew So glad that you stopped lurking lol - welcome to this group (although I'm sorry to see you here! 😞 How are you feeling now after your first FEC? We all have different side effects and a lot depends on age and whether you're on medication for anything else. I'm sure if there's anything you need to ask, then someone on here will already know the answer. Big hugs Skye xx
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22-11-2016
11:36
Hi Capelmum Im more comfortable about my hair now, had a shower tonight and some rubbed off - aw well it's gonna happen anyway. Got lotrps on the top do just patted it dry. Hope I don't end up looking like a pineapple!!!! lol Had my 2nd FEC yesterday and met a lady on the same as me 3 XFEC/3 Tax and her hair had started growing in too. So it might well be the case we're not without it too long. Anyway, we'll save a fortune in shampoo!!! Big hugs n kisses Skye xxx
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22-11-2016
11:31
Hi Jacksprat Try not to panic too much - the fear of the unknown is the worst thing. Once you start your treatment you'll feel a lot better. Feeling scared is normal as is having a wobbly and crying and feeling helpless and so many other emotions that we all go through at one timer another. All perfectly acceptable and understandable given the circumstances. We we will all get through this together. If you need any help of advice uou will always find it here pet. Big Hugs for Thursday - will be thinking of you. Hugs n kisses to those who need them. Skye xxx
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22-11-2016
11:08
Hi Capelmum Try and get Omeprazole for the heartburn - it should help a lot. Hope your Xmas plans go well - I'm sure they will. Im losing hair dart, mainly at the sides and back, but no-where else Unfortunately. Your episode in the shower made me laugh. I guess mind must be working up the way lol. Big hugs. Skye xxx
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22-11-2016
10:51
Hi Sarah Ive just finished 2nd Cycke yesterday and felt tired today, usual sore head and can't be bothered doing anything. Slept for quite a few hours throughout the day, and still feel knackered. Re the lumpectomy - yes, your Breast shaoe changes - I had a 2cm tumour and the scar is 4cms long. There is a swelling round the scar (scar tissue) and my hood does look a big indented when I have no bra on, but it's no big deal. My BCN said when I have Rads that will also change the shape and after recovery I will have a new "normal". Hope this helps. Hope uou uou feel better over the next few days. Big hugs. Skye xxx
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16-11-2016
04:40
Hi Mary So glad to hear that you're on the mend and that your bikini bod is on the way. I'm still working with my winter bod, so I'm a little bit envious! 😂 😂 Fabulous news about your sister and a great relief for both of you. What cycle are you at - am I right in thinking that's you finished your secind FEC? If so, how many days after? Im on Day 16 of first FEC. Had my hair shaved last Tuesday and it's starting to come out in bits now. No real bald patches yet, just a wee loss at the sides, but you have to look closely. I've been wearing my wig since last week to get used to it. Have a fabulous day on Saturday - don't mention the C word - and kick up you heels and party!!!! Lots of love Skye xxx
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15-11-2016
11:59
1 Hug
Hi Auntyjulie You and I are on the same treatment plan. I'm on Day 15 just now, with second cycle due on Monday (bleh!) I had my hair shaved last Tuesday (No.3) and wig fitted. I hate looking in the mirror without my wig as it reminds me that I'm having treatment. I don't need to think about that when I have my wig on and I can pretend that I'm ok. Im feeling really down as I think my hair is coming out now and all I seem to do is cry. I'm trying hard not to, but I just end up in tears. I hope you're doing better than me. 😀 Love n hugs to everyone who needs them. Skye xxx
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14-11-2016
02:58
1 Hug
HI Sue H-S In response to your post re PICC line - I've had my first Chemo and my veins were okay. Second cycle due on 21/11 and I'll see how that goes. Hopefully, okay - but I'm bearing in mind what you say. Cheers! Skye xxx
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14-11-2016
02:30
1 Hug
Hi Everyone I got my hair shaved last Tuesday (8/11) - I went myself, although hubby was meant to go with me, I felt he would be upset seeing me be upset, so decided to go it alone. It wasn't too bad and I did have a wee laugh now and again. It was done at the drop in centre at the hospital (the hairdresser was from Maggies' Centre). One think I'm experiencing is pain from the wig, where the band is - is this normal and will it disappear once I get used to it. Was going to give it a week (Tomorrow) before I went back and asked for it to be adjusted. Otherwise, I'm feeling good - don't really like looking at myself in the mirror when I put the wig on - think that's because I can pretend there's nothing wrong with me, but seeing the shaved head makes me face up to the fact that I'm getting treatment. Big hugs to everyone who's having a hard time - we will all get through this. Much luv Skye xxx
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14-11-2016
01:25
Hi Lisa46 How did you get on with your 2nd FEC - hope it wasn't too bad for you. No, I didn't cold cap - I had my hair shaved on Tuesday 8/11 as I thought it would be better than having clumps come out. So far, I've still got it but I'm expecting to go before my 2nd FEC on 21/11 or soon after. When you use the cold cap, you have to do it from the start, it can't be used midway through treatment. The wig is fabulous. Let me know how you are getting on. Cheers! Skye xxx
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07-11-2016
09:30
Hi OldDawn63 Thanks for the quick reply - I think I'll go with your recommendation and have it clipped short, would that be like a skinhead? Am booked in for tomorrow some time. I know hubby is not looking forward to it, so I might just sneak away myself and get it done. I really don't want him to go through it with me if it makes him feel bad. He's been such a rock for me that if I can spare him anything, then I will. Will definitely invest in E45 Itch Relief cream - can you use that over the short hair as well or do you have to wait until all your hair falls out? Can you recommend a brand of aqueous cream for me? I'm at Day 7 but so don't want to develop itchy/sore scalp if I can help it. How did you get on with the second cycle? Thanks so much for your help. Big hugs Skye xx
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