Breast Cancer Now Forum

MotherofdragonsX · ‎11-04-2017

Bless, my son was a twiddler as well, such a lovely thing. Have you thought about using the cold cap? I had a lot of hair to start with, but still have passable hair now ater 12 sessions of Taxol and 4 of FEC. It is time consuming, but kept me looking normal(ish) - the ish is I'm 52 and have always dyed my hair, as you cant do that through chemo I have brown hair on top and grey underneath!! Otherwise, it might be worth getting in touch with a wig maker and seeing what they would charge to weave it into a cap, then at least it would be your hair and fixed, and you could wash it if needed. Good luck xxx

MotherofdragonsX · ‎11-04-2017

Love it! After my lumpectomy, i was called in a week later to have a check up with the Surgeon and he had a prod and changed the dressing anouncing i was doing well. Left feeling all chuffed and came home ready to see my Dad who was coming over for tea. Chatting to my Dad i had this 'full feeling' in my mini boob like i used to at that time of the month, but then it got stronger and stronger and suddenly mini boob was GIANT boob! Called the hospital, who said they would call the surgeon and he would meet us at the hospital, it appears that all the examining and stuff had caused a bleed and i needed a drain fitted, which he did there and then. I called the drain bottle Edward, (After Spangly Glittery Vampire Edward Cullen in Twilight), as he was a blood sucker!! It was the source of much amusement, he had his own bed in the drawer of my bedside table, and my friend sent me a Twilight bag to carry him around in at home, my friends son also made him a cape 😄 XX

MotherofdragonsX · ‎11-04-2017

Hi Corrina, I too am a wonky boobed one. I had my op in October last year and the scar still seems to be settling down around my nipple. The surgeon (obviously a golfer) told me that there would be a 'divot' in my breast as the tumour was quite near the surface of the skin, however he did make a incision around the nipple to make me feel less scarred. The divot doesnt seem to be there, however, there is a definite difference in size. I have been told i can have some excess fat put in the mini boob once things are finished at the end of July, but i'm in two minds now. I would like them to be equal, but unless i'm undressed and they are flying free it doesnt seem to obviously show - or at least no one else has mentioned it and i have very honest friends who i have asked. I was also offered having my other boob made smaller to match, but I was never hugely blessed in the boob department anyway, so to have a healthy one made smaller felt wrong to me, and i didnt want any more scarring either. The scar under my arm from the node op has healed really well using the bio oil, so hopefully yours will do the same, when did you have your operation? I do find if i'm wearing something 'a little revealing' a padded bra works really well. How is your decision making going? x x

MotherofdragonsX · ‎09-04-2017

Well, the sun is out and my last EC chemo is at the end of the month, happily feeling much better as last poisoning was over a week in the past, just the rash on my face that appears about day 10 to contend with (seriously, spots at the ripe old age of 52!) . So, getting to 'the smile', this morning I looked in the magnifying mirror - I know, stupid thing to do, but am awaiting 'the rash''- and there it was.... I have been eyelash-less for nearly three months (btw I hate that you can't hold tears in yours eyes without eyelashes and they just waterfall out when you are least expecting it!!) I have adorable short and stumpy little eyelashes growing 😍 👍 , reached for the mascara just to be able to see them as they are so pale and there it was, one pale grey full length eyelash on the top row - ONE - !! I have a neat row of cute and stumpy eyelashes and this behemoth of an eyelash taunting them - I can assure you I was seriously tempted to take the scissors to it, but wondered if I did possibly the new stumpies might stop growing as they are aspiring to be this eyelash one day..... Getting my smiles where I can, and hoping it makes you smile too xxx

MotherofdragonsX · ‎19-03-2017

Hi All, I started chemo in October last year and did the Taxol first (12 weeks once weekly). I used the cold cap and had very little hair loss at all. No real side effects either and managed to get on with life and feel pretty positive and happy. Started with EC 7 weeks ago. The first session was ok, had nausea and constipation and went off a few of my favourite foods (I loved salmon, cant even stomach the thought of it now!!) I lost lots of hair on days 17 to 20, but was blessed with a load of hair initially so still have some hair, even though its terribly grey now i worship the l'oreal spray colour in the turquoise containers - its amazing stuff 🙂 This second EC one has been much tougher, feeling really grotty week one after the treatment - have the marrow boosting injection too, which gives me horrid leg pains. I went off and got myself a wig, as i was stressing so much about the hair loss, but the lady at the wig place and the chemo nurses appear to think i might keep enough and its in chin length bob type style.The hair has carried on falling, but not quite as badly as in the weeks after the first session. My hair has obviously thinned out all over, but i have no bald patches at all (using the Paxman machine). I have thinning eyebrows, and no lower lashes, and have lost half of my top lashes on both eyes. The lack of 'fluff' on my face and body makes me feel 'dirty' - but i'm sure thats me just being rather freaky 🙂 Wishing love to all xx

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