Breast Cancer Now Forum

Hi Shep, I had my surgery on the 1 December, they delivered my little boy the day before. He took a very bad turn during my mastectomy surgery and things were touch and go for him, when I cane out of recovery the doctors were fighting to revive him. He had a collapsed lung and sepsis. Fortunately he is a little fighter and couldn't be stronger or happier now. After my surgery, my pathology results found 2 more very small lumps. I was able then to go for scans which I couldn't have while pregnant. The CT scan showed inconclusive results on my liver and the bone scan highlighted an area on my right hip which was also inconclusive what it was. I was sent for MRI - still inconclusive and finally an x-ray and liver ultra sound. While waiting for results I had 6 rounds of FEC-t chemo, I then had 15 sessions of rads to do. During my first session I met with my oncologist and he informed me that the team had made a decision on all my scans. They have decided that they were areas of spread from my breast cancer. I have now finished rads and am currently on tamoxifen. I am due scans again next month to see how all is going. My cancer was er+ so I take tamoxifen, ibandronic acid and vit D. I just hope it keeps working and that the chemo destroyed most of the spread for now.... ... View more

Thanks ladies, He's a very withdrawn person in general. He doesn't have great relations with his family and while I try to encourage him to go and see friends and family he just seems to withdraw into himself. Even tonight I've come home from the scan and he hasn't asked how it went and I don't feel I can tell him either. I've confided in a close friend about the scan results and I'm close to my family. They've been great...sometimes too much though (is that possible). I've taken steps to take back some control in my life...crazy as it sounds I've put in place a plan to return to work one day a week. As I need some normal in my life. But he doesn't think that is good for me... ... View more

Sorry it's a rant.... My other half came home from the Doctor today's saying they had prescribed him antidepressants and I asked him why? He said he'd been feeling anxious and unhappy for some time now. I got really upset and asked why he hadn't spoken to me about it and he started putting it back on me...saying it's not about me this is about him and how he feels. 4 years ago he was on antidepressants and I stuck by him and helped him through it all and he came out the other side much better but I don't think I'm strong enough this time. Am I being selfish...I've 3 kids...two of them are still babies and I know how hard I worked to make it okay last time. With everything that's going on with my own illness I'm just not sure I can take care of someone else as well. I had second FEC on Wednesday and he's barely even asked how I feel each day...we went away with the kids last weekend and he barely lifted a finger...he's come home and is complaining that he never gets anytime to himself...i mean I get alone time when I go to appointments and scans. He has said he feels locked in. The hospital phoned today also to ask could I come for my Liver ultra sound today instead of February...I live an hour for he hospital and his first response is who is going to watch all the kids! I've cried the whole way to the hospital and the consultant can't even make me feel any better because the one liver lesion he can see looks fine but he can't see the other one so I have to go for another CT scan. Sorry for going on... ... View more

Hi ladies Sorry I hope you don't think I've been ignoring you all. I got myself in quite a state in the week leading up to day 14 bloods preparing for the worst from the scan results and didn't sleep the night before at all. As it turns out the results weren't there...so after a good chat with my partner, I took myself of all internet/social media and had what I can only describe as a fairly normal week (I'm not sure normal exists but as close as) I had caught a cold from the 3 boys and of course my partner went back to work last week so it was nice to just be Mum and not think about anything else. I had my second lot of my 6 FEC-t today and so far all good...we bit queasy. They have struggled to get a vein so I've a rather attractive bruise up my arm where we failed to get one. Results from scan where in and they were mixed. The bone swelling on my hip is nothing just the General make up of me and only noticed because I had a scan...they assume I obtained it during an accident years ago but is nothing to worry about. The liver MRI they still don't have 100% results that they are happy with. The oncology team are in decided and so I'm now off for a liver ultrasound. They think it's possibly blood vessels which again I've probably always had but the MRI wasn't clear enough...so still not out of the woods for secondaries yet although my consultant did say that the bone results are much better than he had thought so he was pleased for me. Hair came out in bucket loads yesterday....this hit me quite hard but my sister was on hand with a variety of wigs which we tried on today. I also got my silicone prosthesis which is much better than the cushion although I have to say I wasn't overly bothered by the one boob shape. Anyway I hope all you ladies are doing well. I'm glad to be back online again but I definitely needed a wee break. Hugs xxxx ... View more

I've read that immunity is at its lowest between day 7-14 from day 10 onwards being at lowest. This would be were I'm at now so trying to stay away from busy public places. ... View more

Thanks Mooney, It's so difficult at the moment. I feel like a mother of 4 children and not 3. The other half is not coping very well at the minute and I feel like I'm having to be strong and not let on I'm feeling down as the smallest thing is starting rows. (Lack of sleep from baby doesn't help either though) I know I shouldn't think to much but since the MRI I've had persistent dull ache from the hip....it feels like it's bruised... which of course just makes me read more into it. I will await results though on Wednesday. ... View more

Hi Wtp2016 I'm doing ok. I had my MRI yesterday (also middle sons 1st birthday 😞 ) Was okay and will have the results next week when I go for my day 14 bloods...I feel like I know what the outcome of these already as the only reason I was sent forbtge MRI was because of the spots on the liver and the thickening of the hip joint. I'm really trying not to google...I've driven myself to the point of near no return with it. I've had a few very rough days in terms of emotions, I'm 6 weeks post pregnancy and period also arrived this week, ive shed a few tears this week. Side affects of my first FEC treatment though have been fine...just waiting for the hair to start going... 😞 . Hope all you ladies are doing good.xx ... View more

Thanks everyone...had a real wobble yesterday. i know that it's the stress of waiting and probably the drugs causing me to be overly emotional. To go from being a fiercely independent and private person , I'm struggling with loss of both of these. My support is great, my partner has been amazing with the children and my mother and sister are both fantastic but some days I'd just like a normal day...I feel they are a thing of the past. I'm dreading Thursday and probably won't get results until the week after when I'm up getting my bloods done on day 14. Just seems to be one thing after another...no doubt I'm not alone in this. Wtp2016 good luck for your scan. Xx ... View more

Have been keeping an eye on this thread. I started my first FEC-t on Wednesday. I haven't felt any ill affects just yet...apart from a rather flush red face. Of course I got dealt a rough bit of news before I even started the treatment that morning. I was diagnosed at 28weeks pregnant so my route has been a little different. On the 10th November I had WLE with full node removal due to positive results. 10 days later thess results showed unclear margins and 16/19 positive nodes. The decision due to being pregnant was rbmx and deliver baby early. So on 30th November my baby arrived at 34+6 weighing 5lbs...was a little unsettled with high speed breathing so he went to neo-natal unit. On 1st December I had my mx. On my return from recovery I was informed my baby had taken a turn for the worst with suspected sepsis and pneumothorax. 24-48 hours were critical. I forgot all about my own surgery... Following surgery and recovery I was finally able to go for scans. (It's got to be the worst feeling!) On my chemo day (4th January) my oncologist gave me results that there was thickening in hip joint and 2 small spots on liver. I'm not being sent for MRI scan next week on my second sons 1st birthday (I had 2 babies in one year). My chemo started but I just feel this is it...I've hit a brick wall at every turn...the last 2 days I have been an emotional wreck...I can't see a positive out of all of this, I had really hoped the chemo would be a start to fighting this and now I'm facing the prospect for leaving my children before they even get the chance to remember me. Sorry for dragging this out. ... View more

Thanks Sarah, I think the biggest knock was that 16 nodes showed positive which was the shock. I'm 33 but hoping tomorrow that my obstetrician feels baby is in a good place as my consultant for my mastectomy has said he would be happy to do the 2 surgeries in one go so I can start treatment Before the end of December... In life I'm a bit of a control freak and it's the not knowing what's happening next...I'm not an overly organised person but I thrive on work and currently am continuing to work as I find it keeps my mind busy. ... View more

Hi, just waiting for surgery now, it's been scheduled for 10th November. I'm so worried though as my children are both sick and I've picked up a chesty cough. I'm worried they won't do the surgery now as planned. ... View more

Thank you both. I have been back to the hospital since my last post and they have found cancer cells in the FNA they did on the lymph node closest to the tumour. They have given me a date of 10/11/16 for a partial mastectomy and axillary node clearance. I just feel it is getting worse...I'm trying to be positive for my kids as both our too young to understand what is going. The consultant has said it will be chemo and then radio after that. ... View more