Breast Cancer Now Forum

Hi Withasmile, Thank you for the birthday greetings! Just had chemo this afternoon. I just hope it keeps on working.   Bousy xx ... View more

Thanks Nicky. Just hope it keeps working. Side effects are kicking in a bit more now but can cope with that.   Bousy x ... View more

Hi Everyone, Just got back from the hospital where I received my results from my 3 monthly scan. I am still stable after 20 cycles of Eribulin. It’s my birthday today so best present I could have. Take care everyone.   Bousy x ... View more

Hi everyone, Haven’t posted for ages. Saw oncologist today for my scan results and everything is still stable. I have had 17 cycles so far, it’s exactly a year since I started Eribulin. Last 3 cycles I’ve been on 90% of the dose due to peripheral neuropathy. Feel ok but get more fatigue now. Next scan September. Feel relieved for another 3 months. Cycle18 starts Friday! Liz x ... View more

Hi Moijan, Hope you are ok. I have just finished my 15th cycle. I have a scan on 14 June and am dreading the results. I don’t feel any different but will have been on Eribulin for a year in July. I know it won’t work forever but would like it to work for longer. I haven’t lost any weight but I have had the same amount of Eribulin for 14 cycles but for the 15th it was a smaller amount. This time have been very tired and aching back. Still have no taste and ankles feeling numb now and again. Other than that I’m fine! Been to London for a weekend so probably done too much.   Hope you have a lovely weekend.   Bousy x ... View more

Glad to hear you have the go ahead! Liz x ... View more

Hi Phoebe, No you don’t take steroids before the infusion. I have a steroid anti sicknesses infusion before the Eribulin, which takes a couple of minutes, then saline is used and the Eribulin is syringed into the line. After a few more minutes of saline,I’m all finished. Hope this helps. I have my next day 1 on 13th April. Good luck, you will be fine. Liz x ... View more

Hi again Phoebe, Eribulin is one of the quicker chemos to have. It normally takes about 40 mins. You have it on day 1 and day 8, then a 2 week break. I manage to go and do things and do all my shopping, housework etc , with my husband. When you feel tired just rest, then usually I can carry on! I get peripheral neuropathy, numb fingers and toes, but it’s not bad. Look forward to speaking again on this thread, Good luck for the 10 th.  Liz x ... View more

Hi Phoebe, Sorry to hear your treatment isn’t working. Cape didn’t work for me at all. After 5 cycles they put me on Eribulin, that was July last year. I’m now on cycle 13. It has started to heal my bones and my liver mets are not reported on scans any more. One of my liver mets was 4 cm! i have never had sickness, it’s the fatigue that is the worst for me but only on certain days. Just had another scan and it’s still ok.  I didn’t loose my hair, it just thinned and now with special shampoo I have a full head of hair. It is a very mild chemo compared to some I’ve had I’m hoping it keeps working. You will be fine on it. Take Care, Liz ... View more

Hi Teri, I have hormonal bc. I have mets in my spine, pelvis and right shoulder, my lungs and did have a 4 cm tumour in my liver which shrank and no longer shows on ct scans. There are only a few more chemos I can try when this stops working so Eribulin has got to keep working. It’s positive thinking! Hope your daughter is ok with her first cycle. Liz x ... View more

Hi Teri and Helen 44, I have just been to see oncologist to get results of CT scan. Bones are still healing and nothing showing on liver. I’ve been on Eribulin for 9 months and starting cycle 13 on Friday. I hope results are as good at next scan.  Sorry it’s stopped working for you Helen, I only managed 2 cycles of Docataxel and that was enough. Hope they find something else for you. I know there aren’t many options left for me after this. Teri this is the best chemo I have had. My hair thinned at first but now have a good head of hair, Get a lot of fatigue but no sickness. Good luck to your daughter.   Liz x ... View more

Moijan, Good luck with your results on Wednesday.   Liz x ... View more

Hi Moijan, Happy New Year. Yes I should be having cycle 10 next Friday. See oncologist on Wednesday. I had to miss day 8. of last treatment as I had sickness and diahorrea. Feel a lot better now. Hope you are feeling ok with your treatment  Take Care, Liz ... View more

Thanks Moijan and hope you are keeping ok. I had a scan on Saturday and have seen oncologist this morning. It’s good news, bones healing, no movement in liver, lungs healing. Start cycle 9 on Friday. Fatigue is not as bad but have a bit of fluid on lungs.  Still having bloated feeling under right ribs but nothing shown on scan. Put it down to windy bowels! Have a nice Christmas everyone. Liz xxxx ... View more

Thanks Moijan, hopefully I will find out what it is.   Liz x ... View more

Hi Moijan, Hope you are ok.  It’s funny you should say about pain under ribs. I keep getting it at right hand side under my rib and at the back . I’ve just finished cycle 7 and see onc on Wednesday. The pain under rib feels more like it’s swollen. Do you get swelling or anything when liver mets are shrinking? I’m worried about bowel, that goes near the ribs, I think. Mine perforated with docataxel so worried.  I had this a bit before last scan in September but nothing showed up. Due another scan next month. Liz x ... View more

Hi Ramade,  I had rads to L2 of spine last Christmas and was told 8 weeks for pain to go and it was 8 weeks exactly. Hasn’t recurred since. Good luck , Hope pain goes. Liz ... View more

Hi Kay, I’ve had the flu jab. I had it on day 4 of cycle 5. I felt ok for a few days, then on day 12 my temp went above 37.5 so had to go to A & E. All was checked out as ok, no infection. Temperature was up and down for a couple of days but then I was fine.  I am now on cycle 6 and not doing too bad. Hope you are ok, Liz x ... View more