62239members
179online
327668posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About Sonia C
Sonia C
Member
since
12-11-2016
151
Posts
20
Hugs
28-01-2019
10:20
Thank you Evie, I did in fact speak to my oncologist who told me to take the article with a pinch of salt. You are so right about journalists seizing a headline & it is hard (if not medically trained) to really understand the true meaning of these articles. Thanks again for your reassurance & for taking the time to respond to me. Sonia xx
... View more
28-01-2019
10:16
Thank you so much Delly for your words of wisdom, I really appreciate you taking the time to respond to me. It is really helpful to hear people’s success stories as you can drive yourself mad with worry. I am going to keep your response & everytime I have a meltdown will read your words of wisdom. Big hugs to you & thanks again xx
... View more
18-01-2019
12:29
I was diagnosed in October 2016, stage 1, grade 2, mastectomy & tamoxifen. Oncotype 15 (low risk of recurrance, 10%) Most of the time I do really well, always at the gym, not too many side effects from the medication etc. Every so often I read an article that scares the living daylights out of me & I have a meltdown. The latest article is a research paper suggesting that if you developed BC within 10 years of given birth to your last child then you have an increased risk (up to 5 times) of metastasis!!! I am now going out of my mind (my daughter was 7.5 on diagnosed) that I fit into this category despite my low recurrance score. I am not medically trained & it may be hard to interprate these statistics as I know know everyone is different. Just really need to hear some success stories please. Thanks. S
... View more
04-11-2018
09:28
Hi SusieQue, I didn’t have radiotherapy but know people who have had a mastectomy with an immediate implant followed by radiotherapy & even chemotherapy. I would ask them what the risks are if you do have an immediate implant as I am sure they must be low. If the worst come to the worse and you have to go flat on one side for a while you can still use some sort of implant to put in your bra. Not sure where you live but there are specialist lingerie shops I believe Nicola Jane is one, who specialise in these things. You can get some really pretty bras and nobody would ever know. Best of luck to you. Sonia xx
... View more
03-07-2018
08:42
1 Hug
Has anyone had a hysterectomy due to problems with tamoxifen. I have been offered a hysterectomy due to endometrial thickening & ovarian cysts. There is nothing pathologically wrong at the moment but I keep getting multiple cysts & the endometrium is continuing to thicken. I am scared stiff, not so much the surgery but the effects of being thrown into menopause (ironically the possibility of thinning hair!). Does anyone have any positive stories about hysterectomies? I am 49 so no spring chicken & naturally I guess I may go through the menopause anyway. Thank you
... View more
02-06-2018
11:38
2 Hugs
Hi Samantha, Sorry that you find yourself here. I totally understand your wish not to tell anyone. I was diagnosed in October 2016, had mastectomy & now Tamoxifen. Very few people know about my diagnosis and I have no intention of telling anyone (apart from close family & friends). I simply don’t want the shock & sympathy from other people or to be defined as someone who has had cancer. Best of luck to you. S xxx
... View more
26-04-2018
02:20
Hi Badgers, That is good news that your tumour markers were low & probably a good thing that you are having your ovaries removed. One less thing to worry about! I am due to have another scan mid May. When I had my annual oncologist appointment, he organised a blood test to check my oestrogen levels, which came back high! Apparently my ovaries are compensating for the lack of oestrogen caused by the tamoxifen, hence the cysts! I was advised that it would settle down but it does worry me regarding the effectiveness of the tamoxifen & the excess oestrogen potentially causing other problems! It seems never ending. When is your op? S xx
... View more
19-03-2018
09:19
Hi Badgers, Your situation sounds very similar to mine. I had an MRI & tumour marker blood tests which thankfully all came back fine. It does appear to be a side effect of Tamoxifen unfortunately. I will get another scan in 6 weeks to see how things are & will see the oncologist in a couple of weeks to maybe discuss an alternative to Tamoxifen. I do wish you well also, let me know how you get in? Best wishes. Sonia x
... View more
09-03-2018
06:01
Hi Jasmin, I am having a very similar experience. Saw the gynaecologist last night with my ultrasound scan results. I was told by the radiographer that my many cysts were simple & to be re-scanned in a couple of months. The gynaecologist read the report & sent me for cancer marker blood tests & an MRI today. I will get the results at my consultation tomorrow morning. I am going out of my mind with worry, feel exhausted, can’t sleep etc, it is awful do I feel your pain. S xx
... View more
04-03-2018
10:07
Thank you Nicola & Clair, it is so annoying that Tamoxifen appears to have these side effects. I cannot believe I have 7 cysts & I have only been on it for a year! I don’t know what the gynaecologist will say. Such a shame as I don’t seem to have any other side effects on Tamoxifen. Best of luck to you both. S xx
... View more
02-03-2018
10:04
Does anyone have any experience of developing ovarian cysts whilst on Tamoxifen? I started taking tamoxifen in January 2017, zing August 2017 I had a pelvic scan which revealed thickening of the womb lining & a 4cm ovarian cyst. I had further investigations & it was all benign. Had another scan today & I have 5 cysts on one ovary, the biggest being 2cm & 2 smaller cysts on the other ovary. The sonography said they all look like simple fluid filled cysts so I guess I will be discussing this with a specialist. Seems the tamoxifen is to blame but was keen to hear from other ladies who may have had a similar experience? Thank you. Sonia
... View more
22-12-2017
02:35
If you do just have radiotherapy & hormone treatment & you have completed it before you travel (radiotherapy) then I don’t think it will effect your insurance. After my diagnosis, I expected my annual premium to increase but there was no change whatsoever. Best of luck. S x
... View more
22-12-2017
01:40
Hi Lye, Will your treatment finish before you planned holiday & are you just having radiotherapy? S x
... View more
14-10-2017
04:29
Thank you Ladybowler. I will get it checked out. Luckily managed to speak to my health insurance helpline who were very reassuring. Always seems to be something to worry about! Thanks again for sharing your experience. S xx
... View more
14-10-2017
01:09
Hi, has anyone experienced scar tissue (at least that is what I am hoping it is!) that feels like a hard lump near their surgery scar? I had 2 x lumpectomy then a mastectomy ( Nov last year) as they couldn't get clear margins. I had an immediate implant. Any advise would be greatly appreciated Thanks Sonia x
... View more
27-09-2017
10:31
Hi Murphy, I had a mastectomy (after 2 failed Lumpectomies). It honestly wasn't that bad, had immediate reconstruction & the result is good. I was back at work after 3 weeks & had very little pain. The worst part was the drain which stayed in for 2 weeks. I suggest a shoulder bag to put the drain bottle in which you can wear crossed over your shoulder when you leave hospital. M&S sports bras which do up at the front are really good. I was advised to get one size bigger. Best of luck & feel free to ask anymore questions. Sonia xx
... View more
27-08-2017
10:49
I have been on tamoxifen for 7 months & have noticed on 2 occasions after straining on the loo (sorry to be graphic!) the tiniest bit of vaginal spotting. I have had a scan which has confirmed endometrial thickened (DR said he wasn't surprised due to tamoxifen) and am waiting for an endometrial biopsy. Going out of my mind with worry. Has anyone had anything similar & was it okay? Thank you. S x
... View more
