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Sonia C
Member
since
12-11-2016
155
Posts
27
Hugs
28-06-2020
09:52
1 Hug
Thank you Jaybro, that really does help to put things not perspective & is a very helpful article sonia x
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28-06-2020
09:50
Thank you so much Evie for sending me this link, it has made me feel a lot better sonia x
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27-06-2020
02:36
1 Hug
Thank you so much for your response Lucy. I haven’t had counselling but will take your advise in calling the BC care nurses. we really do need to hear more success stories as I am sure there must be plenty of people out there who have been cancer free for years. i do hope you are doing well after your treatment? thanks again & all the best sonia
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26-06-2020
05:48
5 Hugs
I was diagnosed with stage 1 breast cancer October 2016, had mastectomy & now on tamoxifen. Oncotype test revealed low risk of recurance (10%) doing pretty well but every time I hear about a celebrity who’s breast cancer has returned I have a complete meltdown. The lasted being today, on hearing that Jacquie Beltrao’s had returned under 7 years after being first diagnosed. I understand her original diagnosis was caught early so it is really upsetting that it should return so soon. Please give me some success stories of long term survivors. Thank you
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28-01-2019
10:20
Thank you Evie, I did in fact speak to my oncologist who told me to take the article with a pinch of salt. You are so right about journalists seizing a headline & it is hard (if not medically trained) to really understand the true meaning of these articles. Thanks again for your reassurance & for taking the time to respond to me. Sonia xx
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28-01-2019
10:16
Thank you so much Delly for your words of wisdom, I really appreciate you taking the time to respond to me. It is really helpful to hear people’s success stories as you can drive yourself mad with worry. I am going to keep your response & everytime I have a meltdown will read your words of wisdom. Big hugs to you & thanks again xx
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18-01-2019
12:29
I was diagnosed in October 2016, stage 1, grade 2, mastectomy & tamoxifen. Oncotype 15 (low risk of recurrance, 10%) Most of the time I do really well, always at the gym, not too many side effects from the medication etc. Every so often I read an article that scares the living daylights out of me & I have a meltdown. The latest article is a research paper suggesting that if you developed BC within 10 years of given birth to your last child then you have an increased risk (up to 5 times) of metastasis!!! I am now going out of my mind (my daughter was 7.5 on diagnosed) that I fit into this category despite my low recurrance score. I am not medically trained & it may be hard to interprate these statistics as I know know everyone is different. Just really need to hear some success stories please. Thanks. S
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04-11-2018
09:28
Hi SusieQue, I didn’t have radiotherapy but know people who have had a mastectomy with an immediate implant followed by radiotherapy & even chemotherapy. I would ask them what the risks are if you do have an immediate implant as I am sure they must be low. If the worst come to the worse and you have to go flat on one side for a while you can still use some sort of implant to put in your bra. Not sure where you live but there are specialist lingerie shops I believe Nicola Jane is one, who specialise in these things. You can get some really pretty bras and nobody would ever know. Best of luck to you. Sonia xx
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03-07-2018
08:42
1 Hug
Has anyone had a hysterectomy due to problems with tamoxifen. I have been offered a hysterectomy due to endometrial thickening & ovarian cysts. There is nothing pathologically wrong at the moment but I keep getting multiple cysts & the endometrium is continuing to thicken. I am scared stiff, not so much the surgery but the effects of being thrown into menopause (ironically the possibility of thinning hair!). Does anyone have any positive stories about hysterectomies? I am 49 so no spring chicken & naturally I guess I may go through the menopause anyway. Thank you
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02-06-2018
11:38
2 Hugs
Hi Samantha, Sorry that you find yourself here. I totally understand your wish not to tell anyone. I was diagnosed in October 2016, had mastectomy & now Tamoxifen. Very few people know about my diagnosis and I have no intention of telling anyone (apart from close family & friends). I simply don’t want the shock & sympathy from other people or to be defined as someone who has had cancer. Best of luck to you. S xxx
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26-04-2018
02:20
Hi Badgers, That is good news that your tumour markers were low & probably a good thing that you are having your ovaries removed. One less thing to worry about! I am due to have another scan mid May. When I had my annual oncologist appointment, he organised a blood test to check my oestrogen levels, which came back high! Apparently my ovaries are compensating for the lack of oestrogen caused by the tamoxifen, hence the cysts! I was advised that it would settle down but it does worry me regarding the effectiveness of the tamoxifen & the excess oestrogen potentially causing other problems! It seems never ending. When is your op? S xx
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19-03-2018
09:19
Hi Badgers, Your situation sounds very similar to mine. I had an MRI & tumour marker blood tests which thankfully all came back fine. It does appear to be a side effect of Tamoxifen unfortunately. I will get another scan in 6 weeks to see how things are & will see the oncologist in a couple of weeks to maybe discuss an alternative to Tamoxifen. I do wish you well also, let me know how you get in? Best wishes. Sonia x
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09-03-2018
06:01
Hi Jasmin, I am having a very similar experience. Saw the gynaecologist last night with my ultrasound scan results. I was told by the radiographer that my many cysts were simple & to be re-scanned in a couple of months. The gynaecologist read the report & sent me for cancer marker blood tests & an MRI today. I will get the results at my consultation tomorrow morning. I am going out of my mind with worry, feel exhausted, can’t sleep etc, it is awful do I feel your pain. S xx
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04-03-2018
10:07
Thank you Nicola & Clair, it is so annoying that Tamoxifen appears to have these side effects. I cannot believe I have 7 cysts & I have only been on it for a year! I don’t know what the gynaecologist will say. Such a shame as I don’t seem to have any other side effects on Tamoxifen. Best of luck to you both. S xx
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02-03-2018
10:04
Does anyone have any experience of developing ovarian cysts whilst on Tamoxifen? I started taking tamoxifen in January 2017, zing August 2017 I had a pelvic scan which revealed thickening of the womb lining & a 4cm ovarian cyst. I had further investigations & it was all benign. Had another scan today & I have 5 cysts on one ovary, the biggest being 2cm & 2 smaller cysts on the other ovary. The sonography said they all look like simple fluid filled cysts so I guess I will be discussing this with a specialist. Seems the tamoxifen is to blame but was keen to hear from other ladies who may have had a similar experience? Thank you. Sonia
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22-12-2017
02:35
If you do just have radiotherapy & hormone treatment & you have completed it before you travel (radiotherapy) then I don’t think it will effect your insurance. After my diagnosis, I expected my annual premium to increase but there was no change whatsoever. Best of luck. S x
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22-12-2017
01:40
Hi Lye, Will your treatment finish before you planned holiday & are you just having radiotherapy? S x
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14-10-2017
04:29
Thank you Ladybowler. I will get it checked out. Luckily managed to speak to my health insurance helpline who were very reassuring. Always seems to be something to worry about! Thanks again for sharing your experience. S xx
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14-10-2017
01:09
Hi, has anyone experienced scar tissue (at least that is what I am hoping it is!) that feels like a hard lump near their surgery scar? I had 2 x lumpectomy then a mastectomy ( Nov last year) as they couldn't get clear margins. I had an immediate implant. Any advise would be greatly appreciated Thanks Sonia x
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