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mrsorangecat
Member
since
19-11-2016
122
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8
Hugs
27-04-2019
10:19
Sorry, my post ended really abruptly, computer glitch!! 😀 I'm really grateful for any responses. Big hugs to all of you xxx
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27-04-2019
10:17
Hello, iv been advised to stop Tamoxifen temporarily whilst waiting for a hysteroscopy, (i had an unexpected period last month after 2.5 years and thought i was post menopausal) so i was a bit worried, saw my GP and she arranged a 2 week wait gynae appointment. I had the appt and scan and the lining of my womb was 1mm which apparently shows that i am post menopausal. It also showed changes caused by Tamoxifen (spaces, i think she said) so they are doing hysteroscopy to have a good look and take a sample of womb tissue. I've been taking Tamoxifen since March 2017 and my advised i stop it until all investigations are completed, that was almost 3 weeks ago. Well i feel terrible. I have what feels like period pain all the time, but no bleeding, I'm anxious, irritable, exhausted, i feel like iv got terrible PMT again but all the time! Is this normal and how long does it last? I
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22-10-2018
09:17
Hi Diana, really sorry you're having lots of pain. I developed pain a few months after my mastectomy with sentinal lymph node removal (they took 3 nodes to check them) and then radiotherapy. I was prepared to try anything to get rid of the pain and i started by having 5 sessions of physio, which was so painful it brought tears to my eyes during every session. I then decided to try Bowen therapy, which did help and eased the pain for a few days but it came back quickly and was really dragging me down and making me feel very low and i wasn't sleeping, so i went to see my GP and she prescribed me Amitriptyline, wow! what a turning point, it really helped me. I take 20 mg nightly and i dont have any pain at all now and feel good. Maybe worth a discussion with your GP to see if it might help you? It rings a bell with me as the physio thought mine was frozen shoulder initially, but the exercises for that didn't do anything. Best wishes xx
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25-08-2017
07:29
Hi Rosie, really pleased for you and your low score. I agree, i almost drove myself crazy waiting for that result to know if id got to have chemo or not. I was terrified at the thought of chemo but a friend of mine had the chemo and her experience wasn't as bad as we both thought it was going to be, she had great support and meds to combat side effects. She's doing well now too. She's a strong lady xx
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25-08-2017
07:18
Ahhh, It's really early days for you Rachy, I had my mastectomy in December, rads in March. I think i started to feel more like my old self last month, July time, so 6 months after surgery maybe? I was still having some nerve pain after rads and that got me down a bit but Amitriptyline prescribed by GP has sorted that all out and i feel really quite good now. I hope i don't sound too pollyanna? Iv definitely had some dark days and cried for Britain but i can honestly say I'm all right now 😀 xxxx
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25-08-2017
04:01
Hi Rach, no i didn't to be honest, i just put my faith in my surgeon and after my mastectomy he said its all gone now, we'll do some rads as a belt and braces approach then go and enjoy your life.... I didn't question any further! Xxx
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25-08-2017
03:20
I think going back to work helped me loads, I've been back since Easter and I'm too busy to worry 😜 then I sleep like a log 😂 . You sound like a very positive person Jen. Plan some nice things to look forward to and treat yourself regularly 😁 iv got a fantastic collection of lipsticks and nail varnishes now ha! Little things to make yourself feel good.... Take care and if i can help with anything please let me know Hxxc
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25-08-2017
02:45
Thanks Jen, do u know there's some days where i don't even think about it now?! Never thought that would happen when i was first diagnosed. Just seems like a bad distant dream if that makes sense? I feel fitter than iv ever been now, back at gym 3 x weekly, walking every day in my lunch break and iv lost a good stone. There is life again after honestly xxx
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25-08-2017
01:27
Hi Rachy 😀 yes, i suppose it's in the back of my mind, but i just think as i had a mastectomy it's all gone now with good margins and i also had 15 rads for good measure. I paid for access to my medical records last week and they sent me a cd with my MRI on it. So, i sat eating my brekkie looking at it!!! Bit macabre i suppose. Very interesting though, more strandlike, than mass like. I think we could worry ourselves to death if we let it, I'm just getting on enjoying my life, taking the Tamoxifen daily, checking the other side monthly and counting my blessings 😀 . Take care hun xxx
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06-06-2017
11:11
Hi Carole, just spotted this and yes I have the same, it was really noticeable for a few weeks after mastectomy in December, especially with cold drinks, but it does get better or maybe you just get used to it, but I hardly notice it now 6 months later 😀
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23-04-2017
12:30
Hi Angie, no, mine weren't as they have to schedule in machinery maintenance some weeks. One week I did Mon-Thurs and started again on the Monday having 3 days off, they tagged an extra one on the end so I had my full 15 fractions.
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23-04-2017
11:50
Hi Onwards and upwards, I restrict dairy now and do miss a yoghurt but I have found the Koko strawberry yoghurt alternative and they are lovely, they are dairy and soya free and made with coconut milk. I use the Koko coconut milk on my porridge too - delicious with fresh raspberries, blueberries and a handful of mixed nuts on top 😀 xxx
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22-03-2017
11:32
Hope you're ok too Swampy, sorry I missed you out. Also, everyone else. I'm tired, forgive me - im having more sleep than the cat lately 😹 😀 😂 xx
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22-03-2017
11:29
Bless you Mary, I know exactly how you feel re the tiredness, im on no 11 today and this afternoon fell asleep for 3 hours! Fortunately I was at home and not on a train!! 😋 Rach, hope you are feeling a bit better today? Dawn, hope no redness or soreness for you? Xxx
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22-03-2017
11:24
Yay Truey, Congratulations!!! All over! Enjoy that champagne and i hope your shingles clears soon Hxx
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22-03-2017
01:47
Hi Pippa, i too have a left sided mastectomy, other side is a 40DD. I bought a cossy from Ameona, it was £40, chlorine resistant and supported me really well on both sides. I used an aqua Knitted knocker to fill left side out and they are fab, they dry really quickly too. I would go as far as to say i felt confident in my swimwear and didn't wear the sarong i bought as it was too hot in Tenerife. Hope you find something suitable so you can relax and enjoy your hols 😄 xx
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22-03-2017
08:12
Hi Melia, yes it is absolutely normal to feel terrified, I did. What time is your appointment? I hope you haven't got to wait all day, I remember mine was about 4pm so it was a long old day to get through. If it is a late one keep yourself busy, clean out drawers, do some light housework, or if you work, do something mundane, anything to stay active and to try and calm your mind. I know its hard to believe but you will feel better once a plan is in place. Not sure of what they've already told you regarding your diagnosis as im on my phone and its hard to look back, but if it is breast cancer everything moves so quickly after this meeting. Im so sorry you are having to go through this. I hope the news is better than you are probably imagining it to be. Sending you a big hug. Love H xxx
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22-03-2017
12:27
Hi Swampy, really glad you are feeling better 😅 . I agree, painkillers do help, Ibuprofen seem to work the best for me as they're antiinflammatory. That's great that you went into work and saw all your mates, cheers you up doesn't it? I miss the comaradarie, the laughs and the madness!! 😂 I'm definitely going back to work on 3rd April come hell or high water. I'l be on phased return too so half days for first few weeks. Your employer sounds as if they are looking after you as well which is always good news. Right, I'm off to beddybize, night all 😂 xx
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22-03-2017
12:17
Omg Truey, you poor thing if it's shingles, that's really painful isn't it? Glad it isn't due to the rads tho and you can get through the last two. Big hugs xxxx
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