Breast Cancer Now Forum

Happy bouncing - when I was first diagnosed with TNBC I read many things online about our type and the survivability of it. Do not dispare.  I Personally know 3 people that had this type and are 20+ year survivors. They made it using therapies from years ago. We have new and improved drugs now that will allow for an even better outcome. This is not a death sentence! We have many more years of living.  Keep those spirits up for you and your family.  (((Hugs)))) ... View more

Facebook groups: triple negative breast cancer foundation.   ... View more

Welcome Happy bouncing, this is a great forum to be on, and don't forget the triple negative FB page too. I find more people respond to you on that page.  I was diagnosed TNBC last November. Stage 2. I'm 48.  I've been through 4 rounds of AC following by 1 round of taxotere and carboplatin. The AC part wasn't too bad looking back. No sickness just imence tiredness for the most part. My last infusion with the taxotere didn't do well unfortunately. I was supposed to have 4 cycles of that every 3 weeks apart. They place you on a lot of steroids and I had issues with them. It was hard to eat or drink cuz I felt so bloated, but because I wasn't drinking my fluid like I should have been, I got dehydrated and constipated! constipation usually isn't too bad when you are "normal" but when on chemo I found everything was pronounced. Needless to say after a few days of Miralax and stool softener I was fine. Oh, and I drink like crazy now. I also had Hand and foot syndrome, basically like a very bad sunburn on your skin. It happens sometimes when the chemo leaks through weak capillaries. 14 days later and I'm peeling. I called my doctor and he switched my one drug to taxol instead of taxotere, and I'm going to do 9 more weekly treatments instead of 3 more heavy doses. Less steroids (they keep you up for days) and not as harsh on the body but still as effective.  Don't suffer needlessly and keep your doctor informed. They CAN tweak doses. I know you  must be extremely anxious. I know I was. The first few weeks were there worst for me in reguards to this new chemo experience. It's ok to feel the ups and downs. Scared. Anxious. Concerned. You do get used to it if there is such a thing. Just remember to not assume all of the side effects you will read about your drug will happen to you ( I did....big mistake) and drink those fluids! Flush the drugs put of your system and help your body out. I think the biggest issue for me, personally, was my thoughts. My brain went into overtime! I'm busy around the house doing little hints here and there and keeping in contact with friends.  It does the heart a world of good.  You have 2 young kids. You will need help from everybody. Don't try to do everything and farm it out. Usually the 3-4th day hits you hard. It takes a few days to get over it, and you will bounce back.  Im heading into my first new drug infusion tomorrow morning. A tad anxious but hoping for the best.  Wishing you all the best in this journey. We will survive and have stories to tell Years down the road. ☺️ ❤️   ... View more

Welcome Happy bouncing, this is a great forum to be on, and don't forget the triple negative FB page too. I find more people respond to you on that page.  I was diagnosed TNBC last November. Stage 2. I'm 48.  I've been through 4 rounds of AC following by 1 round of taxotere and carboplatin. The AC part wasn't too bad looking back. No sickness just imence tiredness for the most part. My last infusion with the taxotere didn't do well unfortunately. I was supposed to have 4 cycles of that every 3 weeks apart. They place you on a lot of steroids and I had issues with them. It was hard to eat or drink cuz I felt so bloated, but because I wasn't drinking my fluid like I should have been, I got dehydrated and constipated! constipation usually isn't too bad when you are "normal" but when on chemo I found everything was pronounced. Needless to say after a few days of Miralax and stool softener I was fine. Oh, and I drink like crazy now. I also had Hand and foot syndrome, basically like a very bad sunburn on your skin. It happens sometimes when the chemo leaks through weak capillaries. 14 days later and I'm peeling. I called my doctor and he switched my one drug to taxol instead of taxotere, and I'm going to do 9 more weekly treatments instead of 3 more heavy doses. Less steroids (they keep you up for days) and not as harsh on the body but still as effective.  Don't suffer needlessly and keep your doctor informed. They CAN tweak doses. I know you  must be extremely anxious. I know I was. The first few weeks were there worst for me in reguards to this new chemo experience. It's ok to feel the ups and downs. Scared. Anxious. Concerned. You do get used to it if there is such a thing. Just remember to not assume all of the side effects you will read about your drug will happen to you ( I did....big mistake) and drink those fluids! Flush the drugs put of your system and help your body out. I think the biggest issue for me, personally, was my thoughts. My brain went into overtime! I'm busy around the house doing little hints here and there and keeping in contact with friends.  It does the heart a world of good.  Im heading into my first new drug infusion tomorrow morning. A tad anxious but hoping for the best.  Wishing you all the best in this journey. We will survive and have stories to tell Years down the road. ☺️ ❤️   ... View more

I am in the middle of treatment. Just finished 4 rounds of AC and now I start 4 more rounds of Carboplatin and Taxodere this Friday. I'm hoping this will be easier side effect wise than the AC.   ... View more

I have found that once people know you have cancer, they just don't know how to be supportive. Some feel like they are in the way and won't contact you at all, while others can be overbearing. I've had both extremes.  My mom had breast cancer 10 years ago, however, hers was a different type. She understands what I'm going through up to the point of chemo. She had a lumpectomy and radiation. She even stated it's hard for her to balance her support.  Talk to your fiends and family. Let them know that support is part of the success in going through this.  Then tell them how you want support. Also tell them you will have your up and down days and not to take it hard when you just don't feel up to company.  Keep your chin up.  Good luck.  ... View more

What is 'quimi for reduction'? ... View more

Hi Linz, I was diagnosed Stage 2 in late November. They started me out on chemo right away. I just finished my 3rd treatment with 5 more to go. My genetics test came back negative for the BRCA gene thank god. I'm still not sure what my surgery options are yet, however, I only want to go through this bump in the road once in my life so if it means double mastectomy then so be it. So far the chemo has been a learning curve for my body but I am taking it one day at a time. What mixed emotions do you have? Sherri ... View more

I just received my first batch of CBD oil. I'm starting chemo in a week and a half. Hope it helps. ... View more