Breast Cancer Now Forum

Hi all,  an update.  good News, My wife got awarded yesterday the enhanced rate for living and mobility. The Gp signed the ds1500. It does seem that they take a different line to the Onc's. I believe some Onc's look at it in such a way that they can keep you going for a long time with their treatment (good news)  but the doctors take the stance that clinically nothing  can be certain as this disease is so unpredictable.   The Macmillan welfare advisor literally rubbed her hands together when I popped the Ds1500 over to her. I think they take pride in trying to access as much as they possibly can for those in need. This award will be massive for us when my wife's wages get halved shortly.      Garry ... View more

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Evening Ladies, hope you all had a lovely Christmas and new year. Just a small update. Now the festive season is over we went to our Gp and at first he refused to sign the Ds1500 as looking through the notes he didn't think my wife would pass away within the six months. He was very definate that it has to be 6 months or nothing. But after talking with him for a little while longer and generally asking if he could reassure me my wife would still be with me in 6 months time, to which he couldn't, he agreed to fill one in, although he did say I'm not going to tick that little box at the bottom which asks if in his opinion will the patient survive 6 months.  Seems like he's taking the hard line as well and we're gonna have to go the long route. Oh well I suppose it's  something to do to keep my minds off things.  On the plus side I've managed to get my wife to start browsing the bone mets pages.   Crusty (Garry) ... View more

Thank you very much ladies for the wonderfull kind words and advice. Every thing is all so much of a blur at the moment and thats why i take solace in reading from people that either have gone or are going through it. it really does help. Once the shennanigans of Christmas is over, we'll got to our Gp and request the he fills in a ds15000 form and see where that takes us. In the meantime id like to wish everyone a real merry merry christmas and i look forward to participating in the secondries thread with you all and hopefully my wife will too. ... View more

Good morning, newbie here so go easy on me , im on here on behalf of my wife who doesnt really get on with finding out too much information, whilst i have been on here lurking and reading since she first got diagnosed.  I have a question to ask regards this PIP. My wife was diagnosed with with breast cancer at the start of Nov, it was a mere 15mm tumour. Biopsy showed lymph node involvement in the armpit at least. so a mastectomy was booked in for the start of December to get rid of this evil thing. Meanwhile they sent her for other scans and tests which unfortunately came back showing scondries Mets to the spine and hip, with an added bonus of an unknown at the moment tumour the size of a tennis ball attached to the sacrum. they are refering her to kings for this to investigate. They started her on Chemo in earnest the first week of December.      After looking a lot at this site i kept coming across this PIP. so i phoned our local Macmillan welfare office who promised to look into it. she spoke to our BCN who refused to sign off a DS15000 form who stated that "shes not at that stage yet". so at the moment we are sort of at an impasse with what direction to turn. My wife is Stage 4 grade 3 and that sounds fairly serious to me. I know she is not currently about to keel over at anytime but the chemo is now starting to hit her, with fatigue, not wanting to do a great deal, lack of sleep and not really wanting to walk a great distance. Im aware its probably only going to get worse as obviuosly Chemo is accumulative.     I was wondering, should we be going to our GP to ask for a DS15000 form to be signed off? should we be bothering at all being as our BCN want really interested?  Dont want to sponge but at the same time i dont want to miss out on something we migght be entitled to, we've both worked and payed our taxes all our working life. Thanks in advance for any advice!   ... View more