Breast Cancer Now Forum

Sue sorry to hear that your results weren't what you were hoping. I know from experience that this does really rock your whole world. I went from it being a cyst to pre cancerous to grade 2/3 and that's when it all caved in. But .. I have had further surgery as margins weren't clear and I had nodal involvement so I had 6 cycles of chemo and 20 rounds if radiiotherapy and will take tamoxifen for 10 years. It is doable, it's tough at times but join the monthly chemo thread as there will be ladies like you going through the same. I finished chemo end of April and rads end of June. I'm now taking time to recover and get my head round things. Take each stage at a time, don't google and know that you will come out the other side. Take care. Xx ... View more

Wtp, I'll help with the fb page if you want to pm me. ... View more

Egg,I still have numbness in my fingertips and in my feet. Luckily I've only got one black toenail but interestingly my fingernails have horizontal ridges on them and funnily there are 6 ridges! I'm guessing this is the 6 chemo cycles. Anyone else got anything similar? Does the numbness go? ... View more

Hello Blue. Just wanted to say I've been thinking of you over the weekend. Sending you love and hoping you have an appointment soon to discuss the details of your path report.  Take care, we're here thinking of you. X ... View more

Blue, so sorry to hear this. Thinking of you. Xx ... View more

Blue. Thinking of you for tomorrow. Xx ... View more

Good luck for tomorrow wtp. Hope all goes well. X ... View more

Egg. My herceptin injections are going ok. I don't seem to have any side effects. I did have a runny nose at the beginning but this has stopped. I'm just plagued by aching joints - ankles feet and knees mainly which I'm hoping won't get worse now I've started the tamoxifen. Not sure if it might actually be connected with herceptin thinking about it, will check if this is a side effect. ... View more

Ah blue that's really poor having to wait another week! I had a large seroma after my surgery that sloshed around for quite a while after, my surgeon preferred to let it disperse on its i.e. which it did. Will be thinking of you on Friday. X ... View more

Congratulations and well done Ebim!!! I hope you have a lovely time in Spain! We went away for a few days after I finished and it was so very nice to get away from it all. X ... View more

Wtp, so sorry to hear this. That really is sh*t! I think I would be drowning my sorrows and having a damn good cry as well. We're all here for you.  Take care. Xx ... View more

Will be thinking of you this afternoon wtp. Xx ... View more

Hello woohoo.  This is the worst time waiting for results and every day feels so very long.  You will find everyone here very supportive and we all know that this time is the worst. Hope your results are positive.  Best advice is to avoid google and know that this forum will provide you with so much information regardless of the outcome.   take care.xx ... View more

Thanks suze re Nordic walking info..  I am lucky enough to be close enough to the penny Brohn centre to go there, just need to get myself a bit more organised.  I've done the residential Living Well course there and that was good.    Jackie, thank you for the group hug and for the new party food, it all looks lovely.  I'm sorry you are are having a rough ride with the radiotherapy, you will deserve the biggest certificate and biggest sangria when you finish!   Hair . ... mm,  a bit like a Brillo pad at the moment - I haven't quite got the confidence to go "bald". It looks like it's coming back grey/dark brown.  More concerning are my eyebrows, they look like a pair of 5 o'clock shadows!   Wtp thinking of you with your biopsy results. X   Work wise  my onc said he doesn't anticipate me going back before the autumn and I feel I need time still to process everything and get my head round things and assess if I want to go back to being a critical illness assessor and to be honest emotionally I'm still struggling.  So each day at a time there.   looking forward to the Facebook link.  We've been through a lot and it will be nice to keep supporting each other. Xx ... View more

Well done Egg!! Welcome to the party - There's a fresh batch of sausage rolls for you! I'd be up for a Facebook group and I'm pretty sure for those of us that aren't regular facebookers you could join and just sign up to the group. I picked up my prescription for tamoxifen today. I have to say my gp has been so very supportive through this. I don't see her very often but she really is great - always has the tissues at the ready! She has suggested that counseling may help with my fears and anxiety, so am going to investigate that. Xx ... View more

Suze you mention Nordic walking and penny brohn are you doing this as their national centre near Bristol? ... View more

Great news Scotty! Re critical illness policies - please all check if you have any and don't hesitate in putting in a claim. I'm a critical illness claims manager and the number of people who often say they'd forgotten they had the cover is quite high. If in doubt give your insurance company a call. ... View more

Hi everyone. Just catching up on the thread after a few days away in Wales enjoying the sunshine. Firstly, thank you Jackie for my rad grad certificate! You are a real trooper, especially with your long journeys each day - thank you it does mean so much to receive a certificate. X Blue I'm glad your op has gone well. As the others have said continue with your exercises, I think it's really important in a good recovery. I had a full clearance in November and I still have numbness in my armpit, arm and round the back of my armpit. At times I find this quite unpleasant and I don't know if I will ever get a full sensation back. I didn't have a drain but did have a seroma which "sloshed" around for a few weeks and then slowly dispersed. Moisturise daily to help your scar heal. Ebim - I had surgery in November and still have blue boob syndrome!! Don't worry it is only in your nipple. Scotty thinking of you for tomorrow. Xx Legs have been shaved 3 times since end of chemo - only wished my head hair would grow so quick! Physically things are starting to get better, mentally I'm struggling .. seem to be constantly worried about recurrence and an overwhelming concern that I won't be a granny, my children are 18 and 21. I m struggling emotionally to see how you can move on. Take care all. Xx ... View more

Hi. I am due to start on tamoxifen at the end of June, a couple of weeks after I finish rads which is tomorrow! Had a meeting with my onc yesterday, man of few words but ok .... he looked at my eyebrows and asked if they'd already grown back. I laughed and said no, I "paint" them on each morning! He very kindly said that he sees a lot of eyebrows being an onc and that mine were very good! Certainly lifted my spirits! 😜 I'm still having chemo side effects of aching muscles mainly and fatigue. The onc did say that if I was going to suffer from tiredness post rads it would kick in next week, if by 2 weeks after finishing I'm not suffering then I won't. It if I do it's likely to take about 6 weeks to improve - hoping very much that I'll be ok. Have a good day everyone. X ... View more