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Claire123
Member
since
05-01-2017
20
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3
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04-09-2018
11:38
Hi Everyone! I'm delighted to see so many people sharing their experiences. I too have started writing as a mode of therapy, but then I thought, sure why not share it - it might just help someone. https://rockuptocancer.weebly.com/ I've just finished a massive fundraiser and am about to return to work, so will be updating my blog soon with some thoughts on that. xx Claire
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25-06-2018
10:30
Well 1st thing - Grade 2 is better than my diagnosis and I was also Triple Negative, which is harder to treat than HER2. I was worried about the node involvement too, but then I spoke to a girl who had 7 nodes involved, and she’s still flying 10 years on, so all I would say is don’t panic! Set up a rota for someone to take you to each treatment - for me it was a great way to keep in contact with everyone and let them help - they’ll want to, but just need to know what you need. Tell ur kids schools etc- I found B’s school brilliant - she would struggle with her literacy and once her teacher found out what was happening she did all the work with her that we should have been doing with her at home. People will help, you just have to let them. When do you meet Oncologist? xx
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25-06-2018
09:28
Hi Kermie I’m glad my story helped you and so sorry you have to go through this too - it’s just CRAP! I found I was very tired even before treatment also - think it was mental exhaustion. The best advice I can give you is to tell your family and friends what you need and that’s practical help - school runs, someone to take them to parties or other things they need to go to, grocery shopping etc. Also, if you’re having chemo, have someone stay over with you for a night or two after each one - you may need a trip to the hospital, so you may need someone local who can come and mind the kids? It’s all very scary as it’s the unknown ahead, but once you start treatment, you just seem to get into it and your mind will settle a little. Can u ask, have u had surgery? And are you having chemo and/or radiotherapy? xx C
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23-06-2018
08:12
Firstly, read this http://rockuptocancer.weebly.com (I was on same chemo regime) Secondly I was EXACTLY the same as you re work (I nearly had myself DEMENTED trying to make the right decision) - and all I can say is thinking about it so early in my journey, wasn’t the right time - I’m 18 months on and look at it and feel completely differently now - I’ve realise (for me) I need to go back (reduced hours) and see how I feel - if it’s not working for me then I’ll be taking a career break or trying something new
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23-06-2018
08:02
Forgot to add my Facebook link 🙄 #chemobrain! https://www.facebook.com/Rock-Up-To-Cancer-Awareness-Support-Research-Cure-379078782603458/
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23-06-2018
08:01
Hi All I used this forum A LOT when I was diagnosed last year and it gave me real strength and hope to get through it. 18 months on and I’m doing MUCH better and have written about my experience- this is what I would have loved to have read in January last year - mainly as it’s honest and most importantly it shows that you CAN get through this and move on with your life. So if you fancy a read here you go - hope it helps someone else http://rockuptocancer.weebly.com If u want to follow my Facebook page for more updates and honest stories (a video of my hair, no hair, hair again journey will be uploaded soon and I’m working on some other stuff 😊 ) Claire xx
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15-04-2018
05:22
Just a wee update. Results back a couple of days ago and all clear, thankfully! 😊
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05-04-2018
08:21
Thanks Jill. All over and not too sore. Apparently report initially came back saying the calcifications looked benign, but with my history obviously it still needs to be checked. Won’t hear results for a couple of weeks. More waiting, but have a busy couple of weeks ahead, so that will distract me
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03-04-2018
08:13
Thanks for the responses - biopsy is tomorrow and I’m looking forward to it like a hole in the head 😳 Then it’s the wait of course for results.....
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22-03-2018
09:50
Hi there Been a while since I posted here - been a long year!! I was diagnosed with grade 3 tnbc in Jan 2017, and had lumpectomy to remove 2cm lump + area in same breast which biopsy came back clear on, but was removed as a precaution. I had 6 rounds of chemo and 15 sessions of radiotherapy. I had my mammogram a month ago and today someone phoned me to say there are a couple of calsifications in my other breast that they want to biopsy in 2 weeks time - my head has just gone into overdrive - can’t believe this is happening again! Has this happened to anyone else?
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14-01-2017
04:22
Hi Susan - thanks for that. Not that it's nice to know others are the same as me, but it makes u realise how many people are coping with this day in, day out. Having a bad day - think it's as my extended family have now been told, so that has me a bit emotional as a lot of them have been in touch.
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14-01-2017
09:23
Hi all, I finally had my biopsy results on Thursday and it was as I expected - Grade 3 lump, although the other part they biopsey'd was clear. Surgery scheduled for 25th to remove lump and a couple of lumph nodes (even though tests so far have have shown them to be clear). I will have chemo and radiotherapy after that, so still a lot of hurdles to go, but feeling a bit better now that I know what's what. Although my head I spinning that a week and a half ago i hadn't even had a doctor's appt!
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10-01-2017
10:01
Awh Alex, that's great news. It must be such a relief ️xx My appt has been postponed to Thursday as the lab results weren't back from the core biopsy - another couple of restless nights for me
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08-01-2017
01:17
1 Hug
lol Alex 'Chins', well maybe one and a half chins 😂 😂 Soon to be 1 with the new anxiety levels! I said to my OH the other day that this is the new Slimming World! U have to have humour I think - anything to get through. So sorry, that ur in the same position as me - looks like we're both in for a sleepless couple of nights til Tuesday and then hopefully as all the lovely ladies on here say we'll both feel a bit better. 'Chins' up Claire xx
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07-01-2017
11:21
Hi ladies, I think a helpful hints and tips thread would b great. Can I ask what er+ is? Is this something to do with oestrogen?
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07-01-2017
08:22
Hi Pam75, nice to hear from u. Good to hear from someone who is a little further along the road. How are you after ur radiotherapy? xx
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07-01-2017
08:20
Hi Zena75, thanks for asking, I'm doing ok. Pain not as bad now. Have my MRI in just over a week, but consultant wants to see me on Tuesday to get results of biopsies - have to admit when the bcn rang with that news it sent me into a panic again thinking the worst. I was planning on going back to work until the OP (mainly for the distraction) but have reconsidered as I don't think I could concentrate, plus I have a lengthy commute and with no sleep I don't think that's a good combination. My GP phoned me yesterday as she had just been informed what happened. After a long chat with her she has signed me off. Some of my family have come to visit this weekend which is really helping. It is DEF the waiting on results that is awful. We can wait together xx I'm 37 btw and am laughing at ur 'new pot habit' - it seems to be a recurring theme on here! I had a glass of wine last night and slept 6hrs straight 😊
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05-01-2017
08:24
Hi ladies, thanks so much for all your encouragement. Home again from the hospital and biopsies all done - no pain at the time, but I'm feeling it now 😒 Pinkloz83 thanks for the heads up on the egg freezing - I hadn't even considered that that was an option, but when I rang the fertility clinic today to pull out of the treatment (tough call to make), but they were brilliant and are setting up an emergency appointment with my fertility consultant to discuss egg harvesting. Turns out I'm REALLY lucky I hadn't started ivf drugs as they would have been bad news for the Cancer..... Anyway it has really helped to know that everyone is saying the same thing about the diagnosis and waiting on treatment that is the scariest part. Just waiting on my MRI appt and then meeting with my consultant to discuss treatment plan xx
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05-01-2017
09:35
2 Hugs
Hi I'm new to this, so not sure how it all works. I found a lump over Xmas and after 2 weeks of thinking it was just a cyst, I decided to get to checked as I was due to start ivf in a couple of weeks. I truly thought it was a cyst - I even went privately to an appointment on my own! Couldn't believe it when doc said it was cancer. My mind is reeling ever since. I'm going to have core biopsy today and MRI next week. Really very scared, mainly for my 5yr old little girl and my OH.
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