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Jacey
Member
since
09-01-2017
34
Posts
16
Hugs
16-09-2019
08:26
I had my WLE 2.5 years ago and had radiotherapy but no chemo. I tried all the different hormone treatments but suffered hot flushes and sweats majorly. I'm 61 now. I chose not to continue the treatment on the basis that quality of my life NOW is important to me, quantity is not something we can choose for ourselves. However I have other deciding factors as well - I have a brain tumour and I have had a heart attack which has left me with coronary disease. The whole thing is so individual, and so damned difficult to predict.
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16-09-2019
07:48
Are results always mailed to you? I had my 3rd mammogram 2 weeks ago, and haven't received the results, however my surgeon review appointment has been brought forward, from end of October to tomorrow.
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11-02-2019
07:08
5 Hugs
I posted on this thread ages ago about how awful these drugs made me feel. I stopped them and have refused them ever since. I have thought long and hard about the risks, but the safety net they offer is too low for me to agree to suffer the awful debilitating side affects I experienced. I have talked openly and assertively to my GP and my Oncologist and I'm living my life to the full NOW while fully understanding I have rejected the very small protection the drugs might possibly give. All of life is a risk. Every day we take 1000s risks. Tomorrow may not arrive for all sorts of reasons, so today I am living without disgusting hot sweats, without limbs and joints that almost render me immobile, without headaches, without mood swings, without skin problems or hair loss or weight gain beyond my control. I'm 60 and feel I've had a reasonably good life, so I'm taking my chances and enjoying life. Quality is essential to me. Ladies I wish you all well, and JACCIC I think we should start a section for rebels. Xx
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11-02-2019
06:31
Have any of you tried any of the alternative medications?
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27-07-2017
09:11
1 Hug
I took anastrazole for 3 months and life was hell. I made the decision to not take it and live a more comfortable life. I'm 58. Life NOW is important to me.
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14-06-2017
08:28
After it's over, when it's all died.down, (5 weeks after finishing rads) what deodorant / antiperspirant do you use? My old faithful one is stinging a bit.
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13-06-2017
06:50
I had never heard of this until sitting next to two Muslim ladies whilst I was waiting for my radiotherapy treatment one day. They had both had chemo and their nails had/were falling out! I was fortunate not to need chemo, I was borderline so insisted my tumour was sent to the US for their more comprehensive testing and it came back as not necessary - how you ladies suffer makes me weep. It seems to me that God has a strange attitude to the lives he created.
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01-06-2017
06:52
Meri I had monstrous hot flushes - and lots of them. I found it debilitating and generally horrible. I bought sage tablets from Healthspan (online) and my hot flushes have almost gone! It's worth a try. Jacey
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26-05-2017
07:54
Julie (and anyone else feeling dreadfully emotionally) I was like that too, and it's awful! I planted some strawberry plants into containers but miscounted so had one left, which I put into a tub on it's own. Then burst into tears because it was alone! I'm going nuts obviously! I had 20 rads sessions, 15/5, and have felt tired since (Only 7 days) so I've indulged in just sleeping when I needed to, but I live alone so don't need to think about anyone else. I think it did me good. Rads certainly knock you about: I was lucky to not need chemo, and my goodness me I bow to those of you who did! How strong you are, and I send you my very very best wishes. OldDawn I hope your return to work goes well, but I've been there before, twice, from other serious conditions, and I strongly urge you to be cautious. Be aware of how you feel: push yourself a little, yes, but certainly not much: consider YOU at all times and don't put the job before your wellbeing. I hope it goes well for you. Xx
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23-05-2017
07:16
Crikey Corrina 34 sounds a lot! I only had 2 - both clear fortunately. I sympathise with you. Can you ask them why they removed so many?
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20-05-2017
08:04
1 Hug
Oh poop! The skin on and around my nipple has broken and now I've got sores! GP has given me Flamazine and melanin pads so hopefully this will be resolved fairly quickly. What a palarva! Thanks for my bells though Helena 😊
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18-05-2017
06:46
1 Hug
Thank you Helena. My very best wishes to everyone on here, in any breast care unit, radiotherapy or chemo department. Surely one day a cure will be found. X
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17-05-2017
01:46
The choice of cream seems to vary a great deal from hospital to hospital, and it seems to be getting less defined. So I was wondering if anyone has looked to applying after-sun lotion immediately after their treatment session? Would it cool and soothe as it does for sunburn?
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16-05-2017
08:46
2 Hugs
A suggestion made to me to cool boob - a cold lettuce leaf! Fits perfectly and works a treat but probably best only done at home, not in M&S food hall, haha. X
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16-05-2017
08:41
Hello all. I'm in my booster week now, yesterday was the first of my 5 boosters. Inside my breast has been rather painful, a bit like it has been punched, but they say that's ok. My rads burn is sore but so far not too bad. I'm moisturizing with E45. I am self employed and not working just now but I sympathise with those of you who are, it can't be easy. I'm at UHBQE and they've been very good. My good wishes to all of you travelling this journey, or any other health issue. Try to keep positive, even though it's hard sometimes x.
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21-04-2017
07:45
Hi everybody, first session was fine, just as you all predicted, haha! I'm following all the advice you're giving re cream and fluids. I have to work over the coming bank holiday weekend - I'm self employed - but hope that's early enough in my treatment that I don't feel too tired, I can rest again afterwards.
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20-04-2017
08:34
1 Hug
Thanks all - yes I expect it will be fine (manicfingertapping) haha. Xxxx
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