Breast Cancer Now Forum

Hi Moijan,   Sorry to hear of your struggles. Taxal is something I’ll have to refuse. Docetaxel sent me crazy when I first had it 4 years ago. Surprised my mother didn’t chuck me out of the house. I’m thinking of you. I really am.    I haven’t been able to check on you because i’m back in hospital AGAIN with another infection!!! Can’t believe it. Fed up.    Sending you & everyone love & good vibes of strength & HOPE.     💝💝💝 xxx ... View more

Hi Moijan. Apologies, i’m having difficulty with my recovery. Low energy is still main issue. Plus the other meds I are taking are taking their toll. Finish my antibiotics tomorrow - wow, 30 days of hardcore. Can’t wait! Has RM appointment last week. My brain still fine but consultant wants wait another 5 weeks before treatment. Doesn’t want to do me more harm than good. That treatment adds to fatigue.   How are you, Moijan? How’re coping?   Thinking of you.   Hope all you ladies are ok.   Much love & hope... 💖💖💖xxx ... View more

Hi Maria, Glad wbr over for you & that you coped ok. Rest & stay well as you can. Thinking of you. Much love & hope everyone. 💖💖💖 xxxx   ... View more

Hi Moijan, I also didn’t realise you were on taxol. Guess I wasn’t paying attention. Shame you have to cope with a change & the side effects but seems you’re finding a way to cope. Rooting for you.   Thinking of you. 🦋🦋🦋🦋 💖💖💖 xxx ... View more

Hi Moijan, Thank you. Haha, I am a terrible patient but this last episode has taught me a massive lesson. Body’s controlling me right now but I intend to get a good amount of control back. I worked too hard over the last two years to get it. Ann, I didn’t get double vision but had blurry vision once I was back on chemo. However, a few days after my first craniotomy, I lost complete use of my right arm - left brain met, right arm. I also had approximately 15 seizures in one day. Grim times. The worry was I’d never get the use of it back. Months of physio & realising there was hope & quality of life, albeit I am dependent on mum & my sister & her family & of course life is fatigue ridden, my arm has improved. I‘m a jazz fanatic, listen to live jazz often & sing so it’s hard to hold a mic & balance but I try. Modern technology helps me with songwriting. I don’t have to type too much. Taken up photography - a very kind, excellent photographer has become a friend & helps me when he can. My arm will never be the same but I believe in hope. I see this latest brain tumour as a sidestep. Things can certainly improve. Keep hope that the double vision will subside & the pain will ease in time. Thinking of you. Hope all you lovely ladies are ok. 💖💖💖 xxxxx ... View more

Hi Ann,   So happy to hear from you. Please do not apologise for the delayed reply. You needed the time to cope with the vision & pain... even if you didn’t, take all the time you want. I didn’t want to bombard you until you were ready to make contact. Yes, January is almost over, haha! The UTI turned into a kidney infection & became a much bigger issue. However, it’s been dealt with by the urology team, operated on, infection released & is being blasted by powerful antibiotics. Just over two weeks later, I escaped hospital - been home over a week now - & am trying to build strength & recover. Medics confident cancer hasn’t spread so I’m more than pleased. Sorry to hear about the pain & double vision. It’ll take time to settle but I know it must be frustrating for now. Very encouraged that you’ve been referred for stereotactic. I had it two years ago & it proved a success. Have been referred again because this brain tumour was in a different location from the last one so they can do it again. Been 2 months since this latest craniotomy. RM consultant wants to see me in next couple of weeks but giving me time after kidney issue. Am keeping fingers crossed you’ll hear from them soon. In the meantime, I hope the vision improves & the pain eases. Take it easy. Thinking of you. How are all you ladies doing? Praying all’s well as can be. Sending you all peace, love & boundless HOPE! 💖💖💖 xxxxxxx ... View more

Hi Ann,   How are you doing? Any improvement on the headaches? Feeling any stronger? Don’t reply until you’re strong enough to or if you even feel like it. Take it easy. Thinking of you.    How is everybody doing?   💖💖💖 xxx ... View more

Hi Ann,   Congrats on getting through the surgery successfully. It’s extremely daunting not know what you’re going to wake up to. Don’t know if you’re home yet but let the neuro team know of ANYTHING that concerns you. Keeping everything crossed nothing does. 😊 Take whatever time you need to recover.    Apologies everybody, I’ve been missing though you’re never out of my thoughts.   Came into hospital last week to sort UTI. Horrendous pain that had me hollering & crying. Myriad different antibios didn’t work, pain increasing, can’t walk or talk properly, no energy. Eventually on Monday, urology dept did a CT scan... showed a blockage in my left kidney. They operated directly into the kidney that very night to unblock it. Oh so painful procedure but successful... kidney unblocked! Hooray! Antibios helping a bit more as infection now draining away. But they discover it’s a bigger infection than first thought so now need different way more powerful antibio which they give immediately!!! That & we’re still not sure the cancer hasn’t spread. 😓 Need to see gynae team next, then back to neuro or oncology team, not sure. Oh well... honestly don’t know what to say or do. Two years of no progression is a success story to me & I intend to continue being a success story for as long as possible! That's all I can do.   Cancer needs to learn that we lifers are made of stronger stuff. Apologies again but defiance & hope are the only tools I have.    Thinking of you Ann and all of you lovely ladies.   Peace, HOPE & Love... 💖💖💖💖💖 xxxxxxxx    ... View more

Hi Kimberly,   Nicky’s right, most of the posts are from November or December... just before Christmas. Hope you find them useful.    How are you ladies doing?    Apologies if i’m not on here for the next few days. This UTI is sending me potty! I’m in too much pain, I can hardly walk and the antibios are clearly not working!!! Have to go into hospital for tests, blood test, etc... hope it gets sorted. Feeling very down.    Hope you’re all well. Thinking of you all.    💖💖💖 xxx ... View more

Ann, so sorry to hear the op has been delayed again. I realise it’s more anxiety you can do without. However, I doubt they’ll put you in any danger. My neurosurgeon actually gave me the option to think about it but I chose not to. Feel free to vent away! That’s why we’re here. I think the neurosurgeon said the op would take a couple of hours (can’t remember exactly) but once they include them waking me up, sorting me out to get me to HDU (or it it ITU... whichever unit it is anyway... I never get it right), etc, it would be a good few hours before I got back to the ward. I was eating almost as soon as I got back to HDU. I was admitted to hospital on the Thursday, the op was the Friday morning, I was discharged the following Tuesday... five days in all. Thank goodness, always a relief to hear you have terrific support. Brilliant. It makes your life that much easier. 😊 How Beautiful. Marie Louise, hoping for encouraging results from your scan. Thinking of you. Moijan, seems your coping procedure is proving to be successful. Wishing everybody the best New Year’s possibly. Sending you all, peace, love, laughter & an abundance of HOPE. Roll on 2018! 💖💖💖 xxxxxxx ... View more

Hello Ladies,   Apologies for slow reply, having a difficult time with a UTI, grrrrrrr........! Hopefully, I can get some relief soon.   Will try to catch up with latest posts on threat and reply by later today.    Apologies again.    Thinking of you. Much love 💖💖💖 xxx ... View more

Hello Ann. Relieved you’re feeling better. Up and down days will come but again, that’s normal as you already know. I was discharged from hospital after four days. Took me a while to settle back at home. Learning to be patient. Realising I’m still need more rest than I’m giving myself.. the .  Do you have adequate support? Hope that’s not a silly question.   Moijan, I like your ‘step back’ process. Makes sense.  Best of luck getting things sorted, Ann. Thinking of you.  💖💖 xx ... View more

Hello Ann. Thank you so much for joining us. I know this is the last place you want to be but we’re here and I hope you’ll feel supported. A dx always brings back the anxiety - difficult to avoid it. Just had a craniotomy beginning of December and I’m struggling. Perfectly natural, you’re human and you’re also inspirational... go easy on yourself. Am encouraged by your neurosurgeon’s comments. Doubt it will take them long to have a treatment plan in the works.  Please keep us posted... if and whenever you wish.   Sending you peace and an abundance of HOPE! Merry Christmas to you too! Lissa 💖💖xxx   ... View more

Merry Christmas ladies. 💖💖xxx ... View more

Hi Moijan,   Result, thank goodness! 😃 You must be relieved it’s all arrive.    I’m taking it very easy so getting stronger. Thank you.    Love & hugs.    💖🎄💖🎄💖 xxx ... View more

Hi Moijan.    Please don’t worry or apologies for not coming on here. Don’t worry about one thing a day... you’ve a lot to deal with. Go easy on yourself please. The way you keep this thread is truly astounding.   It’s not the only case I’ve heard. Who needs this at this time of year. Amazon have to made a blunder. Christmas season is to fill you with joy. I hate to judge, because maybe they’re doing their ‘best’ (maybe not)... my friend was told it was because of the snow... still waiting!!! A similar thing happened to me just the other day with a simple toiletries online order from a reputable drug/cosmetic store. Had to go into the actual shop three get it sorted. My issue is no where near as important as your Christmas goodies making the rounds goodness-knows-where without any resolution. How upsetting & frustration! Doesn’t help that the situations we’re in makes everything harder to cope with. Guess they’re not aware just super wonderful we all are! 😍 I’m so sorry. Wish I knew of a way to fix this & make you feel better.    Please know I’m thinking of you always & seriously hope they fix it soon.    Wishing you & all of you Beautiful Ladies have the best Christmas possible. Sending you all, hugs, peace, love, laughter & the gift of HOPE!   Lissa 💖💖 xxxxxx ... View more

Hello bonariensis   I will rest, promise.   Fantastic, a jazz concert. I haven’t seen David Newton perform live but I’ve definitely heard of him. Excellent Just looked him up on YouTube & found his redemption of ‘Tea For Two’. Excellent pianist. What a treat. Glad to hear you enjoyed it. Thanks for telling me about him. 😃   Off to bed now.    Goodnight ladies. Wishing you all a sleep filled night.    Much love 💖💖 xxx ... View more

Lissa again. Yes, the reading is improving slowly.    Thank you for your very kind comments, Moijan. I get a bundle of inspiration & hope from you ladies. All the trials you’ve been through & you still manage to display an uplifting form of support & ‘living’. Right now, I only have the brain to deal with. Some of you have way more. Can’t be easy. Honestly don’t know how i’d cope.    Oh for that magic bullet! Will never stop HOPING!   💖💖 xxx ... View more

Oh dear Moijan, i’ve missed you. But i’m here now. Thanks for kicking into shape.    How are you lovely ladies doing?   I’ve been Back forth to the hospital. Had my clips taken out, weehee. Getting stronger by the day but still very weak. Have all these place to do things around the house - photography or write a song... haven’t done either 😕 - but realising I can do one thing a day, that’s usually make lunch, then I’m done. Managed to get out for a few walks, they’re slow but the fresh air is good. Doing my best to stay awake through the day so I can sleep at night. Worked twice. Still feeling optimistic. More stereotactic to come. Don’t know when yet. Still trying to get Mum to slow down.    How’s everybody coping with sleep? Do we have Christmas trees up yet? Ours going up this week. Are you all ready? Plans - family, travelling? I love Christmas.🎄😊 We’re not doing gifts. Don’t usually. Just my sister, her husband & their kids (haha kids, they’re 23 & 18) will come over.    Let me know how you all are.    Much love... 💖💖 xxx ... View more

Hi everyone...   Reading is hilarious. 😂   Here goes... I hear sleeping’s a prob. Hope you getting relief with that.    Moijan, glad treatment is working... fustrsss... (can’t spell). Yes, need that making bulletin. I have hope. PROMISE! Hope no more antiobio needed.    Thanks Carolyn, promise i’ve give it time.    Nicky, not sure about recovery. Still have clicks in hair. Been told it be few weeks at least before more stereotactic. Showing off now, hey. 😉   Hope everything else doing well. Babsy, Truffle.    Think i’ll try sleep now.    Love 💖💖xxx ... View more