Breast Cancer Now Forum

I love every one of the ladies at that table and will never be able to express how grateful I am for their support and friendship. They truly are a shining silver lining to a very **bleep**ty cloud. To anyone who's just starting out, I hope you find hope, strength and comfort in our story. It can be tough going but connecting with other ladies who just 'get it' can make even the hardest days so much easier to get through. Xx ... View more

No problem Emma, we'll get it all locked down. Are you using a phone or tablet or a laptop? ... View more

Emma and Jane, I'll happily help where I can to get you setup on facebook, just let me know if you're struggling with it x ... View more

You can just friend one person Stru and they can add you to the group x ... View more

Sorry you left feeling a bit lost Em. Get Katie on the case for you. I found it odd they weren't at our onc appointments to be honest. Cov is a flipping nightmare isn't it, hopefully you'll get an earlyish slot x ... View more

Oh Ali, that is unbelievable! I too would have gone with turfing him out (I disagree with your solicitor 😁). I hope you have a nice time with Dylan and enjoy the hotel. And hopefully the seller can get his act together and sort it x ... View more

Helena, that sounds like busy but productive day! Glad to hear you've got some time to relax this weekend x ... View more

It looks like Helena and Emily you both have privacy settings set that stop people sending you requests. You can change it under privacy settings, section titled 'who can send you friend requests'. I can't post a screenshot annoyingly as I'm on my phone but will try the tablet x ... View more

Jojo, Maria and Zena I hope you are all feeling better very soon. Sending loads of healing vibes and hugs your way. You are all amazing xx ... View more

Hey Susan, your positivity is shining through and it's making me feel brighter this afternoon. Will you be joining the monthly chemo thread and facebook group? Don't mind you asking at all 😊 It's because I have terrible veins basically. It takes a lot of faff and a numbers of goes usually to even get a blood sample, they will just collapse with all the blood tests and treatments for chemo. The PICC would go in at the top of the arm but the Hickman goes in the chest area and has to be fitted by surgical staff x Strudel, love that positive story, just what I needed today. I am indeed in the advertising world but the digital side, the way you spoke about your job just felt very familiar 😁 Ali, good luck with the house purchase! How exciting x ... View more

Love the socks, they're fab!! Need to catch up and post properly but wanted to wish everyone a good Friday xx My PICC didn't work so unfortunately I now have to go on the emergency list for a Hickman and if they can't get me in Tues my chemo will go back a week. I didn't handle it too well, still blaming the pmt, feel like such a massive wuss. ... View more

Just popping in quickly. Emily, a friend of mine just shared your post on facebook 😁 xx Sleep well everyone xx ... View more

Huge hugs to all you ladies feeling rotten today. I can only imagine at the moment what its like x  ... View more

Hello ladies!   Ali, your story made me howl with laughter, bless your friend! I have to say you really are just incredible how you deal with all this and working as well. You and Jo C are my inspiration for getting through this with a sense of humour and a strong determination to keep going. Thank you both for that and your support and honesty about how it really is. It looks like we will sync up then Ali, im on 6 rounds, 3 weekly so we will finish at the same time.    Susan, im so pleased you've now got everything planned in and you had a good meeting with the nurses. So you will be the day after Sarah and I. Are you having 6 rounds of the FEC but none of the T? I meant to ask the onc how they decide these things but of course completely forgot to! Great that work are being so supportive and bless your family, my fella has been saying he'll do the head shave too. Huge hugs to you x   Strudel, hope all went smoothly with rads today. How you feeling? I definitely think the coil did me a favour, i think it may have stimulated the growth of what was already there and alerted me to it, so lucky! It really is funny how these things go isnt it. I work in solihull so if you're up for a slightly longer journey id love to see that HR Director taken down a few pegs 😂 Is Brum where you're commuting to? Are you in the advertising agency world?    Emily, how are you feeling about Rads? Will you be over at Cov for that? Coffee sounds absolutely fab, maybe once ive got through my first chemo dose and i know roughly how many days im knocked out for, would love that x   Alex, OMG!! Thats so awful, how lucky you have a sense of humour. I bet she was mortified when she realised though!   Helena, i was totally premature asking about your first thursday yesterday, i'm a bit muddled on days at the moment. So, i hope today has gone well 😊   My assessment went well this morning, the nurses are so lovely. They think ive got a suitable vein for the PICC and thats going in tomorrow. As long as i dont look i should be ok! I was prescribed Emend straight away, she was impressed when i asked if thats what it was and I will have gcsf injections, i think weekly. I have asked for a DN to do the first couple but my guilt at using so many resources and costing them so much money will hopefully persuade me to do my own after that. Im trying to get hold of gp to get a sicknote, i cant be doing with these work idiots so im just going to get a full sign off hopefully. Haircut booked for monday before my heart check and ive ordered head coverings, water bottle, pill pot, dark nail varnish and nail strengthener as well as picking up a thermometer, loads of anti bac hand gel, soft toothbrush and mouthwash. Feels like im getting as prepared as i can.   Jane, do you finish rads this week? x Emma and Elizabeth hope you are both doing well today x ... View more

It's lovely Laura on the FB group - Pinkloz83 on here 🙂 Then Susan is the day after us and we have 2 ladies starting the day before us xx ... View more

I'm having a sucky day today, many tears. Stupid work never fail to make me feel let down and alone in all this. I'm being over dramatic but I'm just going with it today. I've taken myself home to work, just going to get a couple of things done before the end of the week and then they can kiss my ass.   Susan, hope the appointment goes well today, thinking of you and hoping you get your start date. I haven't met the nurses yet, i only had the onc in the room for results, but a lovely nurse called Sarah rang me yesterday with all my dates for assessments and such. I mentioned about the PICC and how bad my veins were and she said 'Ah, are you going to be one of those trouble makers' 😄   Helena, hoping your first thursday back at work is going well 🙂   Jane, so close to the end now! How are you feeling? I hope the blistering is settling down.   Alex, Emma and Elizabeth I hope you are all taking it nice and easy today (however hard that can be to do!) and you are all feeling ok. Hope the meeting with the onc goes well this afternoon Elizabeth and it doesn't leave you too exhausted x   Ali, good luck with the bid! Sorry if you've already mentioned but how is it going working around the chemo? I wanted to try and do a few days a month, just to keep some money coming in really but I'm not getting any help from HR in terms of how to manage it. How many days are you finding you're able to do if you don't mind me asking? x   Strudel, what a pain that must have been this morning! Glad you're all done now and hope the headache is less for you today, enjoy the snooze 🙂 The coil thing, eurgh, well, I had been completely off all hormone contraceptives for a few years because the cerazette sent me absolutely crazy. But, I wanted to do something about the monthly misery so agreed to try a coil. I HATED it from the instant I had it fitted and for the next few weeks I felt terrible, i was constantly nauseous and after about 3 weeks I ended up in hospital on a drip with gastro. During the 3 weeks of sickness I also noticed how tender my boobs had become, I guess from the new influx of hormones and this lead me to having a really good feel of lefty (which was the more sore) and there was this horrible big lump. I still wonder if I hadn't had the coil and therefore this tender feeling, how long would it have been before I noticed the lump, it's scary. I also wonder whether the coil had caused the tumour to grow and that's why I felt it.   Mid week love and hugs to you all x ... View more

Thank you so much for the encouragement Jo. The hospice day sounds lovely. I can't imagine what this must be like when you have little ones to look after, I am in awe of all of you, I really am.   Sarah hun! Hellloooooo! I'm Alex Birket over on the FB Group. We also have another chemo buddy starting on the same day as us 🙂      ... View more

Oh my lord that is such a relief that the Docetaxel is the T. I never want to google anything and just kept wondering why mine was weird 😂 x ... View more

Emily that's brilliant 😂😂 I couldn't wait to get my coil removed. It's weirdly where this weird journey began for me. The coil's exit is much less stressful than the introduction I found 😂 ... View more

Sarah, I'm swinging wildly between brave face on and just keep going and oh **** this is about to get very very real! Had all my assessment and PIC and start dates confirmed today x Susan I hope it goes well tomorrow and that you will be starting with us x Helena it sounds like you're doing fab! I hope your first Thursday back at work goes well x Strudel, how did it go today? I've been getting odd stabby pain every so often x Jo C, Scotty and Ali, thank you so much for your support and encouragement. I hope you are all feeling well today x Elizabeth, how are you feeling? I hope you've been able to make yourself rest up x ... View more