Breast Cancer Now Forum

Well done Jeanette.. Letrozole rules! Ladybird has Denosumab every three months (injection at the house). We are assured her leg pain is down to trapped nerves. Keep stable! X ... View more

Morning ladies. We saw the onc yesterday and he confirmed the good results we were informed of last week. I asked him about different brands of Letrozole and he was very dismissive of any change. He said her leg and joint pain was due to her crumbling spine. He even pointed to her swollen finger joints (which she has never complained about!). No sign of dry scalp though Janette ....luckily. Anyway we await the Denosumab injection from the nurse on Tuesday. Perhaps she might suggest something for the leg pain. Keep smiling! Chris x ... View more

Wow! Thanks ladies for your speedy replies. We see the onc at Christie this week so we'll see if he can help suggest alternatives. Although if the drugs are working I guess it would be foolish to try others. Ladybird's not a happy bunny at the moment. She has depression, problems after cataract surgery, hearing loss, pains in her legs, swollen feet and has eaten all her Easter eggs! Keep smiling. Chris xx ... View more

Hi ladies Ladybird's having severe pain in her legs. She's had pain for years due to trapped nerves but recently it's been bad. Could the Letrozole or Denosumab affect her? Is this one of the side effects? Just wondering Chris x ... View more

Ladybird's been on Letroxole/Denosumab for just over 2 years. She still has her spots but so far they're not growing or spreading. 😄 ... View more

Just had letter from The Christie saying bone situation is stable and there's no sign of any new problems. Good old Letroxole and Denosumab still working well! Happy days! Good luck all. Xx ... View more

Hi ladies FF Thanks for the tip re contrast. Ladybird's just being a baby! She only drank half a litre and pulled a face all the way through it. Poor thing's had a cataract done yesterday and she's feeling quite miserable. Time for a pub lunch methinks! X ... View more

Hi ladies Ladybird checking in! Reading this thread is so very informative, we've learnt so much more on here than from other sources. My wife Ladybird goes for her ct scan this week at Christie to see if the Letrazole is still working. She's not looking forward to the flavoured drink beforehand! What's your favourite flavour? Her main problem is leg pain but she has suffered with sciatica for years so the cause is blurred. Interesting that Letrozole causes tiredness as we both suffer from this and thought it was our age (72)! Thanks again for the opportunity to chat. Chris ... View more

Morning Ladies Thus should cheer you up... Our doctor visited us at home this week which was a first for him. He's a very jokey type of person and we have a few laughs when we see him. As he walked through the kitchen he was turning back to me and making small talk when he completely missed the carpeted step into the lounge. He went flying in a crumpled heap on the lounge carpet. He then started to laugh almost hysterically and when we realized he was ok we all laughed like never before. We were all in tears! They say laughter is the best medicine, it certainly was that day. He asked me not to tell anyone:-) Keep smiling Xx ... View more

Hi everyone Had a surprise visit from a MacMillan nurse this week. She was suggested by our denosumab jabber! My wife has some incontinence problems and the nurse felt we should have an urgent ct scan. We explained that a scan had been ordered by our onc but she felt it should be speeded up and contacted our gp. In the end it was decided to wait for the scan as the problem wasn't new. We were very impressed with the MacMillan nurse and glad she had made contact. Good to have help like this. Xx ... View more

Hi Ladies Chris checking back in for Ladybird. Visit to Christies Salford yesterday went quite smoothly. Onc asked if any pain and reckoned her leg pain was due to sciatica. Blood sample taken and ct scan booked....what more can you ask! Whisked her away for a nice pub lunch in Cheshire. Good to hear the good news from others. Thanks for the comfort. Xx ... View more

Hi Ladies Thanks for the great welcome..I am quite overwhelmed by your attention! It is so comforting to talk to people in the same predicament. I feel much better already and have relayed your kind words to my wife. I suspect she is bemused about me chatting to ladies online!! She is very stoic about her condition and if asked about it she says her main concern is the pain in her legs and lower back caused by sciatica. She wishes she could walk better without pain. I think I'm more worried about her cancer than she is! Recent good news is that her very swollen feet have gone back down to their normal size. Anyway "it's good to talk" as someone once said and a worry shared is a worry halved. Thanks again everyone, I'm just off to get me some Crocs! X ... View more

Hi Carolyn and JulieD thanks for the welcome. We were surprised but secretly glad that we were not put on chemo or radiotherapy two years ago. Almost wondered if it was because of my wife being 70. Anyway I think she would have declined as she is also being treated for depression and wouldn't cope. She had surgery and Christies put her on Letrazole and Denosumab. The bone lesions are stable so far so we count our blessings! Whilst our onc is very nice he says very little to us on our three monthly visits. I suppose there's nothing to say as there seems to be no deteriation. We were told originally that she would have about three years so it's nice to hear of people living much longer with similar treatment. Thanks again for your great forum. Chris. ... View more

Reading the posts on here has been very informative..my wife doesn't do forums but I can share the information with her. Hope this is ok. ... View more

Hello everyone! My wife was diagnosed with bone bc about two years ago. ... View more