Breast Cancer Now Forum

Hi , just had 2nd paci , no nausea thank god , first 2 days good but very achy and stiff now .got a u/s next week first since dx in jan ..nice to see your getting to see your onc often .saw new oncs registar on wed first one ive seen in 6 weeks though the one 6 weeks ago was bloody pointless , i was last appointment before she went on maternity leave , no notes nothing .peeved was an understatement. Was hoping new one was better but not got to see him yet ..2 more paci left feels so never ending and had a few depressing what ifs with this chemo lately xx ... View more

Hi wtp , loving how postive it all sounds .i start fortnightly paxi on Wednesday ×4 then surgey .so hoping i dont get nausea as had it all through ec .bit concerned regarding bone pain ss i already suffer with the filgristrim .cant even walk tonight and loaded with hotwater bottles .gping to find out if i can use my tens machine .maria ... View more

Thank you delly xx ... View more

Hi vicki , just been reading through your blog , despite it being scary to read its good and open, all i heard when i was diagnosed in jan was how people seemed to breeze through chemo and still worked .The reality for some of us is very much different , think i was hoping i would be one of those who would breeze through it lol no such luck .my chemo was meant to be finished mid may lets say its looking more latter half of june due to infections and delay .It seems to wipe me out and the filgristrim injections feel like a head on with a bus . Ive been advised against work even if i could do it , which sucks can make life a little isolating . Best wishes for the rest of your treatment x ... View more

Hi wtp , great news on the shrinkadge .i saw my onc last week was very disgruntled by my appointment , was originally told i would get half way scan, now told it wont be happening , she has gone on maternity leave and im being moved to a different onc though going by her tape measure lump has gone from 8x 12 to 8x 6 .only just had 3rd ec due to 4 week delay so one more ec then 2 wkly paci .dreading it if ec been anything to go by .my redness seems to come and go so think it may be more to do with whats occuring in boob .though all the different terms do confuse me .Best to ask your onc regarding ibc which is diff to invasive bc i get mixed up with all the abbreviations .hopefully if there is surgery options open to you they will discuss the best ones for you and let you make a choice .due to my lymph involvement think i personally will opt for mx and reconstruction. Strange as it seems it is something ive discussed with my 12 year old , bless him .his veiws on how he feels are so important to me xx good luck with next paci ... View more

Thank you kess , done nothing but worry these past few , every little ache and pain has me paniked .struggling to get my head round chemo starting again xx ... View more

Hi wtp, mine sounds exactly the same as yours plus lymphs , no mention of ibc though.chemo not going well should of been on my 4th ec yesturday but only had two .infection on first one then abcess on second just had 2 teeth out .so hoping chemo will restart week after next .xx ... View more

Hi lilneez , the whole waiting is the worst time , once you get some kind of plan and idea of whats going to happen fears do get easier .I was so worried about my 12 yr old son when i got my diagnose , but he has very much dealt with things so far .i have a very large tumour with lymphs involved and due my 3rd chemo next week , its not been easy but it is doable . Good luck with all your other scans maria xx ... View more

Hi kess , most tnbc is grade 3 down to cell activity , i dont know what my stage is but at a guess due to lymph involvement its likely to be 3b/c xx ... View more

Hi sue , sorry to hear of your reoccurrence i do hope it's the last time you have to deal with this again , im stuggling getting through the chemo right now and hate every minute of it , but i got to do it for the sake of my son , scares me the thought it could all be in vain though .good luck and sending my wishes xx ... View more

Hi dk , i found about 5 days after my first chemo my breast pain eased .My lymph underarm was quite swollen and think thats why i was getting so much pain .The swelling has eased as has the pain .thank you for asking maria xx ... View more

Zena , just quick one regarding boob pain mine ached for week and half after chemo all around boob .so maybe its a normal occurance hun xx ... View more

Also wtp did they regrade you ? Having reread your first post im suprised by your grade 1 diagnose. Your lump is pretty much same size as mine with lymph involvement and im grade 3 but maybe thats cause its triple negative , its all confusing. Also was your boob pink before mammogram as even though i had bruise like colouration and dimples over lump prior to diagnose , the pinkness only come up after biopsy and mammo .onc asked if it had been there prior to that and when i said it hadn't she didn't seem overly concerned x ... View more

Hi wtp , im also having ec chemo every 2 weeks pre op due to size of tumour and lymph involvement, was meant to have 2nd one yesturday , but infection has put it back a week.Its funny they tell you once its hopefully all treated and gone .My onc and surgeon have told me no different its just my feelings regarding the symptoms lol or maybe i google too much .have you noticed any difference after your chemos ? I have found colouring has eased and feel like my under arm is not so lumpy xx ... View more

Not ever tried it jac , but then again im hopeless at keeping still 😀 x ... View more

Same here jac , lump was very big so aim is too shrink and avoid full on masectomy plus i have to have lymphs underarm removed.If im honest despite how much the thought of surgery scares me , if i had to have a full mastectomy to keep me here then i would..as for chemo once you have your first one your get gist of what will happen and if meds they give you dont work , they will try you on new ones next time .my biggest fear is the infection side of things not knowing if id know if it was serious and get it sorted in time xx ... View more