Hi Linda Lynne and Kathy, It’s good to hear from others in the same position as me. I am trying to find out if there is anyone who specialises in LBC in the uk. I was given a name of Christopher Ring at the Marsden but haven’t contacted him yet. It’s been hectic as we are just off on our holidays. It’s good to hear you got a good amount of time out of palbococlib it could be an option for me, Kathy. I have been on Paclitaxel and Eribulin and now Capecitabine for 9 months. I got over a year out of the other 2 though. My main aim is to keep as fit and healthy as I can to stop the damage from the chemo and keep my immune system strong. I too notice a fluid build up before the scans pick it up. In fact I delayed the last scan because I knew there was no fluid and it was all stable thank goodness. I spoke to an alternative cancer specialist yesterday and he suggested lots of things I could be doing with diet , supplements, hyperbaric, infra red etc. Does anyone have experience of these treatments ? Hope you are all keeping well Janie xx
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