Unfortunately Lou, you are not alone. I suspect you have had numerous viewings of your post with people agreeing with you. I’m four years down the line and still having disturbed nights. Some are better than others, and at the moment I’m managing 7 hours, which is good for me. I’ve tried lots of interventions which have helped me along at different times, including massage, acupressure. I do a warm bath and lavender oil to help me relax. I only read paperbacks one hour before sleep. I never let myself become over tired as that is the absolute pits! My legs jump about all night. During this lockdown I have found it extremely difficult to get into anything resembling a good sleep pattern, so have turned to my true and tested journaling. I write my anxieties down....which mostly consist of wondering how tomorrow will be, can I manage, what will I be able to do, how fatigued will I be, when will I ever see my family.......you get the picture! This has worked very well, so far. I’ve also recently had help from the Marie Curie SafeFit trial which is about getting healthier. Better nutrition , I think, is helping me sleep longer. By giving me activities to do I now have a routine of exercises to help my lymphodaema and an achievable walk. I think being more in control is the key here, and the realisation that if I can’t do what I want, then that’s ok too. I’m using a Fitbit but relaxation app in bed just before I go to sleep, too. Her voice makes me doze off! Don’t know what she’s saying....don’t care! I’ve rambled on a bit here, Lou, in my effort to help, as without good sleep you can’t function, can you? I think try one or two and move on if they don’t work. Spring and being outside will be good for us all. Best wishes. Ann x
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