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angela60
Member
since
23-01-2017
50
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6
Hugs
13-08-2017
11:31
1 Hug
Well that's it nothing more they can do cancer in my spine,been in hispital a week.paralysed from waist down. Home hopefully withcmillan care. Got maxim 3 months.oh god So scared.
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02-08-2017
12:06
Hello Sonia, I too am an unhappy couch potato. I was diagnosed in sept 2015 with breast cancer had lump removed then chemo for it to return in same place 6 months later had that lump removed then had radiotherapy then told it had spread to my chest wall.so since Jan this year I am on palliative chemo which is tough as I can't do what I used to do no in fact I can't do anything as I'm so breathless. You worry what the next ct scan is going to find I get my results of last scan next week.it is hard trying to stay positive especially when feeling so low,I know I have quite few bad days.,it is hard when you've always been fit and active.hugs Angela xx
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31-07-2017
12:39
Hi everyone thanks for comments on what to eat etc when you've no appetite. I'm not eating much, no appetite at all ( can't afford to lose any more Weight) just got appetite back last time to lose it again.rough weekend stomach ache and diarrhoea after taking 2nd dose of vinorelbine. Very breathless. Gp prescribed naproxen for pain in chest, back and right shoulder blade ( alternates between each) helped a lot though still get some pain especially in my back at night.seeing oncologist next week for results of ct scan, bit worried about that. Weekend for me wasn't too good but got some lively flowers as it was our ruby wedding anniversary. Hugs to all xxx
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22-07-2017
11:57
1 Hug
Hi everyone thank you for your comments, got some strong anti inflammatory painkillers for the awful pain that was either in my chest, back or shoulder blade. Start chemo tablets today just as I started to pick up after not eating much etc.food wise I couldn't eat much mainly cos of no taste and not much appetite except for rice pudding things like that. Have lost bit of weight but don't want to lose anymore.but when you only want sweet things no bread no potatoes nothing savoury it's hard to know what to have. Anyway got to get through next 2 weeks then see oncologist and might be taken off cape we shall see. Hugs to everyone xx
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22-07-2017
11:46
Hi everyone on subject of fatigue,last few weeks I've done absolutely nothing!! No its not being lazy at all its how chemo makes you feel 😞 😞 .I was constantly being told to eat more, go out for walk every day when I was feeling like s@#t.you will feel better if you do something they said. NO I Won't!! Until I finish my course of Cape and vinorelbine, then I will start to pick up,to go through it all again next time.but as I am now breathless and my cancer of lymph nodes in chest wall has got worse I might be off cape. Have good weekend everyone xx
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20-07-2017
07:55
1 Hug
Hi everyone.been at all time low this week after frightening experience of breathlessness no interest in anything not even going out as just getting dressed takes my breath xray said clear 3 weeks ago but yesterday at my hospital.app my ct scan showed a spot on.my lung which they never mentioned before and after a xray yesterday showed the bc which spread to my chest wall that has got worse, been unable to sleep at night sometimes for this pain in my chest which was sometimes in the middle of my back or in my right shoulder blade last night so low I just wanted it to end 😞 see oncologist assistant tomorrow as he is away so have to continue cape and vinorelbine as only he cqn change my chemo as obviously it's not working. So another 3 weeks of feeling so low, breathless will ask for pain killers. Last night at 3am I just sat in my living room crying my eyes out. Knowing the tablets will again take my taste my appetite, stomach more upset just as I started to eat again. This is worst I've felt chemo. Hard to stay positive xx
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09-07-2017
10:18
Hi everyone, I'm still bit breathless heart not racing so much.on Thursday I was taking 16 tabkets in 12 hours.friday had stomach ache and diarrhoea feeling low.no appetite can't taste food. By the way I'm 60.goung out for meal for mums 80 birthday but won't be able to eat much maybe a pudding! Looking forward to next week my week free of tablets.dont feel like doing anything good job I have Wimbledon to watch.have good weekend everyone enjoy the nice weather too xx
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05-07-2017
08:23
As I've been quite breathless for a while went to get xray today but it came back clear.doctor at oncology clinic does not know why I'm breathless has prescribed dexamethizone and busoprolol (more tablets to take).so fed up today.si tomorrow I take my regular dose of Cape, vinorelbine plus these new ones.my appetite is not good either.bit worried about taking all these tablets,and any effect they might have. 😞 😞
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01-07-2017
10:42
I'm having similar problems with heart racing Sandra.what with stomach ache abd diarrhoea again this weekend feeling rough all since I started on vinorelbine. I get out of breathe and my heart goes mad for a while. Bit fed up at moment but onc wants me to have 2 more cycles then ct scan.to see if it's working. Don't feel like it is as I'm worse. Good job hubby is off this weekend to do shopping and hoover up as I haven't energy.have good weekend everyone xx
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29-06-2017
10:53
Hi lollymum and everyone else going through tough times.i spent 5 hours at hospital yesterday awful day non stop rain,waiting to see oncologist was an hours delay will see mac nurse in 3 weeks as he's on holiday or something then 3 weeks later will see him and have ct scan to see if vinorelbine is working.after seeing oncologist then wait for pharmacist for prescription fir cape and vinorelbine then take that to chemist in main building then go for blood test I was shattered all that walking!! Once has reduced my dose of vinorelbine slightly as I list bit of weight from loss of appetite. Start 8'th cycle of Cape and 2nd of vinorelbine. Vin caused bad stomach last time so wait and see..trapped wind also a problem put in omeprazole, it's a wonder I don't rattle well actually I think I do the noises my stomach makes.hugs everyone xx
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24-06-2017
08:40
Hi everyone haven't posted lately, feeling really tired started first 2doses of vinorelbine last week. Day 1 take capecitabine as usual fir 2 weeks, day 1 and day 8 I take vinorelbine capsules the first went ok no problem then my taste was affected not eating much took 2nd vinorelbine and bad stomach and diarrhoea that night. Spent all day Friday in bed feeling awful.a week later still no appetite no energy worst I've felt in ages. Also can't sleep had awful trapped wind still awake 2 in the morning. See oncologist Wednesday and start cycle again not looking forward to it had no problems at all on cape but now with the other added I think what next, anyway hope everyone having lovely weekend xx
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11-06-2017
04:08
Hi funnyface I've been on cape since January 2 weeks on 1 week off added vinorelbine this week day 1 a nd day 8 I take 2 tablets after a blood test first.im having lot of indigestion at night. Had craving for lemonade and thought it might be that so stopped having it but last night I had sleepless night. Tiredness is a problem and loss of taste. But not too bad at moment
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08-06-2017
03:00
Hi Sandra59.thank you for those positive comments.i too take vinorelbine on day 1 and day 8 of Cape cycle with blood test the day before each one.try ti be prepared for the 'D'. Get confused with all the different threads I thought I was on the main cape one when I sent my message!! All you can think about is timing the tablets every day now the new ones arranging the next blood test and the next appointment with consultant which is every 3 weeks. How do you keep positive how do you not let it get to you as I struggle sometimes especially on days I'm.not feeling too good hugs to everyone xx
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07-06-2017
12:23
Hi everyone, I'm starting my 7 th cycle if capecitabine tomorrow been fairly ok on this no side effects only tiredness.had my hair coloured, no problem. But as I've had some markers got better but some have got worse I'm starting vinorelbine tomorrow just 2 tablets, 1 a week after blood test first.wirryung I will lose my hair again with this.as well as the other side effects. 😞 blood tests are a pain. My breast cancer was diagnosed in 2015, palliative chemo now.have days when I get so low wondering what next. Hate this disease so much
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07-06-2017
12:14
1 Hug
I'm on my 7 th cycle of capecitabine tomorrow not been to bad at all ni side effects to speak of just tired. But as my ct scan showed some markers have got better some worse so tomorrow I start vinorelbine. 2 gel like capsules one tomorrow after I ring hospital up to make sure blood ok then 2 nd one on day 8 after yet another blood test.wirrying about side effects with this, will I lose my hair again. Blood test every week is a pain sometimes when I'm feeling low I wonder is it worth it the physical and mental effects it has on you.the not knowing what's to come. Hate this sometimes 😞 😞
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13-05-2017
02:17
I'm on cape my 7th cycle next week will be starting vinorelbine as well.regardind sugary drinks, I too crave sugary drinks first thing in the morning (namely lucozade pink lemonade) have it every day nothing else will do got to be that, queer!! But think I better try cut down cos don't need diabetes on top of everything else.
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25-04-2017
11:50
Hi everyone hope you all enjoyed the warm weather at the weekend I did it was lovely but back to winter now.at hospital tomorrow to see consultant for my next lot of Cape I found I have indigestion at night if I eat anything in the evening, also my hair has started to thin a bit so might have to go back to wearing my wig for a while.consultant will be starting me on vinorelbine as well as cape so bit worried as to how they will react together. My cough and my breathlessness has got slightly worse hence the vinorelbine so worried and bit scared of what's to come..
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10-04-2017
02:51
Hi I'm my 5 th cycle of Cape my last scan showed some improvement and some worsening on my breast cancer that's spread to my chest wall therfore my oncologist is going to put me on vinorelbine next time I see him in 2 weeks.felt ok.on cape but am worried about side effects when I start this other chemo drug along with cape. Anyone else on same tablets xx
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05-04-2017
02:16
Looks like I will be going on vinorelbine next time I see oncologist.tedults of scan showed improvement in one area but not in chest wall that's why I'm breathless and wheezing at times. Anyone else on cape and vinorelbine. Coping well on cape only feeling tired but worried more tablets more side effects. Hugs to everyone xx
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05-04-2017
02:09
Hi everyone had scan results today, some reduction in one area but worsened in chest wall that's why I'm out of breath at times and wheezing.taking my usual cape dose this next 2 weeks then looking to put me on vinorelbine as well as cape.anyone else on this. Not doing too bad on cape only tiredness but more tablets more possible side effects, hugs everyone xx
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