Breast Cancer Now Forum

Hi girls! Same as Jellytot - haven’t been for a while and this week has been particularly hard emotionally. So much so I’ve gone to the gp who has sent me for counselling (Macmillan doesn’t have one where I am 😔 ) and said to check with my onc next week about antidepressants as I am soooo low... such a ride this year!!! Big hug JT xxx ❤️ ❤️ ❤️ ... View more

Hi girls! Thanks so much for the info! My spine looks like Swiss cheese according to my lovely husband 😉 Don’t know whether the denosumab and exemestane (now added everolimus) are doing their job until next ct in December... have oopherectomy tomorrow and although feel calm, anxious at the same time! 😔 ... View more

Hi Averila! hope you are feeling well after the op.   i've got mets on my spine and pelvis and in the summer my onc sent me for some radiotherapy.  I honestly didnt think I needed it and as it's something that you can't have indefinite, didn't want to 'burn my bridges'.  Anyway, had 5 sessions and has to be said have been great.  Felt a bit uncomfortable during the treatment but once i did the sessions it has improved a lot and made me realise that I was in more pain than I thought.   you have to do what feels right for you so don't let anyone make a decision for you   xxxx ... View more

Hi girls Sorry about the radio silence for a while. Things seemed to have calmed down although had visitors and that was crazy. Anyway, got a date for the oopherectomy 23/10 and whilst they said it'd be a day op I've asked to stay the night, and they've agreed. I also saw the onc last week and they've added everolimus to the exemestane. Hopefully it'll stop the growth - ct scan in November. How is everyone doing? ❤️ ❤️ ... View more

Hi! I had radio for spine and hip and it hsa helped pain.  What they said was that it could be felt either straight away or take a bit of time.  For me it made me realise that I got used to living with the pain 😞 - And remember everyone is different so do what feels right for you xxx ... View more

Hello girls - sorry I've been 'away' - after my lasr post had my sister and niece coming to stay for a fortnight, then eldest daughter came down with pneumonia and then school started! Back to work (dont work in school may I add!) and then husband's best friend came from Canada for a few days which was great to see him but also for my lovely husband to talk to osomeone else that knows us and can understand a bit of what's going on. anyway, today had radiotherapy appointment which was good because as the treatment seems ti have worked, they are not going to keep calling me but when it becomes too painful to let them know and I can have an aopt at short notice 😊 Plus with everything else that is going on doesnt want to add to my schedule! 😂 Tomorrow I have the gynae for the oopherectomy so we'll see what they say. Next week is the oncologist and not sure what we'll talk about but guess it might be a review although we havent done a new ct since august...   i'll keep you posted.   hope everyone is ok and ready for winter... heating has been back on and thick duvet too! Xxxx ... View more

Hi girls - just checking in too.   there must be somehthing in the air as I've been in the gutters too... well, still feel pretty overwhelmed too.  I know I should check back to see what I've told you or not but in between coming home and taking girls swimming so short of time.  Anyway, the latest is that the mets are now in the liver too... although not on the brain I do have mets on my skull which we didn't know ... now waiting for the onc coming back but think he will say chemo... 😔 got to go but will tell you more later xxxxx ... View more

Hi girls! i'm home!!!! 😁 😁 😁 😁   still didnt figure out why had been sick but the promise of chocolate cupcakes to the jr doc that was on my ward might have helped send me home 😂  Anyway, it was all clear and although they eanted to do some sort of scopy down my throat, I'm glad they didnt as I'm fed up of being proded.    So now to enjoy my sister's visit for 2 weeks (although I do have lots of appts) 🤔   Big hugs and thank you for understanding xxxxxxx ... View more

Hi girls! So ct of head was clear! 😃 😃 😃 However I am now lying in the bed of our local hospital as was still being sick! They admitted me yesterday, had another CT for thorax and it was same which means the stomach is vlear and this could be some irritation of stomach. So now on my 3 drip of fluids 😫 And praying they'll let me go in the morning (ine can just hope, right??) xxxxx ... View more

Carolyn 😂 😂 😂 😂 😂   i haven't tried it so don't know but  thought it might help some one 😉   Off to head CT as haven't stopped being sick for over a week now... hope the blighters haven't taken up residence in my lone two cells!! 😰 😰 ... View more

Thank you guys!!! ❤️ ❤️ ❤️ My husband came with me - the worse part was coming out of radiotherapy and seeing him soooo upset.  He told me then and said that my onc was coming to talk to us more.  I think the worse part was seeing him soooo upset... 😢   CHILLOW! Thats the name of the ice pack and apparently it was in Wilko (UK).  I'll have a look on amazon and see if I find anything whilst my family is running around the house playing nerf wars!!! 😁   Big hugs xxxx ... View more

Hi girls! Sorry I haven't been much in. Tried catching up with some posts before I wrote this but my memory's gone! Guess it being 6:30 and having beenup at 3 doesn't help! anyway, it's been another rollercoaster week 😞 . First came the appointment for radiotherapist through over last weekend. Had to travel 1:30hs for the appointment, then find out the clinic was running 1h behind and then told to wait for CT to measure up... ende up coming home 6hs later!!! Then the day I was starting radiotherapy they were running behind, hadn't received my paperwork AND had to take an antisicknwss tablet which meant waiting another 30' !!! Thankfully both days the girsl were having fun with grandparents and cousin otherwise it would have been a nightmare! On top of that I 've been sick for a week (before the radiotherapy) and now have constant feeling in my legs that they are going to cramp. Painful! 😧 To top ot up got a call form the onc saying that he wanted to see me... (always dread the last minute appointmnets!) Saw him friday after radiotherapy to tell me that the blitters have taken residence in my liver, haven't been accepted on the trial yet (they want me to have the next ct and the removal of ovaries that JT had) and to do an emergency ct scan of hte brain due to the vomiting.... aaaaaarrrrgggghhhhh - sorry for the massive rant, I know you understand! (And dont get me going on the waiting times!!!)   JT someon said about having an ice oack unde rthe pillow to be able to hold in the night for the night sweats and that it helped... 🤔 hope everyone has had a nice weekend big higs xxxx ... View more

Hi Pippin!! Good luck tomorrow. ❤️ (Watching how brave you were in Lord of the Rings 😉 )   I had an appointmnet through for the radiotherapy tomorrow so will have to figure out whether it'll be a long drive or whther they are going to keep me in 😞   There is a good article on facebook by a lady whi had cancer at 35 (cancer with a smile I think it's her blog) about friends and what to do which I thought was very good.   Anyways... hope everyone had a lovely pj day today 🌧 🌧 🌧   JEllytot how are you feeling?  ... View more

Yayyy well done FF!!!   JT good luck with sides effects and stuff, hope you settle in well ❤️   Xxx ... View more

Hello ladies! Some kind of good news!! Today I had a call from my onc who said that after speaking with other 3 MDT's they have decided that I am on the right path BUT the best news was that they reviewed the scans and the cancer hasnt progressed as fsast as they had originally thought 😁 😁 😁 . So still on exemestane and zoladex, will have radiotherapy on spine and a chat with spine surgeon anyway... also he mentioned about having the ovaries removed by surgery so will probably need more info abuot that too!! anyway, good night 😴 😴 😴 😴 😴 ❤️ ❤️ ❤️ ❤️ ... View more

Thanks Carolyn! Now on exemastane.  Had an emergency mri as question on stability on my spine; going to speak with spine surgeon as they decided it was not urgent, having radiotherapy and trying to get into palbociclib trial... and been signed off from work for 4 weeks so 'enjoying' the summer holidays 😅 🌧 🌧 xxxx ... View more

Oh Jellytot! Don't know how much I understand... I got told last week that my treatment hand't worked and tumors are bigger and spread more... big hugs xxxxxx ... View more

Oh Jellytot!! I hear your pain!!!! They can do it on the hand too. Make sure you drink at least 1pint water beforehand and keep the armhand warm.  Also, tell them and thye use a blue needle or butterfly which are smaller.  I know that for CT they can't though... i've got liver mei next week and panicking abiut the canula but they've said to see the girls in onc for them to do it.  Might help?   big hugs xxxxx ... View more

Hi Jellytot!! Glad you are home!!! There's nothing like one's own bed/home.  Make sure you rest plenty. Have you started with palbociclib? Let me know how you get on as my onc will try to get me into the trial. Xxxxx ... View more