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Movetothecountr
Member
since
05-03-2017
23
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2
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17-02-2018
08:19
Hi I had this treatment, I found it very tolerable, I had carboplatin alongside I did need those booster jabs at one point but didn’t have any delays in treatment Fingers crossed it has a good go at it for you X
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16-02-2018
04:59
2 Hugs
I’ve just consented to the plasma match trial and had bloods sent for testing, looking around for other trials as my TNBC has turned chemo resistant, so a medical breakthrough is required
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04-12-2017
07:23
Hi I’m not sure where you are based but you ask to have a referral to the Royal Marsden for a second opinion. What chemo is you Aunt having? I started on one and was switched to another combo after 3 cycles as my tumours stopped responding. I hope this is helpful x
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12-08-2017
10:07
I would suggest speaking to the oncologist and asking for a referral to a trial, they will know if any recruiting. There are criteria for joining trials, based on many things and each trial is different from another It will involve travel to the unit running the trial
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02-08-2017
08:21
Hi Tricia I got some good dressings from the hospital and on repeat from the gp, they were waterproof. I was also worried about the odour but after extensive quizzing of work colleague was convinced it was only me that could really smell it, I think due to a) knowing what it smelt like and b) it literally being under my nose! Hope the healing continues, I'm now free of dressings Jacquie
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25-07-2017
07:30
Am i standing looking a gift horse in the mouth? I'm having to choose between a trial Olaparib with AZD6738 or treatment with Eribulin It's the wait to join the trial that again leaves me in limbo, one you can start nearly straight away the other you must wait .... Oh what to do and why can't we ask a Dr "what would you do if it were you?"
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12-07-2017
04:11
Hi All Can i check has anyone been taking any supplements whilst on Eribulin to help keep their white cells up, I'm loathe to have to do that whole daily injection again? Many thanks in advance Jacquie x
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05-07-2017
07:52
Hi It has been suggested that I will switch to Eribulin, I popped along to the medical unit that do the IV and got them to check my veins, they said it's a 10 min treatment, give them a call and ask if mum can cold cap, it means a longer appt but if it's important to her and the same hospital where she cold capped before then there is a chance There is an eribulin chain on here you might want to ask on there Good luck to Mum
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20-05-2017
08:02
I think you're right, counselling should be out there in the clinics and maybe if it were the next stop after seeing the onc, if not in there with the onc
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20-05-2017
08:13
Hi everyone I was wondering how the trials were going and how everyone is getting on? Whilst Capecitabine is working at the moment for me, at some point I will be needing a trial and being tnbc brca negative the options are limited to say the least. I keep thinking about the German clinic and wondering if I should look into going On the plus side, after three cycles of cape, I've now managed to be dressing free for a week now Take care all and have a great weekend Jx
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15-04-2017
03:52
Happy Easter to you all, I hope everyone is enjoying some of the Easter fun and limited sunshine Can I ask, does anyone else suffer from itching during the night?
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07-04-2017
03:12
Has anyone ever had their vitamin or NK cell levels checked during blood tests? I think I need to stop trawling the internet as now I'm indecisive about what diet option to follow .......
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31-03-2017
01:12
I'm still not sure if my returned TNBC is a recurrence or a secondary, and does that make any difference when it's now in the skin/chest wall? I was feeling okayish about it all until I returned home yesterday to read the copy of the letter from the onc appt 3 weeks ago, which I really don't think I was told all that the letter says I was told, some of it may have been alluded to but I don't think it was actually said, I'll ask my husband to read it later as he came with me to the appointment For now I take comfort that after a cycle of capecitabine it feels no worse, if anything it feels a bit better I'd like to think that I could change my outcome by boosting my immune system but think the oncologists are chemical people and not at all holisitc, my little girl is only 4, I just want her to have a mummy for a lot longer
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20-03-2017
06:35
Stresshead Thank you and I hope tomorrow goes well for you Jacquie
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20-03-2017
07:28
Hi Icedtea Yep, similar here, nearly the entire mastectomy base scar on the right, I was given some dressings at clinic but they don't stay stuck without leaking for long I would be interested to hear what dressings your nurse is using in case the are better in this awkward spot Thanks in advance Jacquie
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19-03-2017
09:57
Good morning all Can anyone provide any wound care tips or advice please? Many thanks Jacquie
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15-03-2017
02:29
Babsy - do you take the vitamin C as well as the Mico Sol? Never thought a birthday wish list would get so medical! Many thanks Jacquie
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14-03-2017
02:48
A Dr talks about it being advisable to favour organic soy to avoid genetically modified plant sources, there is a note that is awaiting confirmation that soy might not get along with Taxol, it also says isoflavone if taken in pill form has been associated with an aggravation of certain BCs but not in the case of soy taken as food
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14-03-2017
02:05
I was reading something about Soya the other day, I'll find it and let you know (it was a real paper book so might take me a while) as you can see 'focused' on work today!
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13-03-2017
01:08
I'm quite annoyed by its reappearance as it only gone and parked itself right back on the bad boob and all along the scar at the base! I didn't cut any treatment corners, in fact I had everything. All appeared fine in January after second surgery for the left symmetry op and then it quite dramatically went downhill in February Just want it to dry up I have started drinking green tea (shutting stable door after the horse has bolted) and will increase all foods that might help, out of interest has anyone tried adjusting their diet?
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