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welshlady66
Member
since
23-03-2017
62
Posts
15
Hugs
23-03-2019
02:35
Hi I had breast cancer in 2017 and since then have put weight on although I'm eating the same food I have just started a new diet and so far lost 10 lb it's hard work but I'm getting there I am due soon for my 2 year mammogram I usually comfort eat due to stress a d anxiety but have managed to stick to the diet eating a lot of veggies first 10 days low carbs night protein then stage 2 will start introducing other items of food in I think it is just finding what works for you x
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04-08-2018
03:21
Hi dizzybee I have been having problems with my right eye a blurred spot in the centre of my vision my optician has also revered me to eye clinic as she thinks there is fluid by the macular which can press and distort the vision she thinks also it could've to do with the tamoxifen .
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04-08-2018
03:13
1 Hug
Thank you both got an appointment with the doctor and she has refered me to post menopause bleeding clinic have to wait two weeks though , She gave me tablets to stop the flow but they didn't work am now getting severe cramp and backache now and can't go out in fear of gushing loosing a lot if I sit down for any length of time when I stand it just gushes out and the pain is like being in labour I am also 52 and been on tamoxifen for a year sorry to be so graffic .
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25-07-2018
07:05
Hi was just wondering if anyone has had problems with their periods since being on Tamoxifen, I started them last July and have been on them a year I have the hot flushes and night sweats and have had pain in my feet since taking them , every months around my due date I would just get slight pink spotting but nothing else but the last two weeks I havent been able to go out due to my period being very heavy really bloated and low back and pelvis pain and been having pain in my sides trying to get an appointment with my doctors but they are short staffed getting really fed up and worried now as nearly passed out earlier on I got a bit breathless and my heart was pounding, just really wanted to know if anyone else has experienced the same.
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29-12-2017
12:02
Hi Avyi I was the same as you had terrible problems wearing a bra post op and then after my radiation treatment could not tolerate anything near my skin, I had two bouts of cellulitis which took months to get rid of and now I have fibrosis of the breast tissue and lymphodema of the breast as well, the best bras I bought were the cheapest from george they are post op bras you have to order online, but they came very quickly and I think were around £15 they fasten at the front and you think they are going to be tight but once on they are so comfortable and they have pads for the inside which is good as my right breast is bigger than my left with the swelling, they are very strechy and soft I would recommend them to anyone
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28-12-2017
11:37
Hi ladybowler he didnt say anything about me going to lymphodema clinic only to go to the walk in physio clinic to see if there are any other exercises I can do, I am getting conflicting advice as doctor told me not to do too much repetative movements with that arm as it can make it worse and the surgeon told me to up my arm exercises to five times a day and they are repetative movements I am goin g to have to ring my breast nurse and ask her if I should have been refered to the lymphodema clinic as the pain is getting worse in my arm the more I do the surgeon told me to take more pain medication, I cant take codein based as have bowel problems and im on strong painkillers for the fibromyalgia and the doctor gave me tramadol on top of the ones im already on but I have no quality of life as they make me high and unsteady on my feet so have come off them
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12-12-2017
10:54
Hi ladybowler I seen my surgeon and I have fibrosis of the breast and lymphadema of the breastit shrunk after radiation but has swollen bigger than the other side and is very painfull he also said its also swollen around the ribs and arm is slightly swollen so got to keep an eye on it, there doesnt seem to be an end to problems, I sometimes wish I had opted for mastectomy cant keep a bra on for long due to it being too painfull all surgeon has said is to take more painkillers
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01-12-2017
10:44
1 Hug
I too have been having terrible burning pain and sometimes very sharp sudden pain, im 5 mnths post rads, I found a lump a couple of weeks back had a scan and had a letter back saying the lump is nothing to worry about but they will keep an eye on it, but now My skin has gone thick and raised and is sore cant wear a bra other than a post op one and thats only for a couple of hours at a time and im still so tired all the time I have kept doing the exercises although painful, I have had an appointment to see surgeon next week wasnt supposed to be seeing him till january so will see what he has to say about it all x
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01-12-2017
10:26
I am five months post rads, about 8 weeks ago found lump under my breast near the crease I was sent for an ultrasound which showed up a vry swollen vein and a little lump the surgeon had a look at the ultrasound and said they would keep an eye on me but not to worry too much about the lump easier said than done im due to see him on 12th dec but since I have found this lump my tissue has gone thick and raised under the breast and near my arm pit skin feels funny and the pores are large I cant lie and that side of my body as it hurts and the severe shooting burning pains im having are quite bad also my arm feels really heavy shoulder is really sore has anyone had the same thing after radiation
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19-10-2017
08:07
Thank you bondgirl will do it as soon as I get home from my holiday travelling back home today its ruined my break as been in pain
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18-10-2017
06:38
thank you ladybowler but im away at the moment typical I book a holiday away and then this happens, painkillers are not even lessning the pain will have to get hold of my breast nurse when I get home
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18-10-2017
06:16
I woke up this morning and first thing I felt was that my right breast and right arm felt heavy then I went to do my arm exercises and the pain is horendous it feels as though I got a thick elastic bank around my arm and the lower arm just above the wrist is swollen I cant even touch my arm the pain is so bad and the arm is so sensitive I wonder if anyone else has this problem
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17-09-2017
06:05
Thank you riversidedawn had the ultrasound she could feel the lump on the ultrasound it is showing a swollen vein and looks like the pain is coming from there she can also see some calcifications, due to how nasty the first lump was she wants to keep a close eye on things and have to go back in six weeks so she can do another ultrasound and compare it with this one to see if things are settlling down or not
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05-09-2017
04:31
Hi all since being on tamoxifen my fibro has got worse and I am also having terrible pain in my fingers wrists elbows hips knees and ankles and also the bones in my feet, I am also constantly hot all the time I am also having terrible flushes
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05-09-2017
04:19
Hi I have had fibro for years mine started after I had rhumatic fever years ago, since having radiation and starting the tamoxifen my pain has got much worse I am constantly with no energy if I have a shower then I need help and then go back to bed to rest as it takes it out of me I have been feeling constantly sick since having radiotherapy dont know if its the tamoxifen or the radiation thats made it worse
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05-09-2017
04:02
1 Hug
Thank you for your replies talked to my breast nurse she got me an appointment for clinic saw a lovely lady doctor who said she could feel the lump and said it might be breast tissue after the radiation but could not be sure so she has booked me for ultrasound scan for thursday to see if they can pick anything up on there and she wasnt amused at the dr and said I was doing everything right and to carry on checking the way I do it the breast nurse is going to ring my surgery and make sure this dr is doing it right or he could be missing things so just wait for my scan now
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24-08-2017
12:45
Hi I was the same had a lot of peelig skin and flakes around the nipple keep moisturizing and eventually it will all come off and the new skin will appear, I am 7 weeks post rads and have healed well although nipple is very dark in colour and under the breast is different colours and my breast looks slightly smaller than the other one I hope you heal soon
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24-08-2017
12:39
I am 7 weeks post rads 8 on monday my breast has healed nicely but had a pain under my breast so I checked where the pain was comming from and I felt a lump its in the tissue under the breast checked my other breast and nothing in that one in that place , this morning tried to get hold of breast nurse but no luck so rang gp and was told to go down,Dr checked where I said the lump was and he said there is nothing there and that I was checking myself wrong he said I should be using the palm of my hand this is how he checked me so he would not feel the lump doing it this way I said I use my first three fingers together flat using the pads of my fingers in circular motions gentle first then slightly more pressure and so on, he said using that way I would feel lumps as when your older your breasts become lumpy I apologized for wasting his time and came home, he also told me not to worry as I have had treatment and am on tamoxifen so he doubted I would get the cancer back I am so confused now and anxious he made me feel silly, I am going to try and get hold of the breast nurse tomorrow has anyone had similar experience with finding a lump post radiation treatment
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15-08-2017
05:09
Thank you Arl I have seen the chillow in Asda but problem is I have to wear a CPAP at night as I have sleep apnea due to a smaller than normal windpipe so when I have the flushes and night sweats its a pain as I sweat so much my mask keeps slipping lol, I changed brands the first ones cant remember the brand name my periods stopped and had joint pain and the flushes on this one still got the flushes having a constant period although not heavy and these make me feel a bit sick for the first three hours then wears off the joint pain im getting is the same, my chemist is brilliant and she didnt mind me trying another brand and said there are differences as many women have changed brands thanks for your reply x
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14-08-2017
12:04
This is going off subject a bit I have side affects hot flushes night sweats sore lady bits, cramp aching joints, havent had a period since I was diagnosed in january now out of the blue have had a period not really heavy but for 13 days I have no energy as it is im on tamoxifen is anyone else like this on tamoxifen
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