Breast Cancer Now Forum

Thankyou Nicky, Mexico for your kindness. I have been worried about pain as my body starts to close down. Well the district nurses come every week to check on pain. A special bag of meds has been delivered for the end. I signed a form to say I want to die at home. I also signed that I did not want to be resuscitated. My special nurse comes every week and my gp does as well. Dr ..... has become Christian name. All are being very kind. I had a day bed delivered so that I am not cut off from the family. I am posting this because it is something I wanted to know but difficult to ask. As things go on if anyone has further questions please ask. love to all of you,my friends. Ramade xx     ... View more

Hi Lindy, I was on erubilin and it was fine,just didn’t last very long. I have been taken off all chemo now because my body has had enough I’m told and I wouldagree with that. Sadly I have been given a few weeks left to live, but I managed it for 20. i would like to thank the many friends who have come and gone on this site. Ramade x ... View more

Thanks Hannah, I hope your pet scan is clear.  I will keep in touch. ramade xx ... View more

Hi Mexico. Clonazepam ramade xx ... View more

thanks Hannah,hope you are doing well      ... View more

Thankyou ... View more

Thank you Nicky, bless you  Ramade xx ... View more

Thanks Kate much appreciated Ramade xx ... View more

Linda,hospice nurse came round and she can see the lumps ha ve grown and my face has palsied,I look terrible. she said she’s getting an urgent appointment with the oncologist and seeing if they can bring forward the ct. she held my hand and said we might have to have a different kind of conversation next time. I knew what she meant_ radiotherapy and chemo have both failed.well I’m not someone who cries but I just put my head in my hands and shook. After a while she gave me an anxiety pill. I woke up 2 hours later and had to ask hubby what had happened. Reading this back I see it is an example of what we all have to face. thankyou for hugs and kind words and helpful information. love to all ramade xx ... View more

Love mama,thankyou for this article,you are very kind. hugs Ramade xx ... View more

Hi Linda, my next ct is in March. I feel ashamed in a way that I am for the first time in 20 years thinking about stopping treatment. It’s the constant side effects,fatigue everything really. Tomorrow I have a hospice nurse coming to visit and I am going to talk it through with her. My hubby wants me to carry on and the rest of the family and I do understand them completely. Let’s see what she says. take good care and I hope the gemcarbo works for you. hugs ramade ... View more

Hi Linda, glad that you have no side effects so far and let’s hope it’s working. The fatigue from the head radiation is still awful after 8 weeks, but on the bright side this has meant I have done a lot of knitting for the baby grandchildren. Back on erubilin next week , they gave me 3 weeks off(1 cycle). I think we’ve both been going a long time, let’s hope someone comes up with a miraculous cure! take care of yourself. ramade xx ... View more

Hi Linda how is the gemcarbo going. Thinking of you my dear Ramade xx ... View more

Hi Linda, all I know about this treatment you are on is that it can cause nutrapenia so take you temp every day. ramade x ... View more

Linda, I have only just seen your post. So sorry your scan results weren’t great. I hope they start you on a treatment straight away to knock those cells dead. Your sister as well, you poor thing. I’m sending you big hugs and thinking of you. Ramade xxxx ... View more

Hi all, this is a weird one but Eribulin gives me thrush. I had to stop for an operation and it went away,back on it now and wham it’s back.i have to take fluconazole every day. could be worse I suppose but it’s working still I hope. love to all ramade xx ... View more

Thanks Linda, lovely to hear from you. We did have a lovely Christmas,all the family come to us as we have a bit more room. I did have to go up for a lie down from time to time but tried to be discreet.  I hope you had a good one too and glad that things have remained stable for you. Keep in touch. love Ramade xx ... View more

Hi Liz,I have read your message and really sympathise, but it sounds like you have a good team at the hospital. An important thing to ask here is do you have any loss of sensation in your face or jaw. Wishing you well Ramade xx   ... View more