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Sally-Ann
Member
since
23-04-2017
23
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5
Hugs
09-08-2017
08:46
Hi all, I was on Letrozole, and with one brand I had terrible problems with crying all day but same hormone dosage but different brand I was fine! So it my be worthwhile trying a different brand my chemist was really helpful, (I tried this as the breast care nurse told us at a moving forward to try a different brand if we had problems) hope that helps. I did get dryness which was solved with replenished. Wishing you all the very best of luck and sending hugs. Love, Sally 😘😘😘
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06-05-2017
12:40
I agree with Ladybowler, this is the best place to get if off your chest. I am sending telepathic hugs to you and hoping this bad spell soon passes.😘
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04-05-2017
11:51
Hi Lizred, Sorry to hear you are having a bad time. I only finished treatment in November and due my first mammogram in October so have no wise words of experience. I don't blame you for having a wobble, it is a stressful time, even before I was diagnosed I used to get stressed (my Mum died of breast cancer 32yrs ago). I always reassured myself that if something is wrong better to find out so the experts can sort it out. What are you worried about most? Is it the thought of having to go through all the treatment again or that they will say you don't need to have the other breast removed and you will be constantly worried you will get cancer? I don't think there are any answers just a case of taking each day at a time. Remember three things:- 1. You are strong and WILL get through what ever life throws at you 2. You have loads of people routing for you (me included) 3. This too will pass Sending hugs and love Sally 😘😘
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03-05-2017
10:20
1 Hug
Hi All, i startered taking Letrizole in September 16. Started on Acord which although made me weapy for no reason spent a whole day crying for no reason, partner said I was a bit weird for a few days...but was ok, my chemist changed the brand (not requested by me) to Dr Reddy's (the name makes me chuckle) and found this one even better. Jill1998 wish you luck and hope you find the right brand for you. 🤓
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02-05-2017
10:34
Hi, Just because you haven't had to go through chemo or radiation (I had chemo before and Rad after). Doesn't mean you haven't been through a lot or that you can't have a moan, you have still been through a hell of a lot both physically and mentally. hope you are feeling better than you did when you posted and sorry for not replying sooner just read the post. Take care of your self and good luck with everything 😘 Sally PS I agree with everything Kiki2 said
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02-05-2017
08:47
Hi Kary, Sorry I am unable to give any advise. Just an idea you might get some better answers if you re post this on the Treatment/lymphoma board. hope you find the answers you are looking for. sending you love and hugs
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02-05-2017
08:41
I was lucky enough to have a reconstruction when I had the surgery and on the whole I don't think tattoos are a good idea - too permanent having said that, Sue your tattoo looks amazing as does your hair... Love the colours. Cath, I think you need to think long and hard about having a tattoo, the design etc has to be just right as you can't change it once it's been done. Sue's tattoo looks amazing and I think that providing you get a good design and a good tattooist it's a good idea. Because it is such a big step (and as has already been said) try and get a tattooist who specialises in tattooing scares and find out if you can see any of their work first. I think I probably would have a tattoo if I hadn't had a reconstruction as I think as Sue says it empowers you and you would be looking at something special to you. What does hubby think? I would also get him to help with the design as he will be the one who looks at it the most 😀. The other thing to consider is how much feeling you have as I have been told that it can be painful I sure Sue could let you know about the practical side of things. I haven't got any real feeling in my false boob but my nerve endings feel everything at the moment, not sure if that is same for you. please let us knows what you decide and I wish you luck with what ever you decide to do XX
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01-05-2017
05:18
1 Hug
i will keep fingers and toes crossed, please let us know how you get on. 😍
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01-05-2017
05:15
Sorry to hear of your loss, I hope you will soon be able to remember him with a smile instead of the pain you have right now. I have no words of any real comfort, nothing at this time really helps, just know that we are thinking of you and sending love and hugs, I like to think that he is back with your Mum where ever it is that we go.😘😘😘😘
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01-05-2017
11:20
I agree that there are some nasty devious people who want what you have and will try to take it so you need to be careful,but there are a lot of good people out there as well, and sometimes thing aren't what they seem. I had an aquatance who always had people round them, I thought she had hundreds of friends as did her son. Went to her funeral wasn't going to because I didn't know her that well and thought it would be packed with her real friends, I only went because my Dad said you only get one chance to say good bye...............My Dad, step mum brother, his wife and I turned up to the crematorium went in and sat at the back of a large room (picked so that her numerous friends could be accommodated) her coffin arrived with her son, ex husband and neibour........no one else, her son had, had loads of cards made up saying thanks for being her friend, although I have been to funerals that have been emotionally sadder, I have never been to a sadder funeral. I felt so desperately sad for her son he thought she was loved and happy and had loads of friends but in reality she was very lonely. please don't let a bad experience stop you being the wonderful caring people that you are 😍 I hope everything is going well for you all, sending hugs xx
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01-05-2017
10:41
Hi Treeze, Only just read this thread. How is your Dad I hope that he is recovering well. sending you a big positive vibe hug.😘 PS. A hug is like feeling sunshine on both sides.
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01-05-2017
10:04
Sorry meant to say that when I had my reconstruction the surgeon put a couple of stitches just to the side to stop my new boob moving to the back, might be something they could do for you?
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01-05-2017
09:34
Hello Mammycat, sorrry I haven't replied sooner only just read your post. I didn't have the same operation as you had a Masectomy and reconstruction using my tummy fat. I think that you should really speak to a BCN. From other posts I have read I am sure there is something they can do to help, and any lump is worth getting checked out, I had a scan on my operated armpit as it felt lumpy to my oncologist so she wanted to make sure everything was OK.....thankfully it was (phew) and was told it was normal scaring!. But if there is one thing I've learnt through all this and reading other posts is DO NOT suffer in silence as there is normally something that can be done and the biggest NoNo is not getting something you are concerned about checked out, worrying normally over something especially as 9/10 it is "normal" Is bad for your health and if on the rare occasion it isn't normal then sooner treated sooner mended xx Sorry to hear you are having other problems too. sending big hugs and love to you. Hope everything goes well, remember you are not alone even if it feels like it sometimes, we are all here for you. During the toughest times in my life I have always found the saying "this too will,pass" a comfort, because it normally does. Let me know how you get on.
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01-05-2017
09:01
Good morning Jill, Thank you for your support yesterday. I took an extra pain killer last night and slept like a log, woke up exactly how I fell asleep! No longer feel sorry for myself more like my old self, it is amazing what a good nights sleep can do for you 😍 I think it is the best medican. Thanks again and I hope everything is going well for you😘
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30-04-2017
03:43
1 Hug
Not as funny as other posts but my "loving" Brother nicked named me Auntie Fester when I lost my hair......needless to say it spread round the family in no time! I agree a sense of humour preferably warped helps loads. we live on the coast so windy most of the time I ended going el natural when I lost my hair as decided it was better than chasing the wig down the street and I couldn't stop fiddling with it and ended up lopsided on more than one occasion much to the amusement of my partner 🤓 Sending hugs to you all. Have a good weekend.
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30-04-2017
02:38
Hi Jill, I spoke to the physio briefly at a moving forward session and she gave me the walking up the wall excersise. Think I will phone my BCN on Tuesday and see if I need to go through GP or they can sort out some physio. many thanks. i hope everything is going well for you🤓
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30-04-2017
12:52
1 Hug
Hi, Feeling really low at the moment. I had my last Radiotherapy treatment mid November after having had Chemo, Masectomy with reconstruction. Just before Christmas I was felling fine little or no pain, full movement...happy days. Then just after Christmas started to get pain under my arm which has steadily got worse and has spread down my arm, I have had an ultra scan which has shown no problems. My Onocology Doctor who is wonderful has said there are no problems and to keep doing the excersise, as has the surgeon who did my Masectomy....who said "it takes several month to be pain free". Not sure what he means by several ??? My worry is that it doesn't seem to be getting better, worse if anything, lucky I am not working so the lack of sleep isn't a problem. Sometimes it feels like broken glass, sometimes it feels like a gapping cut and other times it feels like an elastic band that is about to brake. I have full movement although very painful. I am doing the exsersises and massaging. We moved to a lovely village last May and have just finished refurbishing our new home, new kitchen, bathroom, decorated etc. so really down that I can't enjoy my home or the lovely walks etc as in so much pain. Then I feel so guilty because I am so very, very lucky apart from being given the all clear, we have no money worries, a lovely home, I also have the support and love of a wonderful man (my main reason for being so lucky) I know that I should stop feeling sorry for myself, wallowing in my own self pity acting like a spoils brat and get on with it, count my blessings as I have so many, there are so many people far worse of than me ( I know it will get better eventually I just need to be patient). I think it was feeling so well just before Christmas and thinking it was all finished and then the pain of it coming back plus finding out that my big brother who was given the alclear from bowl cancer in 2013 was diagnosed with terminal lymph cancer just before Christmas, didn't want me to know because he didn't want me to worry! luckily the wonderful Cancer people can keep his cancer at bay. I have such a wonderful family and brilliant friends that I am so cross with myself for feeling so fed up and down, It isn't like me, I am normally a very upbeat can do sort of person. I am on pain killers which ease it a bit. sorry for the winging babalings just needed to get it off my chest Anyway I blame the hormone tablets for being a spoils brat. Loads of love to you all xxxxxxxxxx
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30-04-2017
07:04
Sorry you hear your cancer has returned. I agree with the others and think Hubby is struggling .... Doesn't make it any easier for you. Do you think that it may help him to talk to other partners of people going through Cancer? I know there are support groups out there and a forum on this sight for "careers". He might find it helpful hearing how other people feel or to let of steam. keeep your chin up sending you a ginormous hug
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30-04-2017
06:45
My heart goes out to you. Try and remember:- You have the love and support of your family and friends........you find out how truly loved you are. In spite of what you read in the news papers you will have a brilliant team of people working to make you better. I had stage III cancer, but the fantastic team of experts who have treated me have got rid of the cancer. I know it is early days but remember there is a light at the end of the tunnel and there is an army of people routing for you, me included. Good luck with your journey. sending you love and hugs😘
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27-04-2017
11:04
Hi Sammas, Make sure you keep doing the excersise during and well after the radiotherapy. I wasn't told to carry on so stopped for a few days as had full movement without pain and have now gone back to square one (most days even worse)! My BCN told me(after it was too late) that the effects of the radiotherapy carry on under your skin and peek at ten weeks, the Radiotheraphist said the effects peeked at fourteen days (think she must have meant the skin side effects?) I don't want to scare /worry you as I followed the advice I was given on skin care and had no problems there and believe that if I had carried on my excersise I would be fine ther too. I just wanted to make sure you carry on your excersise so you keep moving forward, Hope it goes really well for you. sending hugs 🤓
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