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Den64
Member
since
09-05-2017
29
Posts
5
Hugs
16-10-2017
08:11
Hi I have been changed from Tamoxifen to Letrozole and have been having loads of hot flushes but mine tend to be in the day time not suffered at night yet. I dry my hair in the morning and within an hour have had a hot flush hair goes as flat as a pancake and looks terrible and then that continues throughout the day. Just wondered if anyone has any tips on things to help. Denise xx
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16-10-2017
07:49
Hi There I too have been put on Letrrzole, and having lots of hot flushes, I thought i would give the ladycare magnet a try. If your looking for joint pain help and finding the tumeric from health shops too expensive try making golden past , theres a facebook group that tells you all about it and will give you the recipe, worth a look. Tumeric User Group Good Luck
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27-08-2017
06:11
Went to my gp no help what so ever just said keep them elevated. I can barely walk! Going back to see my surgeon on wednesday for results from my op so will have to wait and ask her. X
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23-08-2017
05:38
Hi I had my surgery last Thursday 17th had mastectomy with implant and lump removal on the other side all went well. Since Friday i have had really bad pains in my right foot heel finding it very difficult to put any weight on it had been putting ice on it and doing foot stretching exercises and then last night it feels like it starting to happen in the left foot aswell . Has anyone else had this? Xx
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16-08-2017
06:51
Hi Im having my surgery tomorrow mastectomy with implant and a lump removal so will have a drain on one side.. i should get discharged friday morning and already have a physio appointment for 11am on the Friday. Just wondering what clothing to wear for the physio and home or did you just stay in your PJ's? Starting to get nervous now and panicing over the small stuff 😊
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11-08-2017
08:43
Hi I am due to have my surgery on 17th August I am having a Right Mastectomy and a Left Lump removal. I am just wondering what sort of recovery time i am looking at i know it will vary from person to person but to give me something to look forward to after the op etc i thought might try and get a weeks holiday. do you think looking at the last week in september would be too soon? i know at the moment they are going with Rad Therapy so was hoping to go away before it started. Am i being to ambitious ?? Thanks in advance Denise xx
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02-08-2017
09:03
Thank you Colby. I also had been looking for PJ's and now have just ordered the sainsburys ones i got the ones with caravans they look fab xx
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01-08-2017
09:01
thanks for that i have already bought the asda 2 pack front fastening ones but thought i might need more support to start with? did you think that or is it more about comfort than support? So confusing all this stuff 😞 im having an implant put in at the time of mastectomy if thats any help xx
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31-07-2017
09:47
Hi I'm due to have a mastectomy and a lump removal on the otherside in a couple of weeks just wondered if anyone had tried this make of bra and if so what were the sizes like? Amoena Frances Non-Wired Front Closure Bra Thanks in advance xx
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27-07-2017
07:46
Hi Charlotte Thank you for replying, I am also on asacol( Mesalazine) tablets which i have been on for 20+ years that and the azathoiprine were keeping my UC under control since stopping the azathioprine they also gave me foam enemas and suppositories and have now started me on prednisolone (tuesday) my surgery is 3 weeks today and i am really scared of what will happen if my UC isn't under control before then as they steroids will obviously be cutting back for the opp. sometimes think am i not already going through enough, but obvioulsy not lol. xx
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25-07-2017
01:04
1 Hug
Hi I was diagnosed with BC in both breasts on the 17th May and i am awaiting surgery 17th August i am having a mastectomy and a lump removal mean while i am taking Tamoxifen. Unfortunalely i also suffer from ulcerative Colitis and my IBD team have taken me off of the medication i was on( Azathioprin) as it is an immune suppresent, Now my coloitis is kicked in badley and they are going to put me on steroids until my surgery. is there anyone else out there that sufferd from this and how have you got on with medications etc ? Thanks Denise
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12-07-2017
11:00
Hi I'm waiting for surgery having a Masectomy and a lump removal on my other breast, Just waiting for BRACA gene test to come back so they can giveme a date for surgery. In the mean time im on Tamoxifen. I also suffer with ulcerative colitis and because of the BC they have taken me off of some of my UC drugs which has now caused me to have a UC flare up ( when it rains it bloody poors in my case!) just wondered if anyone else has same problems and if so whats medication did they put you on? I was on Azathioprine but as it's an immune blocker it wouldn't be good with the cancer. Thanks in Advance Denise xx
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01-07-2017
03:13
Hi all Now been taking Tamoxifen for 9 days and apart from hot flushes and a little tired haven't had any side effets yet. How about everyone else? xx
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24-06-2017
08:57
Hi Girls I have started taking mine at night, this is only because I have Ulcerative Colitis aswell and have meds for that and didnt want to take my meds at the same time (they dont say you can't but just think it would be like drug overload lol) so it will intereting to see if there is any difference in the time of day and taking it. I have only done day 2 at the moment but havent had any side effects as yet, the only one i wouldn't mind is the weight loss but knowing my luck at the moment i'm likely to get the weight gain side effect Keep strong Girls xx
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22-06-2017
08:39
Hi Ladies I am getting my prescription today for Tamoxifen, not sure if to take it at night or on the morning so any advice on the best time of day would be brill. Good luck to everyone else who is starting on it Denise xx
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23-05-2017
06:53
Hi everyone I just wondered if anyone has asked for double mastectomy? I have been told that i need a mastectomy on my right and lump removal on my left also having the BRCA test as having BC in both breast it might be because of that. I have been wondering if they would give me a double mastectomy as they have to do surgery on both anyway and if after surgery the BRCA test is positive then they would then do a mastectomy on my left anyway. just think get it all over with at once or am i looking at this wrong? xx
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18-05-2017
06:13
1 Hug
Hi I'm Denise I had my result day yesterday i have IDC in both breasts stage 1 and stage 2, having a mastectomy on my right and lump removal on the left providing i dont have the BRCA gene (if positive then double mastectomy((not worrying about that yet)) The strange thing is i feel like a weight has been lifted with my diagnosis I think in my head it was going to be the worse case senerio and spread everywhere ( mind working overtime waiting for results) So the fact it can all be dealt with and at the moment a good prognosis might not even need chemo if lymph's are clear which they looked on the scan. I feel positive yes it's not going to be pleasant or pain free but it can be dealt with, which was my biggest fear. I'm no doubt going to have my down days but at the moment i'm feeling very positive 🙂 xx
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18-05-2017
04:54
Hello Ladies Just thought i would let you know my results. I Have BC in both breasts, one is stage 1 and the other stage 2, I am having a mastectomy on my right one where i had the lesions and lump removal on my left. it sounds strange but i feel fine about it all, I think in my head i thought it was going to be the worse case senario, thinking it had spread through out my body all sorts of things your mind works overtime on while waiting for results. So the fact that it can be dealt with, I know thats not going to be pleasant or pain free and they are hoping i might not need to have chemo so to me it is all positive, hopefully 6 month to a year from now things will get back to normalish. The fight is on and I will beat this 🙂 xx
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18-05-2017
04:52
Hi Nicky Just thought i would let you know my results. I Have BC in both breasts, one is stage 1 and the other stage 2, I am having a mastectomy on my right one where i had the lesions and lump removal on my left. it sounds strange but i feel fine about it all, I think in my head i thought it was going to be the worse case senario, thinking it had spread through out my body all sorts of things your mind works overtime on while waiting for results. So the fact that it can be dealt with, I know thats not going to be pleasant or pain free and they are hoping i might not need to have chemo so to me it is all positive, hopefully 6 month to a year from now things will get back to normalish. The fight is on and I will beat this 🙂 I do hope you get your results soon and wish you good luck with yours xx
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