Breast Cancer Care Forum

Hi vintage. Just wanted an update on your pain your experiencing in your hands. I'm also on herceptin and tamoxifen and I have had 12 herceptin so far. My fingers get the most pain really and I wondered if you are taking anything to help with the aches and pains at all. Hope your feeling much better now. Xx ... View more

Hi 👋Ladies. Day nine from last chemo and finally I'm eating a meal ( pasta nom nom).  Yesterday was a sad day as the genetic team phoned me with my results, braca 2 so my future operation has now been totally changed to bilateral mastectomy and overies removed 😭 On the plus side it's all free and now my daughters will take the tests as they are at 50% risk of having the gene also as are my sisters.  Still trying to come to terms with it all as you know guys , it's been tough enough dealing and coping with the chemo ! Thank goodness that part is now over 🌈 How amazing are we all to cope with all the side effects imaginable. Going to get out there tomorrow and stuff my face with barbecue spare ribs and down one pint of strawberry milkshake 🌟⭐️💫 I am seeing the surgeon next week but there are so many options I will listen to them first and decide which way is the best way forward for me as I'm supposed to have radiotherapy after my op which means reconstruction may have to wait. Anyone else in this wonderful group know how this all works with the ops and the radiation? hope you all have a fab weekend and do absolutely everything you can possibly manage to do without too much pain. Massive hugs 😻😻 ... View more

Rosie I got told off for both my daughters coming in with me for a pick flush lol , so I asked my youngest to wait in the waiting room but I never realised as I only ever have one person with me but I have seen more than one person going in with other patients to be fair. I guess there is just not enough room unless you pretend to be some piece of equipment or part of the wallpaper lol xx   ... View more

Argon oil Trisha! Isn't that for your head ?  So many things I don't know about . Hope your ok and having a better  late afternoon , evening. I had a two hour wait for pick flush as they were so busy. Had soup in the cafe but when I came home it didn't stay down but at four I ate more soup and feel slightly better although still sickly. I keep thinking hey it's not forever so I'm listening to my body and staying in bed resting and taking all the drugs offered.  Trisha they said I had to keep my pick line in for a couple more weeks in case I get infection again as my veins are pretty rubbish. Did you have yours taken out after your last chemo ? .  I have this gloopy medicine called peptac for evening as I take omaprazole in the morning and can't take any more of them until the next day but by teatime indigestion hits again even though I'm on bland food so I'm glad  I have peptac . what is everyone eating to help with sickness and does herceptin injections cause sickness too? Gosh a whole year of sickness, I couldn't cope with that lol. How is everyone dealing with the thought of going back to work. I haven't got the energy to work yet and I know some ladies are working and I don't know how but I salute you 😊😊😀😀😀xxx of course I want to work but I can't seem to focus on even thinking about it at the moment. Is anyone else feeling this way.  When I was having my pick line flushed the nurse said how many times have you been in hospital since starting chemo and I said just the one time with temp etc. She said that was really good so I'm thinking I bet they don't really tell you that's it's pretty normal to go in more than once during your treatment. I have problems with my temp going up then down, I feel I'm getting obsessed with my thermometer 🤒, gonna break it the amount of times I'm using it haha. Also I want to go for a walk but when I'm sick it happens suddenly and I don't want to projectile vomit over anyone on my way. Hope everyone has a peaceful evening amid all the farting burping etc etc xxxxx       ... View more

Good Monday morning ladies. Having a bad vomiting night session which lasted most of the night. First time I have actually been so sick from the dreaded T. Really don't want to go get my line flushed today as can barely walk but both my daughters say they are taking day off work and will get me in so all I have to do is take sick bowl n blanket , bless them. Luckily my temp is not over 37.3. All I want to do is stay in bed, mahhhhh!!! How do you all manage if you can't get to hospital to get your line flushed cos you feel so crap.  Had my last T on Wednesday so that's why I chose today for line flush as I knew by this Wednesday I would be crawling.  How do the holidays work as I have been off since march, I work full time for the nhs and I have only taken one weeks holiday so far but my sick note will carry on till after Xmas and some if I'm not well enough to work. Can I claim the holiday back at all as I get near six weeks . I'm not planning on returning full time . Going to do  some things I never had the time to do before lol. Like walk in the park, drink coffee in the cafe, go to the pictures, go on a train, visit the beach, eat candy floss and a mega size burger with fries . All the little things I never did are going to be on the top of my list.  My mouth tastes awful and the domperidone doesn't seem to help. Is cyclazine any better? As I have some of these too.  My tummy is bloated and my feet are burning and the list is endless. Jeesh I could whinge for like ever.  Today my husband was sick watching me be sick , bless him, he has a low tolerance for this type of thing so he's kinda keeping out the way, although he refreshes me with water n ice cubes and sweet tea.  How are you all coping on these early days after treatment. Is this normal to feel so bad so soon as last time I was okay till day six.  Seems to have hit me early this time.  Has any of you lovely ladies had herceptin injections yet as I have had the last three in infusion but now I guess they will be in the leg for a year . Is it painful.  Not sure when my op is as I have to have yet another MRI scan in a couple of weeks so fingers crossed .  I feel I am almost on the same road as you jay and you are doing so well compared to wussy me .  Anyway I hope this week goes so well for everyone, especially if your going away somewhere nice and relaxing xxxxxxxx best wishes and a thousand hugs 🤗 to all you amazing brave  super strong ladies xxxxx   ... View more

Hi everyone 🤗. Hope you are all doing well and nearing the end of doxy tax hell . I unfortunately didn't have a bell to ring at the end of chemo so everyone clapped instead . Chemo on Wednesday so side effects set to kick in tomorrow. I can't believe how amazing and strong you have all been and how supportive you have all been to each other. I sit on the side line reading every message every day but never being able to have enough courage or strength to say some things without falling to pieces and then feeling bad that I have whinged too much. Today I want to say that I know what's coming , I know the bone pain the sickness the heart palpitations etc etc etc, the list goes on n on n on but that last chemo , when you know you have finished for now hopefully , you think you can cope and I think I can just about cope .  If I hadn't gained all the information from you guys on here on an every day scale I would have been on the phone to the oncologist every blooming day , I swear. Thank you from the bottom of my heart ❤️ for all the normal every day issues that most of us are experiencing and willing to share with others to gain information only we can recognise.  I don't know where to go from here. I'm expecting genetic results in a week I hope to see if it's mastectomy or bialateral mastectomy but I'm hoping my MRI scan shows reduction in tumour, can't feel it now 😍. So here's to plenty of water n ice cubes, boring see through chicken soup , stomach lining shot to pieces 😟And tasty Horlicks xxx  Thank goodness for friends and families and most of all you wonderful wonderful brave ladies xxxxxx     ... View more

Just okay xxx Hiding away under the sheets. Number five done and on day four xx Hope your doing ok Mai . I can't keep up with everyone lol. Pain relief on tap and hoping I get to taste food in the next couple of weeks instead of cardboard and slimy yuk 😻😻😻xx Will catch up once I have re-read the last two weeks of threads xxxx Keep going girlies your all amazing and super brave  💪🏻 ... View more

Morning all. Hope everyone is well and my thoughts are with you Trisha xxx hope today you are feeling a bit better and managing to eat and drink a little more.  Im still feeling drained and it kinda feels like my heart is heavy, can't explain the feeling but it's like I'm possible a little breathless, has anyone else felt this ? Like my heart has slowed down. Possibly the herceptin messing about.  Im still not feeling like I can go out at all and I'm hoping this will pass as my mind says I can but my body says rest and take it easy as I don't want a return trip to hospital .  Is anyone waking up at silly hours wanting drinks etc as I can't seem to get past three without being wide awake wanting milk n honey haha.  I have codeine for pain but this causes constipation, any suggestions what else I could ask for xxx Other than that I'm alive and pushing forward. Best wishes to everyone for a calming positive happy week ahead xxxxxxxx ... View more

Yes Trisha I'm in a side room . It's nice cos you can shut out the chaos going on in the ward . I know how you feel Trisha because with the fec I handled the nausea well but this doxy pig bum is a monkey and actually makes you feel ill ill . I tried so Hard not to go into hospital fanning myself when my temp spiked but when all your doing for five days is getting out the bed just to use the loo because your in such pain and you don't know whether your coming or going it all gets a bit much. It will pass Trisha . All these lovely ladies are doing and pushing through and so will you . You wanna see me powering down the ward with my iv drip in tow having roughly five seconds to reach the toilet in time shouting get out my way unless you wanna see an explosion 💥 lol. I'm thankful it gets easier and hoping when I get discharged I manage to get through the next chemo without being re-admitted. They told me at the hospital it was the right decision to come as with any chemo u need to be on top of the side effects with help. No need to suffer alone and get any help Available xxxx I'm sorry there's no One at home for you but I'm sure they won't send you home unless they think your well enough to cope alone xxxxx be strong as your doing well and have come this far xxxx ... View more

Morning peeps. Maybe I should have not asked about what certain words meant . Tuesday I got admitted to hospital With neutropenia sepsis. Wow there super quick when you get in. I was put straight onto iv vancomycin and gencomycin. My poor tummy was like a ballon and my temp kept spiking up and down but thankfully it's now Friday and my count is up and all good. Had chest X-ray abdominal X-ray stool sample taken to see if I have any infection like cdif in my bowel which app Is common with chemo drugs . They have given me omeprazole as I'm in pain with indegestion . Hope your feeling better Trish xxx Oncology team said everything is back on track and the next doxytaxol will be reduced a little. Hoping to go home today . So so happy to be receiving such good care in here xxxx I will catch up when I get home and see what all you lovely ladies are getting up too xx ... View more

Morning ladies. Would you mind giving me feedback on how long the doxytaxol joint pain continues for as I was thinking  about pulling my hair out , unfortunately it would be with tweezers, the little I have ggrrr. I had the worst night ever, up every hour with pain like I have never experienced before. Temp spiked at 37.4 but did go back down this a.m. I'm trying so hard to push myself to get through this pain, taking ibuprofen but not sure if I can mix this with paracetamols. I have the backs of my knees under a cushion as laying my legs flat is too painful. Any tips on what I can do to relieve this. I just had a radox bath to help with the inflammation.  Im hoping it doesn't last the whole three weeks or I will think about asking for something stronger.  Is it normal to look like the size of a house with this treatment. I'm wearing elastic area leggings as can't fasten anything up lol. On the plus side I'm eating small bits like toast n crisp breads with marmite on.  Any suggestions on drinking. I only have ginger tea and normal tea.  Mai I hope you are feeling a little better today after the weekend and I really hope everything starts to get easier on you now . Thank goodness we get free hospital treatment. Treehouse I'm wishing the best for this week as you are having lots of treatment all at once and I think your amazingly super brave , unlike me.  I was thinking of going for a little walk but will that  effect my joints n make it worse .  Best wishes to all of you this week. Xxxxxxxxxx           ... View more

And neutrophil . Think I need to google 😳😳 ... View more

What is filgrastrim ?? ... View more

Hello ladies.🤗🤗since I was last on here just before my first doxy on Wednesday and herceptin and pertusamab on Thursday it was quite calm. I have just read all the messages since and whoa!! What has happened. Mai your in hospital having to poo behind a curtain whilst visitors are haveing grapes n chocs  with their families( laughing because it's funny) ( not laughing at all at the thought of your having to be there but pleased there looking after you and getting you better to come home xxx bless you.😇 Wolfe, treehouse and all you other fantastic ladies have also been through a tough time this last week. I was coming on here to moan about flu like symptoms , achy bones, no sleep , sore backside, indegestion very sore throat BUT enough said😮😬😬Hope you all manage to have a better day today. I'm going to rest up on the couch and try to get to the loo up the stairs without shouting ow ow ow as I do haha xx  ... View more

Morning ladies. I wanted to tell you guys something because I feel that I have joined a really good group here who actually understand what I'm feeling. I don't have many friends as I have been let down so much n the past and so since my diagnosis I have tried to deal with things within my family. They are great but they don't have cancer and sometimes it's difficult to say to them what I'm actually dealing with. The one good friend I have has so many of her own issues that I'm more like her councillor helping her which I love to do but she can't deal with my problems. I put a few comments on here before but again I felt that I was being too pushy so I kind of left for a while. I looked two days ago and saw that you all write down almost everything and the responses you receive are so uplifting and make me feel like I'm not alone ,even though I can't see you at all.  There was a time when I thought I'm done here, I'm not able  to do chemo no more.  Since then I am ashamed I thought like that and realise I can do this. I'm not afraid of pain of being sick . I'm afraid of not having no one to talk to when I'm feeling it but now I have you lovely folk to talk to. Mai, Wolfe, Jay, Raitchr and everyone else on this may thread I'm thankful for your kindness.  Now going to take my steroids and go get my bloods done and pray they are okay for tomorrow. I hope you all have a very peaceful day. The weather is not good and when I was in Sainsbury's yesterday I heard someone say we are getting terrible weather tomorrow so I'm gonna drag out my wellies and long coat as the dogs won't walk themselves xxxx ... View more

Gosh you guys are amazing. I posted only this a.m and I come home to such reassurance. Thank you so much for your replies and helpful information. I know I will be very scared but I will take the advice on board and stay calm as the drugs are given. It's a case of face the fear and do it anyway.  Im having the doxytaxol first then the herceptin and perjeta the next day which is an all day stay.  Will they have drugs on site if you do have an allergic reaction as I really want to carry on with the treatment if I do have one.  Can you take an iPad in to play games to take your mind of what's going on as reading a book I think will be hard. My lovely daughter, Anneliese is coming with me both days which I'm so pleased about.  Tonight im drinking ginger  and lemon tea with ginger nut biccys. Tomorrow I start my steroids lol 4 in the morning and 4 at night then 4 the following morning before chemo. Jeesh I'm going to be flying 😊 Thank you all again as you really have given me reassurance for the next week. Xxxxx  You are all such amazing strong ladies and so so positive, it's a joy to read all your comments xx ... View more

Hi Mai. I am starting doxy on Wednesday and Thursday I am having herceptin and pertusamab. I'm so scared this time as have read about the reactions you get on doxy and herceptin. I was wondering if you are also on herceptin and if you can tell me f they are prepared in the unit if you do get any reactions. I'm such a wimp. I found fec not bad and coped fine with the side effects of tiredness achy bones and nausea but this time I'm more anxious than ever. My oncologist has referred me for some hypnotherapy so I'm hoping this may help. You seem to write a lot on here and you are so positive which I have been up to now and I don't want to show my family and husband I'm not coping as I'm the one who holds everything together 🤗🤗 so pleased your coping well on doxycycline so far and only getting little side effects. Xx  ... View more