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Daisy52
Member
since
18-05-2017
20
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04-09-2017
04:10
Hi Jacqui, thanks for the encouragement! I'm pretty sure I had the IV anti sickness meds before my first FEC. Still feeling sick but got my GP to prescribe cyclizine today to try instead of domperidone so will see if that's any better! 😊 xx
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03-09-2017
05:44
Hi Sue thanks for your advice. I've been taking ibuprofen and paracetamol which I was told was ok as long as I check my temp before taking anything, and to go to A&E if it goes up to 38 degrees. There's no other services in my area at the weekend apart from calling 111. Fell flat on my back this afternoon and whacked my arm quite badly but the district nurse who came out to give me my injection thinks it's just swollen and bruised. Been putting an ice pack on it and arnica cream. I think I'll be ok now till tomorrow then I'll ring my GP and try to get a prescription for cyclozine to see if that helps with the nausea. Just feel like I need a good nights sleep tonight to get through this xxx
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03-09-2017
02:20
1 Hug
Hi lovely ladies, only just coming through the post chemo fog to be able to re-join this thread. Had my first FEC on Friday and been feeling really rough since. Sickness and nausea the main side effects but also diarrhoea, hot flushes, night sweats and muscle pains mainly in my legs. Because it's the weekend the out of hours phone service said the only option for me is to go to A&E which I really don't want to do, so am going to tough it out 'till tomorrow. I've also had a splitting headache which I think might be due to the cold cap. I took a blanket with me to the hospital and I'm glad I did as they only had those thin cotton "holey" ones and I was freezing! 😆 I'm not convinced the nurse put the cap on properly, there was a lot of faffing about and she didn't seem very confident about what she was doing 😳 I'm going to wait and see how much hair falls out at the 14-16 day point then decide whether I want to continue with it as I found the whole experience quite painful and uncomfortable (the headache afterwards was the worst though). The other ladies around me who weren't cold capping seemed to be having a lovely time chatting and laughing and drinking tea, whilst I was swaddles in my blanket unable to move much and couldn't really talk with the tight strap around my chin 😆 Anyway sorry for the long moany post, despite 3 hours sleep last night I'm actually beginning to feel a bit better today so hopefully the worst is over. Good luck to everyone ❤️ 🙏🏻 xxx
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29-08-2017
05:45
Hi Sue Thanks for starting this thread. I'm starting FEC this Friday. Feeling anxious and trying to get prepared over the next two days 😳 Out of interest, why ibuprofen and not paracetamol? Is anyone else going to try the cold cap? xx
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04-08-2017
09:13
Hi Jacqui, in the end I had a bilateral mastectomy with implants and lymph node excision. I found out a few days before the surgery that I'd have to have radiotherapy but the surgeon said go ahead with the implants and if there were any problems with them, e.g. infection or damage from radiotherapy, I'd then have the option of having diep at a later stage! It's a tough decision to make especially when you're under time pressure but just remember whatever you decide, it may not be straightforward and you may have to have further surgery down the line. I'm 4-5 weeks post op and still very sore (mainly from the lymph node excision) but up and about and able to drive etc. It feels like a tight band around my chest and is quite constrictive. The implants look pretty good but a little uneven and lumpy; I'm hoping this will settle down in time. It's been an emotional rollercoaster, I found out on Wednesday that I have to have chemo as well which I'd hoped to avoid. I had to wait 4 1/2 weeks for my results which hasn't helped. Good luck with your op, I hope everything goes well for you 😊
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30-05-2017
04:48
Hi waveylocks, thanks for all the brilliant tips and advice! The plastic surgeon who I met last Friday is very confident and has done around 300 DIEP surgeries, so I feel really happy that he will give me the best result possible. I'm still not 100% sure if I want to have the op or with to go with implants. I'm mainly worried about the recovery time as I have two young children and they'll be on their school holidays when I'm still trying to recover. Although I do have a great group of girlfriends nearby who I'm sure will help plus a husband who will have to learn to clean and cook 😉 xx
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30-05-2017
04:38
Hi rosie14 I have an appointment to see Jo Skillman on Thursday! I'm still unsure whether to have DIEP or implants. They could possibly do a double mastectomy then 2 implants which would give a more even appearance but it's a big step when I don't really need a left side mastectomy. With DIEP I'm just put off by the long recovery time as I have two young children and I'll be laid up during the school holidays. I'm lucky that as I'm classed as an emergency they can fit me in within 4-6 weeks. I've done a list of pros and cons and I guess I'll wait to see what Miss Parkman says on Thursday then make a decision 😳 Thanks so much for your help 😊 xx
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25-05-2017
04:15
Hi rosie14 - wow - a years' waiting list eek!! I've got an appointment tomorrow with the head of plastic surgery to see if I'm suitable and/or discuss other options. I know that Jo Skillman is booked up until at least August but I've been told she may be able to do the mastectomy and someone else would do the reconstruction (Mr Park maybe?) Are you happy with the results and did you have any complications? I'm assuming from your comment about implants this was a better option for you? Thanks for posting 😊 xx
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25-05-2017
07:42
Hi Argymargy, that's a good point and I don't know why they're not suggesting it. Even if they think I won't need radiotherapy on right side surely there's no way of knowing until lymph nodes are tested? I'll ask the question when I meet the plastic surgery team. Thanks so much for your input! xx
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24-05-2017
08:14
Ooh thanks I shall have a look at that website and I'll google for some pics. I don't know if I'll need radio after mx on right breast yet. The wire procedure and mammogram does sound a bit weird but then again nothing surprises me any more! I did ask if it would be better to have a double mx but they seem to think it's better to save the breast where they can. Just worried about it coming back in the future xx
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24-05-2017
06:48
Hi MsMerton and thanks for your reply. I have heard today that I have an appointment at Coventry with the plastic surgery team. So hopefully I can find out more and look at all the options in greater depth. I'm having a wire guided local excision on the left breast, is that the same as a lumpectomy? (Please excuse my ignorance, this is all new for me); the DCIS is 7mm so not massive. Then radiation on that side to zap anything that might be still lurking. On the right breast a mx and I could possibly have a delayed reconstruction but they seem to think it's better to have it all done at the same time? The nurse said the scarring can be worse if they have to open up the mx scar at a later stage? It's all so confusing! But these are questions I need to ask at my appointment so thanks once again for your input! xx
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24-05-2017
03:22
Hi Den64 I asked my consultant if I could have a double mx. I need a mx on my right plus have to have a DCIS on left removed. She said no as they always try to save the breast if they possibly can. And that I shouldn't underestimate the psychological impact of having a double mx. But like you I'm thinking just get rid! 😳 xx
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24-05-2017
09:35
Hi, does anyone have experience of having DIEP done at University Hospital in Coventry? I'm being referred from my local hospital for an assessment to see if I'm a "suitable candidate". My consultant has said they may not accept me as I'm an ex smoker (I smoked the occasional social fag but gave up over 3 years ago). I felt she was being quite judgemental! Anyway just wondering what the waiting times are. I've got a provisional date in mid June for mx at local hospital but they don't do DIEP there. The other option is to have a braxon implant at my local hospital but I'm worried about potential infections/problems down the line, plus I think it will look very different to my left breast. I'm a 34e and the surgeon said she'd have to reduce my right breast but didn't mention about having surgery to my left breast to even them up? I've got to have rad after wire guided local excision on that side so maybe that's why? Don't know yet if having rad on right side. Sorry for the rambling post but my head's spinning at the mo and I don't know which way to turn! 😫
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20-05-2017
01:19
Hi Helena Thank you for these links. We've told our eldest daughter and she took it well, she said she'd already guessed! So I'm glad we were open and honest with her. She's very smart and doesn't miss a trick! Just got to tell the youngest now and I'll use the "Mummy's Lump" booklet as a guide for the language to use although I think she would find the book a bit babyish. She's 7 going on 14 xx
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20-05-2017
01:13
Hi Mai, I think it's the not knowing that's the worst. The distraction advice is good, I need to stop moping around in self pity! Sorry to hear about your chemo treatments :[ xx
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20-05-2017
01:07
Hi Sam, you've hit the nail on the head! That's exactly how I've been feeling. Thanks for the reassuring words, I hope you're doing ok xx
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20-05-2017
01:05
1 Hug
Hi Anniej, that sounds like great advice. I've not really moved from my bedroom since the diagnosis but today I'm feeling a bit better and able to face the world. Sorry for the delayed response, my account was blocked so I was unable to log in. At least it gave me something else to vent about! :] xx
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19-05-2017
03:33
Hi Jacey,
Sorry you haven't received a response yet. Whilst you wait for other users, you might find it helpful to post your query on on our Ask the Nurse board or call our helpline on 0808 800 6000.
Best wishes,
Bonita
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19-05-2017
11:34
Thanks so much for this LadyBowler it's really helpful. They wouldn't give me my path results and told me to wait until Tuesday! All I've been given is two pamphlets on the type of cancer I have, plus two leaflets on reconstruction. It would have been helpful to have the general leaflet as I've already had to tell close friends and family and didn't know what to say. Also need advice on how to tell my children 😞
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19-05-2017
11:06
Hi everyone, I'm so pleased I found this forum! I was diagnosed yesterday but have only been given limited info and have to go back on Tuesday to get more info and a treatment plan. It's awful as I now feel in limbo. I've been told I have 2 invasive lobular cancers measuring 7mm and 24mm in my right breast, and a DCIS in left breast of 7mm. They couldn't tell me whether I'll have to have a full mastectomy of the right breast or whether they can just remove the cancer. I'm scared and confused, I feel like have so many questions! I've been given some booklets about reconstruction but I don't even know if I'll be able to have it let alone which option to go for! Please can anyone advise? What questions should I be asking on Tuesday? Thanks 🙂
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