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Charli-Owen
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24-05-2017
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23-06-2017
09:38
Thank you very much for your advice Jill, I shall get onto that. She has had her NHS Predict results and the hormone therapy isn't crucial but I suppose if the side effects aren't so bad then she will want to do all she can to keep the cancer away. Might just take some playing around to see if one type of tablet agrees with her more than another. Thank you again 🙂 Charli xx
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22-06-2017
03:37
Hi I'm wondering if anyonecan help me. My mum would like to talk to her oncologist about changing her hormone tablet. Does she have to wait for her next scheduled appointment with her oncologist or is she able to ring up and request an appointment? Thank you Charli xx
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22-06-2017
12:33
Hi Bianco, So sorry to hear you've been feeling down and anxious. My mum has been suffering from extreme anxiety and depression since starting her hormone treatment but we're still yet to know whether it's down to the hormone treatment or if it is due to the trauma of diagnosis and treatment. Either way if I've learnt anything from my experience with my mum, it's to act on those feelings as soon as you notice them, because if they are ignored they could spiral and become much more of an impact. From hearing people's experiences and reading through this forum I gather that it can be quite common to have some feelings of anxiety and depression after treatment. Yet, whether it is normal for everyone who has been through BC or not, they are still feelings that should be acknowledged and so I would urge anyone to seek help for this. Hope this helps Charli xx
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27-05-2017
12:27
Thank you so much for taking the time to respond to my post 🙂 I am in the process of researching the different types of hormone therapy as my mum is adamant that she wants to remain on them, which is understandable. I'm hoping that there will be another alternative that she can try, maybe Tamoxifen as I've read about that a lot but she'd not tried it as of yet. I'm also wondering if she can lower the dose of the hormone therapy. All things that hopefully her BCN and oncologist will be able to clear up. Thanks again for your response and I hope you continue to experience very mild side effects from the hormone therapy 🙂 xx
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27-05-2017
12:21
Leanne, what you said about Tamoxifen stopping oestrogen from reaching the cancer cells but not actually changing the hormone levels in the body has really interested me. My mum has tried both Letrozole and Exemestane for the past year and since starting has been suffering from severe anxiety and depression and is nearly unrecognisable from the person she used to be. She's not been very responsive to mental health treatment and it keeps going through mine and my family's mind that this might be down to the hormone therapy. She is still adament that she wants to carry on with hormone therapy as she has used the NHS Predict tool and the hormone therapy does appear to make statistically significant difference to her chances. However, I've been looking into both Letrozole and Exemestane and it appears that they are different to Tamoxifen as they actually reduce the hormone levels in the body. So I wondered if you knew about this because you had experienced better side effects from Tamoxifen as opposed to some of the aromatase inhibitor type hormone therapies?? Charli xx
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24-05-2017
12:16
Hi, I'm wondering if anyone can help me. My mum has been on hormone tablets as a preventative measure after being treated for breast cancer last year. She started off on Letrozole but then was changed to Exemestane about 5 months ago. All in all she's been on these hormone tablets for about a year. Since starting the hormone tablets she took an immediate decline in her mental state and has been suffering from severe anxiety and depression. She has been admitted to hospital twice in this time and although has made small improvements, she is still very far away from the person she used to be. She had a brain scan as there were concerns that her decline could have been due to secondary caner within the brain but this has since come back all clear. I'm just wondering if there is anyone else out there who has experienced this kind of extreme deterioration with their mental health after starting hormone treatment following treatment for breast cancer? Or if anyone knows of anyone or has any informarion that could shed some light on what I have been experiencing with my mum? Any advice would be really appreciated Charli x
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