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Mama-bear
Member
since
27-05-2017
49
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9
Hugs
28-09-2017
12:16
Hi SueE, I am right there with you. had surgery in June, started Tamoxifen beginning of August and finish RT tomorrow (23rd session). I was fully expecting the nasty list of side effects for Tamoxifen but instead have had a few of the slightly less common ones but am way more anxious than I have ever been in my life. I too have always been an up beat type of person but over the last month I cry and the smallest things and my moods can get very low but have no idea if its side effects or just all the emotional baggage catching up with me. Stay strong xxx
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21-09-2017
06:58
I don't Helena but having just had my second of eight booster shots I've decided I don't like it. Never come out of the hospital in pain through the radiotherapy journey but was tonight. I have so many aches and pains I have remind myself I ony 38 rather than 98 Can not wait for the end of the month and it's all over (hopefully) x
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20-09-2017
12:01
Hi, I'm 15 session in for 23 to my left breast. I was all geared up to have to do the breathing technique but was told it wasnt necessary. They shoot the radiation at my breast right to left at 45 degrees and then does the same from the other side so the radiation goes through the boob, across my chest. Hope the appointment goes OK this afternoon
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18-09-2017
09:53
Hi Does anyone have the detail of the Manchester or Bristol venues? I live quite far away so need to work through whether I can get to either but it would help to know where the venues are in a bit more detail. I did try and email the address in the original post but got a failure response. Thanks ladies
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08-09-2017
07:25
8 sessions down, 15 to go. My ribs are beyond painful and my back and under arm feel bruised to the point I'm back on the painkillers (haven't had to use them a couple of weeks post surgery) I am so glad it's the weekend so two days break
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06-09-2017
09:33
1 Hug
Hi Jojum, I too had my 5th session yesterday and feel rubbish. I keep getting told the Rads side effects wont kick in till session 14ish but I am knackered, ache all over and feel so heavy. Can I ask if you are on Tamoxifan? I only ask as I have started on that and whilst I haven't suffered most of the side effects listed, it really messed around with my hormones and moods. To the point that my doctor has now put me on anti depressents temporarily until my body adjusts as I was so low and couldn't stop crying all the time but half the time had no idea why I was crying. Hope you're feeling better today x
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05-09-2017
08:02
Hi Hwin, a vanilla loaf cake with a lemon syrup poured over the top and then thick lemon flavoured icing poured on top
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04-09-2017
07:30
You'll be pleased to hear Helena that it turned out OK. Of course I didn't try the cake first, I made my hubby, just incase I did get the ingredients muddled and he not only survived but said it was "alright" so I'll take that as win and that I can officially bake in my sleep! Mary Berry, here I come! xx
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04-09-2017
05:36
4 down, 19 to go. Feel absolutely pooped today, so what do you do when you feel like you're going to fall asleep standing up? You bake! This has the potential to not end well.
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02-09-2017
08:40
Hi Merank. I wasn't specifically told 2 litres, just that drinking fluids helps battle dehydration which can lead to fatigue. I've taken to carry around a water bottle so I slurp from it generally throughout the day but instead of just plain water, I often have squash or cordial to mix it up a bit.
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02-09-2017
09:48
1 Hug
I started Tamoxifen almost a month ago and take it before I go to bed. I've been surprised at the lack of obvious side effects. I will admit my hormones are all over the place so I have had a couple of bad days with crying but my GP has prescribed something to settle that while my body adjusts to the new medication but the only other side effects I've noticed is my concentration/memory is a little bit rubbish (now I just write list for everything so I don't have to worry about remembering things) and i've lost my appetite. I've lost a total of a stone over the last 4 weeks, not because I don't want to eat but rather just forget. My husband is helping me out there and just gentle prompts me from time to time or will surprise me with a choci bar if he pops to the shops. There are a lot of ladies on the forum who haven't been as lucky in regards to side effects but hopefully you will be fine. If mine stay consistant, I'm happy I can live with it for the next 10 years in the hope I don't have a reoccurance in the future.
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31-08-2017
08:56
Evening ladies, Session 2 of radiotherapy today (21 more sessions to go) but had a quick question for those who have been on this journey longer than I. I was told side effects are likely to kick in around session 5-10 but after just one I noticed my boob is quite sore. Not the skin itself but the tissue in general. It was more noticeable when I went to drive to work this morning because the seatbelt laid across the boob in question (over the top of clothes of course) but was just as uncomfortable when I had to drive to the hospital and then home again later in the day. Anyone else experienced that?
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30-08-2017
07:52
My local hospital ask you to pay for the first three parking tickets, which is £3 minimum and then after that stamp them so the car park lets you out without a charge. I guess it probably differs between hospitals as not all of them run their own car parks. Sounds like the lack of available parking spaces though is pretty universal. Most of my allotted times coincide with visiting hours on the wards, which also has to share the same car park as the cancer treatment patients.
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29-08-2017
09:05
Evening ladies, Have my first of twenty three radiotherapy sessions tomorrow ...not going to lie...bit nervous. Have my water and E45 ready....any other tips?
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18-07-2017
11:45
There are a couple of threads on the forum about the Oncotype DX test, covering a wide range of questions and queries but I have one that has not been mentioned yet for all you lovely ladies who have had this test. How did the Oncotype results relate to the NHS predict results? A few of the ladies comments appear to relate to similar details of my cancer pathology and ended up having the chemo but the NHS predict results gave me a high survival rate. My surgeon is using this to predict the Oncotype results to be returned with a low score so Chemo not needed. I appreciate every case is different and other factors like age are taken into consideration but if you happen to know your Oncotype DX score and NHS predict percentage it would be interesting to understand the coloration. Thanks ladies
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12-07-2017
10:14
Thank you ladies. I really struggle between taking his words for good advice and telling myself I need to stop feeling sorry for myself to wanting to ball my eyes out and screaming "you don't understand!" to everyone in my house. Melodramatic, I know, but for one who hates drama, I'm feeling rather dramatic. I wonder if he saw me crying whether he would have rectified what he said. He'd just examined me and walked back round the curtain when I asked if he wanted to see where the pain in my chest is when he said his most comforting words. The BC nurse looked at me and could see I was upset but he'd gone by that point so she made an off the cuff comment about smacking him later for me but didn't seem to recognise how devastating it made me feel despite the leaky eyes. Just bundled me out the door with a comment about some more waiting (now got to wait for the Oncotype DX result to know if I have to do chemo). It just kinda feels that the people closest in my life are expecting me to be jumping up and down with joy right now. I am over the moon that the margins and nodes are clear but feel I'm an emotional mess on the inside whilst have to be a rock for everyone on the outside. Writing that down I guess it's not a total shock that two silly little words may have made my head explode slightly.
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12-07-2017
08:21
3 Hugs
Apologies for the essay in advance I was diagnosed with 34mm, grade 2 Invasive Ductal BC at the end of May. My family took it really hard, I think more so because I'm under 40 so spent a month holding everyone together and being really positive about the prognosis and treatment planned with my WLE and SNB on the 30th June, a week and a half ago. I went back to the hospital today to get the results of what was removed and it was all good news, clear margins and clear nodes. Yippee! Sigh of relief. My surgeon, who is lovely and an up beat type of guy, asked if I was healing OK. Told him the two wounds were healing well, had no problems but had a pain at the top of my chest, under my collarbone which can get quite bad. My surgeons response to that, word for word, was. "Man up!" I appreciate my surgeon hasn't been at home with me over the last week and a half when I've had to just get on with life instead of resting because my husband can't cope with having to do everything I do around the house and for the kids. He's also not seen me in various degrees of pain and tiredness because I find it difficult to get comfortable and sleep. He's also not aware of having to take a trip to A&E with my 14 year old last Friday by ambulance which ended up with both of us staying in overnight (in the stress of it all I forgot to grab my pain meds so had to be booked in myself so they could give me some paracetamol in the hospital while treating her) but the one thing I mentioned, the one thing that wasn't on the list of pain to expect.....and he tells me to man up like I'm a hypochondriac. I wont lie, it made me feel stupid and like the inners of a babies nappie. I appreciate most people will presume I'm being over sensitive and that he meant it in a jokey manner, like my husband, but since this whole journey started two and a half months ago, I have never felt this low. I don't want to sound ungrateful for what he has done but I figured some of you lovely ladies may understand the blow that it was. OK, rant over. Sorry about that.
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18-06-2017
06:53
No he hasn't. He's trying to be supportive with telling me to do whatever I need to do to for me and my family, which is great but I'll make sure he's doing all the official stuff he should be doing too. You ate a fountain of knowledge as ever Ladybowler 🙂
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