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Kjbuni
Member
since
29-05-2017
30
Posts
4
Hugs
24-10-2018
09:05
Oh yes please, I’ve had lipofilling which has taken the coldness away but it’s still so firm. Still unhappy with the implant so would be good to hear some pros and cons. Hope your song well xx
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24-08-2018
12:05
Cut a long story short, I wanted a natural reconstruction at the time of mastectomy but told it was not an option in May 2018. Yesterday at appointment for lipofilling consultation, my consultant has said I could have the implant removed and go for a diep flap reconstruction now... I’m so confused 🤷 ♀️ I don’t know what to do! My lipofilling is due 18/9 or I go on the waiting list (up to 12 months) for the removal instead. Has anyone done this??? I would reallly appreciate anyone’s advice or recommendations on this. Thank you
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14-08-2018
10:51
1 Hug
Hi, I had the mastectomy then immediate reconstruction with temporary implant (full size). Mine was 8cm and high grade and I’m a c cup. I was not asked or offered radiotherapy at any point. Results came back saying Invasive cancer was found and even then just given Tamoxifen. Go with what you feel is right for you and stick to it. I’m still battling in with recovery 16 months later and requiring more operations yet so I wish I had stuck to my original choice! Good luck x
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01-08-2018
09:43
Hi ladies, been a little while since I've been on here but struggling to cope at the moment. Like you here, I have been given a 'holiday break' from tamoxifen for 6 weeks back in May, then I had genetics to deal with. Surgeon won't decide on anymore treatment until genetics confirm risk as believed to be high risk until conformation from blood test. I have now received the genetics and I am not a BRCA carrier but at moderate risk with the recommendation I take tamoxifen! I see the surgeon in 2 weeks but I'm confused he was talking about risk reducing sugary but due to the moderate risk, I don't think he'll talk about it now. I have had mum wit b/c in her 30's and died at age of 50, sister in her 30's gene carrier, another sister recently diagnosed with lobular in situ and me last year extensive high grade DCIS which had become invasive (mastectomy). I am convinced I want to have the other side gone now to save me from the 17-29% risk but don't think my consultant will agree. He's not been the best throughout but I need to have a case to present to him. Does anyone have any advice or help for me please? I know it's a big thing but I just want to get on with my life without tamoxifen and I can only do this without the breasts! I'm really anxious at the moment. Thank you you in advance for any support xx
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27-11-2017
10:12
Hi Sarah another, I have had mx and immediate reconstruction after high grade DCIS. Results also showed small invasive. I trusted my consultant very much until his conducted was thrown in the air by a Ward manager. Unfortunately blamed consultant for something. I ended up speaking to his secretary and then he called me in to sort the uncertainties out. Maybe this could be an option. I'm glad I was given choice as like us all, we've been through enough! Hope that makes sense. Good luck x
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09-10-2017
08:38
Hi Smorg, It's good to hear when others are doing so well. As for the tight chest and uncomfortableness, I certainly went through that stage and the more I started to do things the tightening happened. It does get better but I keep being told it's a slow process. So I would say it's normal. I hope this helps. 😀
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06-10-2017
12:29
Riversidedawn, thank you so much for taking the time to respond. Certainly by your experience the next surgery is going to a breeze. Think my consultant was having an off day with me as normally he's so much better. X
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05-10-2017
07:45
Thank you Yvie178. If you don't mind me asking how long were you off work? Was it day patient or overnight? Sorry for the questions but I am just going to start a new job on Monday and can't really take time off so soon.
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01-10-2017
12:04
Hi, post mastectomy and wondering if anyone has had the following as I'm being sechduled for more surgery and to be honest, I'm worried. Consultant wants to preform the following ; expander implant removal and replace with a permanent silicone, lipofillimg from stomach to breast and mastpexy of roughly 3cm on the other breast. This will be preformed as a day patient and I'm slightly concerned as the pain after the mastectomy, adm matrix and expander implant (80%) filled in surgery, was so painful and hospital didn't control pain relief very well so I'm very worried about this next stage. Get the feeling the consultant is happy with the aesthetic look and told me recovery is 12-18 months but the feel of it is so horrid and it's really affecting me. Does anyone have any idea of how long these procedures might take and the actual recovery to be pain free and start to do things again? Appreciate any help or advice anyone has 😀
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30-09-2017
08:38
Hi, post mastectomy and wondering if anyone has had the following as I'm being sechduled for more surgery and to be honest, I'm worried. Consultant wants to preform the following ; expander implant removal and replace with a permanent silicone, lipofillimg from stomach to breast and mastpexy of roughly 3cm on the other breast. This will be preformed as a day patient and I'm slightly concerned as the pain after the mastectomy, adm matrix and expander implant (80%) filled in surgery, was so painful and hospital didn't control pain relief very well so I'm very worried about this next stage. Get the feeling the consultant is happy with the aesthetic look and told me recovery is 12-18 months but the feel of it is so horrid and it's really affecting me. Does anyone have any idea of how long these procedures might take and the actual recovery to be pain free and start to do things again? Appreciate any help or advice anyone has 😀
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30-09-2017
08:21
Hi, i was diagnosed in April with high grade extensive DCIS (8cm), which was over 20% of the breast. I was not given an option but advised I need a skin sparing mastectomy. Post surgery they also found invasive cancer and my only further treatment is Tamoxifen. No radiotherapy as they have taken everything away so no need. Hope this helps you. 😀
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27-08-2017
12:11
Hi Munchkin, I see why yours have changed due to chemo. Fingers are crossed your at the end now. I haven't had to have chemo or radiotherapy as they just preformed a mastectomy with reconstruction and now waiting to go back in for permanent implant rather than expander. I don't know how tamoxifen will affect me fully yet but have been told I certainly need to take for for 1-2 years before any alternative will be discussed. I'm 47 so not much younger. The hot flushs have calmed down and general im a lot warmer person than I used to be. Xx
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26-08-2017
03:50
Hi Munchkin. Hope your recovering well and not too painful? My doctor never even asked me about periods before taking tamoxifen. I saw him 2 weeks ago after 30 days of taking it and he mentioned how was I coping with it. I'm wondering if this is a question I should be asking? I'm still regular as clock work so no sign of stopping yet. So wondering what the connection is. Xx
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17-08-2017
09:35
Sending a virtual hug. I know it's a tough time and everything happens so quickly that your feet don't touch the floor. Your entitled to have down days and I keep being told more to come! Hold in there and the hug will come. X
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17-08-2017
04:37
Hi Tattyed, Sorry your not getting much rest and support but I know this forum has been invaluable to me so I hope it can be to you too. I know your concern very well. I had right hand mastectomy with ADM immediate reconstruction, Sentinal node and expander implant and like you I was still in some pain after weeks. The pain did eventually subside to more of a discomfort. Please don't worry as your surgeon would have said something if there was anything to worry about. Everybody is completely different and pain effects us differently. As for looking at the scar, I still had dressings on for 4 weeks and then sterile strips for a further 8 days, it takes time to adjust and feel. Sending positive wishes and you'll get there.
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14-08-2017
11:34
Hi Munchkin, I had mastectomy with immediate ADM reconstruction with expander implant in June. I saw the consultant on Thursday and have spoken about replacing the expander as the uncomfortableness is terrible at times. I also get sways of tightening and sharp pains and I understand in my case it's due to the expander. We have spoken about replacement implant and it is suppose to be much softer. Next appointment I go on the waiting list. I never thought I would do that 6 weeks ago but now it just needs sorting. Sorry this is a late response and I hope your sorted and it has settled down for you 🙏
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25-07-2017
08:43
Hi all, 5 weeks today post mx with immediate reconstruction. I have had a expander implant and find it still to be so uncomfortable! Does the sharp, hot pains go? I can feel the edges of the implant and the port is huge sitting on my ribs. The tightness feeling is getting less but still happens a lot. When does this stop? I know I should be grateful that they caught and removed but this uncomfortable unpredictable pain is getting me down. Is there light soon or do I need to agree to have a permanent implant to stop this? Hope your all doing well. 😄
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08-07-2017
10:04
Thanks very much ladies. I've decided to take it around 8am and will just have to manage it. It was a bit of a shock and wasn't something that was a possibility originally. Mind that's the way the whole thing has gone. Upwards on onwards for recovery. Good luck and positive thoughts for us all xx
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07-07-2017
11:18
Hi all, I'm 17 days post mastectomy and went for results today to find that DCIS was aggressive and extensive and they have found invasive (tiny) so I have been given Tamoxifen for 5 years. It's lovely the support on this group and has helped me through and continues to do so. I hope all your questions have been answered. I'm asking is there a right time to take it as I've been advised to decide Day or night taking it but needs to be same time everyday. Can you say how long it takes fir the side effects to take hold? Thank you so much and I hope you guys are all strong and positive xxx
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