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Ladybird2
Member
since
30-05-2017
15
Posts
5
Hugs
10-03-2018
09:08
2 Hugs
Morning lovely ladies and thanks for your continued support. I'm amazed how my cat Toby has hardly left my side since Ladybird left for the hospice. He really is missing her. Sadly she's too poorly to take him to see her now but the hospice has no problem with pets going. Good luck everyone Chris xx
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05-03-2018
05:16
1 Hug
Hello Ladies Just to say my wife Ladybird has gone into local hospice after the scan showed lesion in her brain. She is very comfortable and well looked after by dedicated staff. Good luck everyone and thanks for your support over the months Chris X
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08-01-2018
11:27
Morning ladies, it's that man again! My lovely wife Ladybird is suffering from great pain from her knee. It has been swollen up with Bursitis for three months or more but without pain until this week. She saw onc on Friday and he has put her forward for bone scan and ct scan but that could take weeks. Had anyone had similar pain? She's on Fulvestrant and Denosumab and nurse comes tomorrow to inject both these at home. She cant walk without help and the pain is awful to see. She has pain patches and other painkillers but can't take ibuprofen because of clash with Lithium. Any suggestions gratefully received. Chris x
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30-11-2017
05:42
1 Hug
Thanks Moijan I've passed on your suggestions and kind wishes to my wife. Apparently her spine has been in a bad way for almost twenty years. She has been in and out of wheelchairs and has recently been provided with a Zimmer for use in the house. I guess the bc treatment has just made things worse. Surprisingly her long term depression has improved recently! Her feet are puffed up with fluid and the water tablets don't help her incontinence. She's been booked in at a local daycare hospice so maybe they will reduce her pain. Despite all this we still manage a laugh and tell ourselves we've passed our alloted span by three years and try and enjoy life as much as poss! Chris Xx
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26-11-2017
09:23
Hi Moijan My wife Ladybird has been put on Fulvestrant recently. She's getting a lot of leg pain but has always had pain when on Letrozole too. Even before the bc she had leg pain probably from trapped spine nerves. No pain no gain? Let's hope Fulvestrant can slow these pesky blighters down. Chris
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26-11-2017
08:58
Hi Srilata My wife Ladybird has just gone on to Fulvestrant after two and a half years of Letrozole. She has a lot of leg pain but no more than she had with Letrozole. In fact she has suffered with leg pain for years probably caused by trapped nerves in her spine! Her mets are in her pelvis and hips. The injections themselves caused very little discomfort and so far all's going well. Good luck Chris
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29-10-2017
06:07
Ladybird's had her morphine increased at the suggestion of the Macmillan nurse. I have to supplement her pain patch with a syringe of liquid morphine. Early results appear to make her dopey...I hope this will improve as the pain is still troubling her. Never a dull moment! Chris(topher) X
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26-10-2017
06:10
Thanks Moijan and Carolyn The Macmillan nurse is coming tomorrow to go through the options so we'll see if there's a magic pill! Luv Chris
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26-10-2017
09:11
1 Hug
Poor Ladybird's in pain. The worst I've ever seen her with. She had a radio zap to the pelvis after Letrozole stopped working and she has been crippled with pain in hips and legs ever since. She goes for buttock injections again on Monday and Denosumab at the same time. Sounds like a fun day out! Her leg pain is bad first thing in the morning and gets better as the paracetamol kicks in. You are not alone! Hugs Chris.
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13-10-2017
11:05
Morning ladies Just back from another visit to Christie with Ladybird. She has now been taken off Letrozole cos more tumours have appeared on spine and hip area. They have put her on Fulvestrant injections and suggest some radiation. Letrozole worked for 2.5 years but now seems to have run its course. Anyone here on Fulvestrant? Love to all you ladies. X Chris(topher).
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15-09-2017
04:51
Hi ladies Just checking in for Ladybird. We saw onc today and he said mets were stable in femur and pelvis but something now showing up in a vertebrae which needs attention. Suggests we see another onc at Christies who specializes in this and he will probably change her from Letrozole to another. Mentioned radio which didn't go down well. Ah well off we go again! Good luck everyone. X
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25-07-2017
09:51
Morning ladies Hope you are all coping well! Ladybird's is really suffering with leg pain recently and also has grown a tangerine sized lump on her kneecap! The gp has booked her in at Didsbury Spire Hospital for a scan on it. Dr said local NHS hospital would take too long. It appears to be a bursitis type lump but has been there for more than two months. Anyone else had similar? Take care Chris xx
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05-07-2017
04:01
Hi ladies Just checking in. No problems with Ladybird other than bad leg pain and pudding feet still. She spends a lot of time just resting on the bed watching the birds on the feeders through her window. Funnyly enough they are tits! Last weekend we let our daughter and family tow our caravan to south Cheshire for the weekend. They really enjoyed themselves although it was a bit sad for me as it signalled the end of caravanning for us after 45 years. Not being able to walk far is our big problem and Ladybird feels unable to stay in b&b's due to her dodgy bladder.:-( Hey ho things could be a lot worse! Good luck everyone Chris.
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05-06-2017
01:00
Hi Janette ,wondered where you had gone! We had the same problem with password and when we sent for a new one it never arrived! Hence now Ladybird2. Chris
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03-06-2017
09:13
Morning ladies, good to be back online after forgetting password. We are now registered as Ladybird2 as ladybird1 has flown away home! Anyway we have been keeping up to date with all your trials and successes and reading the various comments gives us the warmth of not being alone. Good luck to everyone, Ladybird is coping well but has severe leg pain still and it stops her getting out so much. We're told the pain is from her spine and not sbc. Good old Letrozole and Denosumab are still doing their job! Love to you all Chris x
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