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Bolly
Member
since
11-06-2017
40
Posts
16
Hugs
29-06-2020
08:40
2 Hugs
Thankyou so much for your reply,it means a lot,you are right it is better to be safe than sorry and I know my Oncologist is uber cautious with things,I think the delivery of it made me worse and made me panic.I was at my appointment and had been told by one nurse that my bloods and creatine were fine and then 30 minutes after,another nurse appears to tell me that I need a ct scan because my bloods are out! So it was very confusing which made me feel worse and very panicky.i do feel a lot better now and I am just telling myself that my Oncologist is being careful and trying to take it one day at a time, Thankyou for your help xx sending love and hugs xx
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26-06-2020
04:59
I had Breast Cancer and all my treatment in 2017/18. I found that yoga was really helpful as I did suffer with hip pain a lot, On YouTube there are some really good videos for patients with Breast Cancer/Bone Pain. I take calcium and cod liver oil supplements as well, Also my local hospital did complementary therapies and I went for a massage every week for 6 weeks,which really did help a lot, I take Tamoxifen and have Zometa infusions every 6 months, I did find that the hip pain definitely does get better,try and keep moving as much as possible, even gentle walks, Sending a big hug to you and your wife, Best wishes xxxxx
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26-06-2020
04:53
1 Hug
Hello everyone, I am currently having Zometa infusions every 6 months.I had Breast cancer/chemotherapy and Radiotherapy in 2017/2018. I've just been for my latest infusion this afternoon and when I got to the day ward,the Nurse told me that my Oncologist wants me to have a ct scan as my last lot of bloods were slightly out.Of course,that was me panicking and worrying that something horrendous was going on,the cancer has come back,etc. I then spoke to the Oncologist on the phone,he said he was querying my protein and calcium levels and needed the scan to make sure all was well but now I am in that vortex again of panicking and worrying and feeling like I'm holding my breath, I am 48 and I have not had a period for 3 years,I have hot flushes,so am wondering if it could be a menopausal bone problem? Someone else mentioned that gall stones can affect bloods? Of course I am thinking the worse!!! It helps just to talk to people on here, Any help or reassurance would be gratefully received Thankyou and big hugs to you all xxxx
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13-11-2019
06:21
I know what you mean and I'm exactly the same.It will be 2 years since my Mastectomy on Nov 21st.I had 4 weeks of Radiotherapy after that and had 5 months of Chemo before my surgery.I then had months of therapy appointments and am still having check ups and 6monthly appointments on Oncology day case for calcium infusions.I feel a lot better and my energy is coming back but I suffer with fatigue and bone pain and every single day I worry about cancer coming back.I think your body never really recovers from all the treatment and there are days when I'm more scared now than I was when I was originally diagnosed!!! I think I feel that there is always something stood behind you and you are constantly looking over your shoulder.I had terrible Indigestion yesterday and was having a day of my back aching as well,I couldn't sleep last night for thinking the cancer had come back and was so stressed.I think you have to try and do a bit at a time,try and distract yourself and not let the fear suffocate you,easier said than done,I know!! Look after yourself and dont panic. I KNOW what it feels like.The fear is worse than the cancer.Im thinking of you and sending lots of love xxx
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07-04-2018
06:40
Hello Everyone, I finished my Radiotherapy on February 19th and had a cough all the way through it,due to my husband being full of flu and very kindly passing his cough on to me. The cough did get better but I feel now like I have got another/different cough. I can go for hours and not cough at all,but then I feel like there is something sharp sticking in my throat and I end up having a coughing fit-then I feel like there is water/fluid sloshing around in the base of my throat.I am still having physio on my arm and chest-I have had a mastectomy-and the cough is always worse for a couple of days after physio. I wake up in the night coughing as well,although some nights are worse than others. I know this all sounds random and a bit bizarre but I was just wondering if anyone else was like this following Radiotherapy? I saw my Oncologist on Thursday and he said he was sure it was just normal following the treatment,but sent me for a chest xray(not had any results yet) and is going to send me for a CT scan and bloods. He then said he will see me back in clinic in 8 weeks, The cough is not productive and I am not breathless. Other than the cough I was actually starting to feel better but I now feel like I am in the vortex of being catatonic with worry AGAIN!!! I know you are always looking over your shoulder with Cancer-you are always worrying that it has spread, It just helps to talk to people on here, Thankyou so much to everyone Best wishes xxxx
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06-01-2018
09:15
I had my mastectomy on November 21st and am waiting to get a date for Radiotherapy.I have been doing exercises (the physio came to see me in hospital after my op) but have started going to actual appointments at the Physiotherapy department at my hospital this week-after my breast nurse referred me. I had the sensation of water trickling down my ribs up to about 2 weeks ago-and still feel numb in my armpit and down my right side-which is very strange.I get funny nerve pain twinges where my scar is-and have to be careful getting dressed and I cannot lie on my right side at all,it is so stiff and painful.The mobility does get better though,every day it does get easier and it is hard to see it sometimes,but I think"well,this time last week,I couldn't do this",etc. Every stage brings new challenges and I think the mental side of dealing with Breast Cancer is often so much worse than the physical (and the physical is bad enough) Take it as it comes and be kind to yourself, Do what is right for you, Lots of love xxx
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23-11-2017
09:00
2 Hugs
Hi! Hope you are doing ok. I had my surgery on Tuesday and came out of hospital yesterday-I have the same sensation of trickling down my side. My arm is a bit numb and my drain is still in. It is so hard getting a balance between being frightened to move your arm at all and not over using it or making any sudden movements because you forget to be careful!! Wishing you all the best, Take care and hope you feel much better soon Xxx
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14-08-2017
06:33
Hiya Sue C! I didn't know how I was going to feel before my hair started falling out.It started to come out after about 10 days after first chemo and took about 2 weeks.It has stopped now and I am practically bald-just a very fine thin layer left on top of my head. I must admit it did freak me out when It started to fall out.It took me a while to get used to it. I have now just had Chemo number 3 and have got 3 more Chemo's to go and surgery. I had thick blonde curly hair and to be truthful have found it hard to lose my hair but I know it will grow back and am determined to stay positive-at least I am still here-albeit bald! When I was diagnosed I just thought I wanted to keep all my options open-and you never know what you are going to feel like on any given day-so,I bought beanie hats,headscarves,thick elasticated headbands,a baker boy hat and I used my voucher for my wig. In the house I usually just leave my head bald-I think its good to let your scalp breathe as much as you can-but sometimes I wear a headband(so very comfortable-I love them)or a headscarf. When I go out,I usually wear my wig,or a beanie hat or a headscarf-sometimes a headscarf and a headband together. I just think that the more options you have sometimes the better,as you don't know from one day to the next what you are going to feel like, Sending you lots of love and positive thoughts-you are doing great and together we can help each other and get through this xxxx
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14-08-2017
06:17
I went on a look good feel better session last week at the Macmillan Unit at my hospital and it was fabulous.There were 9 patients and 6 Beauticians-we all had a great time-lots of really great advice and practical help with make up and hair/scalp care.How to make you feel like you still had some control over what you were going through-how to give yourself a little bit of confidence-we got fabulous goody bags full of really great products.Also because the hair loss was the biggest beauty issue,there was lots of great advice about caring for your scalp-and your hair when it starts to grow back. It was a real boost and a lovely afternoon - well worth going and highly recommended-Anyone who gets the chance should definitely go and join in !! Sending you all love and hugs X
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02-08-2017
01:24
Hiya! It is my Chemo arm,but thankyou for the advice-rang and checked with Breast Nurse-it is fine and is a normal side effect apparently Thankyou and big hugs xx
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26-07-2017
08:57
Wishing you all the best-remember you have made the first positive step by getting it checked out and the second post step by coming on this forum. Try to not think ahead too much(I have been there-it is not easy)by taking it a day at a time.It will get sorted and you will get help to deal with whatever it is-and the help on here is amazing for every situation. Try to keep busy and distracted-do as much "normally " as you can(read/watch Tv/clean the house,do whatever)! If you start to panic and your mind runs away with you-post a question on here-It really helped me anytime of the day and night-reading through the forums were such a big help, The most important thing is for you to know that whatever your problem turns out to be,you are not alone and and you are taking the first steps to deal with it and it will get sorted! Sending love and hugs and wishing you all the very best XX
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25-07-2017
07:05
1 Hug
Good luck-love and big hugs XX
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25-07-2017
08:18
Hello I have just had second chemo and have got a sore right forearm-very stiff but not too painful-it is just that somedays there is always something new! I have read about vein pain and sore arms and was expecting this but wondered what anyone else does about it? Many thanks X
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25-07-2017
08:04
1 Hug
Hello! I know where you are coming from.I have just had 2nd Chemo on Thursday and my hair has been falling out for nearly 2 weeks now.I know what you mean absolutely feeling freaky.It freaked me out more loosing my hair than the damage the cancer was doing to my breast!! Everyone sees your hair-only your husband and Doctors see your boobs! It is the strangest feeling and when it started to fall out I had a major wobble-and I am trying to be so positive.I have thick curly hair normally and now I am nearly bald. I keep telling myself that it is only temporary-a means to an end,it wil grow back and I am getting my wig this week.I have also bought a few headbands/beanie hats and scarves.When my started to fall out my scalp was so itchy and I was very headachey-broad elastic headbands really helped.My Oncologist told me to use Simple shampoo as well, There is no easy way to deal with any of this but Thankyou to everyone on this forum-coming on here and talking to you all really really helps xxx Love and hugs and positive thoughts XX
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23-07-2017
05:21
1 Hug
I agree! We have to take whatever we are entitled to-At least it is a little something less to worry about,especially with all the meds we get prescription.I got my exemption certificate last week-the breast nurse told me to tell my GP,who sorted it really quickly xx
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14-07-2017
07:15
Fabulous news JoJo!!! Wishing you all the very best, Love and big hugs X
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08-07-2017
06:41
I am from Blackpool and my voucher is for £90.My friend is having Chemo in Liverpool and her voucher is £120,so it varies from Trust to Trust XX
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07-07-2017
08:55
Hi JoJo Waiting for results is the worse bit-I had imagined every scenario possible and was absolutely certain that I had two weeks to live.Your mind just goes off on its own and the panic consumes you.This forum is brilliant and coming on here helped me so much-I cannot put it into words adequately enough.Just try to take it one day at a time-not easy-but I had to learn how to do that or I would have gone mad.Try not to overthink or let your mind take over because the panic is horrible and you just do not know WHAT to do with your self.Keep busy-read/clean the house/tidy up/watch TV,I did anything to keep my mind occupied.Remember that you are in the best place and whatever it is,something is being done to help you and treatment is so so good. Keep your chin up and lots of love and hugs xxx
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04-07-2017
10:29
1 Hug
Hello! This forum is fabulous and I couldn't cope without it-the support is amazing and no question is too silly-everyone knows what you are going through.My Breast clinic was brilliant and the staff are amazing.Mammograms are a bit uncomfortable but ok-Biopsies were not painful as I had lots of anaesthetic but just uncomfortable and a bit sore afterwards. Keep positive and just take it as it comes-not easy-I had to learn to slow my thinking down! Keep coming on here because the support is fabulous! Wishing you lots of love and good luck, Xxxxxx Big Hugs X
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