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Fiona2901
Member
since
22-06-2017
64
Posts
9
Hugs
13-09-2019
09:05
Well Ladies I went down for the surgery in July and woke up in recovery to find out that the procedure hadn't happened. The surgeon was very abrupt when she came to see me in recovery to explain why she hadn't done the operation. She said that parts of my bowel were stuck to parts of my womb, there was endometriosis, showed me some photographs, said something about bowel prep and the need to be referred to another hospital within the Trust and then she she was gone and I haven't seen her since. I was sent a letter explaining the findings of my failed procedure but there was so much medical jargon I didn't have a clue what it was telling me. To cut a long story short I have complained about the whole thing and eventually got an appointment at the other hospital. I am booked in now to have my pre-op on Wednesday next week with the operation hopefully on 3 Oct. It will have to be an open procedure and I will have to have bowel prep (which I've taken before for a colonoscopy) but there may be complications such as damage to my bowel/bladder and may have a temporary stoma. The surgeon wanted me to 'ride it out' and not have the surgery as I have had complications from previous surgeries - gallbladder op was changed from keyhole to open during surgery and then with my BC I had an infected wound and then fat necrosis (5 ops in all in 2017). I am in a same sex relationship and have had problems with my periods for the last 30 years but no-one would listen as I wanted 'everything taken away' and they just kept putting me on the pill and then the mini pill. I did go for a scan in 2000 but they found nothing apart from my gallstones which no-one knew I had. Having had BC, did being on the contraceptive medication contribute to my chances of getting it? After contacting my BC Nurse and her discussing my case with my Consultant I have been prescribed Anastrazole for after so it will be interesting to see how I cope with that as I've not had too many issues with Tamoxifen. Sorry for the rambling update Fiona
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04-07-2019
09:13
Good morning Ladies Not been on here for quite a while as I went through treatment in 2017/18 but I now encounter another hurdle to get over and just after some advice. I am having an abdominal hysterectomy with bilateral salpingo-oophorectomy a week on Monday. My surgeon is hoping to carry it out by keyhole and I just wondered if anyone else out there has had the same op? I'm also concerned about the surgical menopause that will follow as HRT isn't an option. Thanks very much Fiona
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24-05-2019
09:11
4 Hugs
Hello Ladies I've not posted since I finished treatment at the end of January 2018. I am having a rough time at work and now await my final case review on 11 June and one of the outcomes is that I may be dismissed on medical grounds. My treatment wasn't as straightforward as I had hoped and was in and out of hospital for the last six months of 2017. Any of you who want a bit of background can search for my waffle from back then. I'm currently under the Obs & Gynae people at my local hospital as have a cyst and fibroids and periods have been heavy and very sporadic since I started taking Tamoxifen. I am limited to what they can treat me with by way of medication as my BC was positive for both estrogen and progesterone. I am due back at the hospital on 13 June - two days after my review. To make matters worse I have a condition called Bile Salt Malabsorption which I developed several years after having my gallbladder removed. In a nutshell my body produces too much bile which then only has one place to go and can strike at any time. With all this I've had a camera up for both areas but with my Bile Salt Malabsorption I cannot leave the house at times. Work have told me that if I have an issue I have to call in sick which in turn stresses me out, which in turn makes the condition worse. They have been fair to me in all of this and I am an Union Member so will get them involved but keeping me hanging on for a couple of weeks with my condition really isn't helping!!!!!! Since my treatment I have started to look at things differently and would love a job change but as my partner is only doing temp work at the moment I am the main breadwinner and changing to something else or part-time won't cover the bills!!!!!!! All in all just feeling fed up so apologies for the waffle. x Fiona
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30-01-2018
09:09
1 Hug
Many Congrats Crocrazy - just keep an eye on your skin. Feeling a bit fed up today as I was back at the hospital yesterday to get my skin checked. I was in a bit of discomfort on Friday and couldn't wait to get my bra off. It got worse over the weekend so rang the Unit yesterday morning, went in and now have a dresssing under my breast and have to wear my bra 24/7 to keep it in place. If I don't get on with the dressing I can go back and they can try some creams but I suppose I am lucky that it has taken this long for me to have any issues. Just a bit frustrating when it was all going so well...... Sorry for the moan Ladies....... Hope everyone is doing OK today. x Fiona
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25-01-2018
08:44
Hi Pate1 I had my lumpectomy in July last year but had to have further surgeries due to infection and fat necrosis and had my Radiotherapy 2 - 23 Jan this year so I wouldn't worry about it too much....
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24-01-2018
07:55
It does feel good Shefgirl, thank you Mishy and thank you Ladybowler for the bells. x Fiona
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23-01-2018
07:04
Good Evening Ladies All done and dusted - see photo below. Thank you all so much for your support. x Fiona
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23-01-2018
10:39
Hi Nuthatch Thanks for that and glad to hear you are doing OK. My skin is bearing up much better than I thought it would considering the issues i've head getting to this point from my initial surgery. I know my skin will get worse before it gets better but keep putting the Udderly Smooth cream on and it seems to be doing the trick. We have a bottle of fizz in the fridge for later but think I will mainly be chilling out this afternoon as we had a very hectic weekend and I'm still feeling shattered after it. Could really ahve done with not being at work today but financial needs must lol!!!!! x Fiona
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23-01-2018
09:23
Well, this is it Ladies - I've finally got here with my final treatment session (no 15) at lunchtime today!!!!!!! Hope everyone is getting on OK. x Fiona
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19-01-2018
06:52
Congrats I don't believe it and hope you rang the bell nice and loud if there was one and enjoy your bubbly and chocs...... Down in the London area for the weekend and catching up with two friends from school whom I haven't seen for ages so it will be nice - we've been friends for 36 years!!!!!!!! Ladybowler - I will keep your comment in mind and the ladies in the kitchen with me have strict instructions from my Dad that I shouldn't be lfiting anything too heavy. Fizz in the fridge ready for Tuesday. Had a rad review before session at lunchtime and all seems OK but if I have any issues with my skin after I've finished then I just have to ring the Radiotherapy coordinator and arrange to pop in and see her so all good. Hope everyone has a good weekend. x Fiona
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18-01-2018
08:49
Hope you get on OK MrsMeow. Session 12 of 15 for me today and doing OK. Skin under my breast is a bit warm and red but mosturising a couple of times a day and then letting it air whilst lying on the sofa watching TV in the evening. No restful weekend for me as helping my parents to run a Burn's Night on Saturday so it's a trip down to the London area after treatment and meeting with nurse tomorrow. Seeing my BCN after my session on Monday morning and then it will be back to work on Tuesday before my final session at lunchtime and ringing that bell. We are going to put a nice bottle of fizz in the fridge tonight so it will be nicely chilled for Tuesday. Hope everyone is getting on OK. x Fiona
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17-01-2018
07:52
Thanks Helena - feel a bit better today and haven't yawned at work yet lol!!!!! x Fiona
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16-01-2018
08:44
Hello Ladies Feeling fed up and flat this morning and can't stop yawning. Slept OK last night and really can't be a***d to go to the hospital this afternoon for number 10. Anyone else felt/feeling like this - just want to check to make sure I'm not going even more round the bend lol!!! x Fiona
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15-01-2018
09:32
Hello Peanut57 I am on treatment session number 9 this afternoon and I am moisturising day and night and drinking about 2 litres of fluid and my skin seems to be holding up OK so far. I too have purchased some Aloe Vera gel from H&B at the weekend and that is in the fridge if I need it. I am lucky as my journey is only about a 20 minute drive in good traffic so I hope you get there OK today. Let us know how it goes and will be thinking about you x
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11-01-2018
11:36
Nuthatch You can always ring your BCN if you are worried about anything and we're all here for you!!!! Sending Big Hugs x Fiona
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11-01-2018
09:09
Hi Nuthatch When I got my list of appointments at the start of my treatment I had two meeting scheduled in with my Oncologist. The Radiographer expalined that this was due to the fact that the Oncologist likes to see you during treatment to see you were getting on. She asked me how I was feeling and examined my breast to see how it was and she said everything was fine - great relief there after all the issues I've had. She asked me if I had any questions and I said about my breast slightly aching so she said that was quite normal and to take paracetamol if needed. She asked if I had any questions about Tamoxifen and I said no as I haven't had any issues with it since starting it in September. She said I would see her 6-8 weeks after the treatment as ended so the same as you there. I see her again a week on Friday when I have just 2 sessions to go. Hope that helps x
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11-01-2018
07:39
Crocrazy - Day 6 was fine and the appointment with my Oncologist was good as well and no issues - yet lol!!!!!! Ladybowler - hope you are feeling better x
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10-01-2018
09:16
Good morning Day 6 for me today which includes an appointment with my Oncologist beforehand this afternoon so I am intrigued to hear what she will have to say. Feeling quite tired at the moment but other than that skin seems to be OK so keeping my fingers crossed it will remain that way. x Fiona
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