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Weemee
Member
since
26-06-2017
41
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9
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05-10-2017
05:14
Absolutely and get sorw near time of new injectoo. Didnt get it this week as calcium to low and i fair miss it x
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05-10-2017
05:06
Hi there thanks for reply girls. Think im in to much of a rush. Its hard not to be. Need to pick myself up and im sure next scan will be better. Thanks so much girlsxx
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05-10-2017
05:02
Hey there this site has been great for me too and has helped me so much. Im on palbocilb and had my fisrt scan and it is helping. My dose is being reduced as my skin doesnt like iand i have a rash. Im allergic to a lot of medication though. On the inspire website most folk tolerare it very well. Ive had no other side effects apasrt from week 3 of cycle i get tired. I am also on examestane which is similar to letrazole. Good luck. Please let me know how you get on with the palbocilb xx
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04-10-2017
07:30
Hi girl's. Got my scan result yesterday. Bones improving as im on denosanab anyway. Ive been on examesten for 4 and half months. Ibrance for two. My onc has told me my breast tumour hasnt shrunk. Deveatated and confused. Has this happened to anyone x
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28-09-2017
10:38
Hi there just to say i have had radiation to my spine it took a full 3 months to be pain feee. Initially was sore and had flare up but is so worth it. Hope this helps xx
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26-09-2017
09:14
Thanks for your reply. Im hoping this has shrunk down enough to operate. I am so worried about my scan and hope lung is clear but you have had lung mets for 4 years i see and that is amazing im obviously deeling quite negative at the moment. Pre scan nerves x
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25-09-2017
05:54
Hi girls. Havent been on for a while due to berevement in family. Just wondeing if anyone has had a mastectomy after being diagnosed with bone mets. Also going for my first follow up ct scan on Thursday x
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25-09-2017
05:45
Hi lori. The ibrance is tolerable vive had no nause or any ither upset apart from a rash. My bloods are ok too. I only get tired on week three but i fee ii an tolerating it better. Just crap that wee need it but hoping it works. Going for first follow up ct scan. I hope you are well on this drug thinkingnof you xx
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08-08-2017
05:52
Girls reading loads on vit d etc. I ma chronib low sufferer. On supplements now. I need to overhaul my diet. Can anyone recomend a good diet book or where i can learn more. Need to cut the refined sugars etc. X
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08-08-2017
05:48
Thanks you and FF for reply. Spoke to my Gp. The suden menopause and side effects from Zoladex arw kicking in. She thinks my incease pain is mostly that. The hit flushed got worse at same time. So mentally and physically screaming. She started me on citalopram. Hoping to recommence Ibrance today and pray skin doesnt flare up. Thank you for your support xx
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05-08-2017
07:04
Hi thanks for reply. Just posted there. Its my week off inrance. Feel so down. Pain is awful. It was so good for 6 days. Now ribs are in agony again. Don't konwo if its not being in the Ibrance and a wee bit of a flare up. How are you on the trial drug. X
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05-08-2017
07:00
Hi girls. Feel so rubbish past few days. Brave fave is beginning to crack. Friends who mean well saying i should tell my kids 22 and 18 about my bone mets. Havent told them as back to uni in one month. I was hopng i could manage to keep it from them to let them pass there exms et c without stress. I know if it goes to my lumgs etc i will have to say. Help. Anyone in this situation or been in it xxxxx
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26-07-2017
04:52
Thanks for your reply. And yes im mad with itch and got steroids cream its dropped my various component of blood work within two weeks. X
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25-07-2017
06:22
Hi there did you have any skin rashes. I have no ther side effects. Will be devestated if i have to come off this. Im on 125. Thanks in advance x
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25-07-2017
06:19
On 1st cycle. Have a dreadful skin rash spots and weals. Will it settle. Seen BCN today and shes not sure about it as its a new drug. Im on 125. Hopes it will settle down. No other side effscts though xx
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20-07-2017
02:15
Hi there im so sorry that you have been diagnosed with SBC. I am thw same. Two months ago was my first diagnosis and mention horrific back pain on and off for 2 years. Prob my job i was told. But now ibhave extenve skeletel mets. My kids in uni and im worried about them too. I am clinging onto my er pr positve her neg status. I have been to my local cancer counselling centre. Im now on ibrancre denosamab and aromasin. Just devestated and fearful of what is round the corner. Im hoping that will chane as many girls on here been about for a while. Hoping for a cure in my time. Thoughts with you and your family x
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09-07-2017
06:22
Girls does anyone get intermittent nausea with denosanb. Just got injection last tuesday. Its like morning sickness. Awful. Fets worse through out day. Also pain where mets are arw so sore. X
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