Breast Cancer Now Forum

Hi AnnieJ. Ooh! Thanks for the redirect. I'll have a look at Beemsters post now. I have stage 3 grade 3 invasive lobular cancer. My oncologist says he's happy for whatever decision I make. My surgeon understands that I want the double mastectomy even though only one breast and nodes on one side are affected so far and he is happy to do it. I'll also have a Google for nhs predict tool. I've not heard of it before! I've got a few months yet to make any decision so want to make it as informed as possible and this forum has been unbelievably helpful so far! I would be lost without all you ladies!!!! Thank you! 🤗 xxx ... View more

Oooh... I'll do that. Thank you! X ... View more

Hi Nik Nic. I can say that the waiting is THE WORST! I was convinced it had spread to my brain, bones and god knows where else! I have stage 3 grade 3 lobular which has spread to my nodes on one side. I was so relieved when my ct scan came back clear for my fleshy bits but it did show a growth on my hip bone which will be monitored. I'm having chemo first and then double masectomy (even though only one is affected i want them both gone!) and then rads. Although it was nerve wracking being told it would be chemo first, at least I know that my whole body is being treated rather than surgery just targeting the affected area. I was assured by all the lovely ladies on here that although we think it's spreading like wildfire during this waiting period, it really can't grow that fast. But I did feel completely out of control and so changed my diet to be extra healthy and cut out any junk that could possibly feed the cancer. Knowing that I was doing everything in my power certainly helped! But I do still cry, shout and scream when I can get away with it. I mean damn it, we have cancer after all! This is the hardest bit and you will get through it. I'm 5 weeks since diagnosis and 2 sessions into chemo and although the side affects are gnarly, I frequently vomit in public and am now avoiding what may be any mild British sunshine by hiding my bald bonce under floppy hats; I feel much better knowing now that although it has spread, I know where it is and I'm kicking its arse. Better the devil you know. You will beat this. WE WILL BEAT THIS. Xxx ... View more

Oh gosh I was wondering something similar! My arm on my BC side seems achey all the time. I know my lymph nodes are involved but as my husband pointed out I am right handed and always use my right arm for juggling cooking in the kitchen and carrying the kids round the house. So he thinks I've just pulled a muscle and am obviously just concentrating on it more now I know that there is cancer there. I think psychosomatic symptoms are a definite! Hope your pains aren't too bad! Xxx ... View more

Hi Cara88. I am little bit older than you at 34 and I have had 2 children already. I did want more but was told after my diagnosis that they wouldn't wait for me to harvest any eggs and that they wanted me to begin treatment straightaway. Also as I was positive for oestrogen, they said that the process of treatment could speed up rumour growth. But I wanted to tell you about my friend. She was diagnosed with cancer at 29. She delayed her treatment for a few weeks so she could go through ivf and have some of her eggs harvested. After 12 rounds of chemo, over 30 rounds of radiation, being told that the cancer had spread elsewhere and then being told she had gone through the menopause, I remember her being in dispair. Then she was given the all clear. Ecstatic and newly married (that was one heck of a wedding!) She started feeling ill again. A mate dragged her to the doctor with her terrified that the cancer had come back only for her to find out she was pregnant!!!! Two years post chemo, surgeries etc. And she was nearly 4 months pregnant! I've since met 2 more girls recently who have had similar stories and all who are around their early 30s. My friend has 2 children now aged 10 and 8. She parties like a trooper, lives life like crazy and is the best mum to her kids. She also still has 4 little embryos in a freezer in a london hospital which she keeps paying rent for because she likes to say "just in case". I really hope your wedding is a fantastic day. I see you posted on here in June so you must have only a few months left of wedding prep to go. I really hope it's all working out for you. Big hugs. Xxx ... View more

Hi Jelly. I'm 34 as well but not on letrozole.... yet. I've got lymph mets and being investigated for bone as well as the ct scan showed a growth on my hip. I'm having the neo adjuvant therapy so chemo first and then mastectomy and then rads. I hope the side effects aren't too bad. I've not looked into what medication I'll be on post all of this but it has reminded me that this all really will be permanent and life changing. Pardon the swearing but it really is crap isn't it? Can I ask how your oopherectomy went? My surgeon briefly mentioned it to me but I wasn't really listening at the time. Is it to limit hormone production? Xxx ... View more

My mate has bought me a puzzler magazine. She reckons that half hour trying to solve a cryptic crossword will be enough to get me nodding off! Cheeky mare! Luckily my mum has planted some lavender in my garden so I'm going to ram some of that in my pillow Anniej. Also going to try eat some carbs. 😊 Here's to hoping for a few extra hours tonight! Thanks all for the advice! Xxx ... View more

So after some googling hubby popped to the shop and got some Tescos own brand Nytol. And it did the trick! I managed a whopping 4 hour stretch of sleep last night! HURRAY! Xxx ... View more

It's worse with the steroids but seems to be pretty constant. I mentioned it to my oncologist but had such a list of other side effects that the sleep issue went on the back burner. Am trying sleep hypno videos on YouTube as I type. Fingers crossed! I'd love just an hours kip! Xxx ... View more