Hi, I was diagnosed with bc in December 2015, decided upon a mastectomy with immediate Diep reconstruction. Commenced on Letrozole with Adcal following Dexa scan. I feel that I have been started on this medication without any idea of what monitoring needs to happen throughout the duration of this treatment. My Gp wrote to my oncologist to obtain some clarity for me at the start of this and didn't receive a particularly helpful reply with 'regular' as her response. Before I was diagnosed my lovely dad was diagnosed with stage 4 stomach cancer, so as you can imagine my head was all over the place. Eighteen months on I feel very anxious about every new lump , bump and pain, especially as a work colleague was diagnosed totally unexpectedly with stage 4 breast cancer many years after her initial diagnosis and treatment it is in her brain, bone, lung, liver. It has totally knocked my confidence for 6. However it has made me very aware of recognising any new symptom that I have which over the last 3 months or so has been hip pain, both hips worse on one side. I have been to see my Gp and requested an earlier Dexa scan, only by a couple of months, which I had recently. I was advised by the radiographer to phone my Gp to obtain results in 2 weeks, however within 4 days I had received a letter last week from my Gp requesting me to make an appointment...... the earliest one available is tomorrow. As you can imagine I have been fraught with worry and I have been unable to obtain an earlier appointment, the pain is persistent ache, not caused by any activity and is present even before I get out of bed in the morning. Sorry i neeed to get that off my chest, tomorrow can't come soon enough. I wonder what monitoring of treatment is offered, I need some guidance on this, I feel that I am left monitoring my own condition which I know we all have responsibility for , but if I am some idea of what's pathway is suitable this would make me feel more in control. If I didn't go to see my Gp, I am sure that nothing would be done. I hope that somebody can help me. 🌷
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