Breast Cancer Now Forum

So glad you had such a nice surprise party meal Cathy - keep party treats going now for the full 2 weeks! X ... View more

Didn't need the shovel and the biggest problem driving home was the sun in my eyes - weather cannot make its mind up! First rads booster done today which took much longer but was fine am so glad only 3 to go. Resting up tonight as has been a busy week - in the car we listen to dramas and podcasts when we are not listening out for travel updates. Have you found the podcast 'Fortunately'? Is fun - and me and Mr Meow for years have been following Home Front on radio 4 - there are over 50 omnibus episodes online so that will cover anyone's rads trips - we have gardened to them with headphones on for almost 2 years is like a long running soap opera. Final recommendation is the radio 5 live podcast Beyond Reasonable Doubt if you like true crime stuff is great. (I am only allowed the Archers if am in the car on my own so less said about that the better) and I like music too any local radio up to date stuff - YD has a partner who is a radio and club DJ so I have to try see what is current or I sound like a dinosaur. Hope you all get some r and r this weekend and the rotten symptom bingo behaves take care everyone xxx ... View more

Morning - goodness you ladies are going through some stuff - you are all amazing Ali how is your face now? And Cathy sorry you are facing another op you sound stoic indeed it has been a rollercoaster for you - my second op last year allowed them to clear my seromas more fully so maybe your grapefruits days are numbered... Jo fairy and Ck hope you are getting some you time - we are off on our usual snowy rads run in a few minutes - packing a shovel flask and suitcase - looks like the Winter Olympics here - glad got warmed up by having a curry night with my ED who is back from India and we spent the night looking at her photos last night - lovely Take care everyone and keep cosy x ... View more

Hope you got on ok Ali and there is some relief for you and Fairydust hope you are feeling stronger too and the SE have not kicked too hard. Cathy fingers crossed for tomorrow - seromas suck big time I really hope yours bogs off soon - and that your day tomorrow brings excellent news. Remind me what cording is? I have a red vein with a 'dent' all along it from the epirubicin in October - is this anything like cording? Sorry am being dozy. Yes I have the 10 year plan for letrozole but haven't been able to start it yet due to the myalgia post-chemo - and due zometa for the bones the week after rads finish then will start the hormones the week after that - not sure when to celebrate treatment finishing as it seems to lurch from one thing to the next. Jo my eyelashes are starting back and this has meant the end of stingy eyes for me not sure if related but hopefully you will be the same when everything grows back. Have a lovely evening all - I have a day off rads tomorrow whilst the machine is serviced - a lovely lie in! x ... View more

Ali your poor face - sounds so sore. Hope you get some relief tomorrow- can they give you antihistamines or something? I had a face rash ages ago that got into my eyes and most of my skin on my face peeled off despite buckets of steroids and antihistamines- it righted fairly quickly though with no lasting scars - but I know when is icy cold never to rub my face or eyes as for me it was the icy weather that kicked it off - yukky for you though - sending big hugs xx ... View more

Jumping back to say hi - as an interloper as am now three quarters through rads - cant believe only 1 treatment and 4 boosters to go. Fairydust well done you for getting this far and still holding yourself together you have had an emotional time - and Cathy you win the symptom bingo competition you must wonder what is coming next! Hope you are surviving but seromas are yuk - my drain came out too early after surgery and caused me a few months of problems - despite telling them on the ward it was too soon - but who am I to know... Some of you are tired on rads and not surprising - I have gone the other way am not sure why - I was so floored after finishing chemo with legs, knees and ankles that seized up and didnt work - after 6 weeks off chemo am finally feeling a bit more human - still 2 stone heavy and sore joints but have had a lifting of mood for some reason and not currently fatigued despite the 4 hour trip to rads every day - though not achieving much more than this we do now make a day of it and go for lunch and visit friends etc and the day started today with me brushing inches of snow off the car with a broom - couldn't have done any of this on chemo. Skin is currently red and hot and no underwear tolerated - but managing E45 oil baths and the creams from the hospital and is all under control for now Hope you all continue to tick off the regime and continue to kick any thought of these little baddie cells coming back ever again - take care all xx ... View more

Cathy so glad you are comfortable - I had some consequences in my view from my drain coming out too quick so hope Noone is in a hurry to remove yours before time - but hope you can rest, read and sleep with it too Fairydust your orangery plans sound fab - have you harnessed pinterest to look at what others have done - I have a huge pinterest board to give me ideas for our woodland - sadly still waiting for the skilled labour to appear and this gardener lost a year with being diagnosed on 1st june - so good for the wellbeing these outside spaces - even the shady ones cathy! Managed second rads today without tears rolling into ears! Was so quick - even though an unnatural position with arms held above head was all over in under 5 mins - not even a whole Ed sheeran song! They are keen that it is comfortable and we're patient with this so if you don't feel right Cathy they will persevere. So 4 mins and a 4 hour round trip... Hope everyone is cosy and restful today - our heating bills will all be thought the roof but worth it to feel comfy and warm xx ... View more

Hi Cathy - have been thinking of you and hope your recovery continues well and you start to feel strong soon as you have been through a lot of extra hard work these last few weeks. Fairydust so glad you are getting nice things for your palace - definitely a time for treats - I hope you get listened to on Mon as it is something that would stress me the most if I thought someone wasnt hearing what I was saying properly - are you taking someone to the appointment to be on team Fairydust? Sometimes that can have an effect. Just to say my worst SE from chemo and after T was when they were all finished so there is a cumulative effect too which I had not expected so a further round may add more than just one more lot of SE to deal with if you understand me. Good luck with it all Enjoy birthday-moon Jo - I had an unexpected radio-moon as we stayed in a hotel last night prior to first radiotherapy today as the weather warning meant we risked not making it - so an unexpected dinner out in the city was lovely. Day 1 of rads done - would like to say it was nothing as obvs it doesnt hurt etc but these machines are so not my thing I would rather have injections than do this - it is a particular fear but I managed and only 18 to go I also finally spoke to a Macmillan person about the redundancy today and discovered we can get help with the traveling (over 100 miles every day) which will be fantastic - and lots of other benefit advice etc so I can get onto all that when finally am unemployed next week - what a thought! All best to everyone tonight hope you are keeping cosy - am not wearing anything restrictive over the irradiated skin tonight but is way to bloomin cold to be floating about outside in my nightie to cool down haha! xx ... View more