Breast Cancer Care Forum

Oh my word...crazy...what have you been going through my lovely.     Yes i I would like to join you closed FB group....what are you calling it and I’ll do a friend request.  I’ve been upgraded from mamadeacs to nanadeacs BTW.   Thinking of you honey, although you are joking it is just a coping mechanism!!   love nanadeacs xxxx ... View more

Hello ladies...I had my 2nd herceptin injection on Thursday alongside my first of six Paclitaxel. I have had a really stressful few days so might not be the best to judge in but so far all I have really had is achey joints when I stand up and keep falling asleep at the drop of a hat. No more nosebleeds like I had on Docetaxel. Xxxx ... View more

Just received some more sad sad news that is hard to process. When I was in hospital a couple of weeks ago I hit it off with another lady of similar and and very same sense of humour. We had a laugh despite our circumstances and planned to meet up when we were both feeling better. Today I had a message from her husband to say sadly she had gram negative sepsis and died in his arms on Sunday. She had acute myeloid leukaemia and was in her last chemo. This is the first person with cancer I have known to pass away. I am surrounded by death at the moment, my dad, my mum and now this lovely lady that I only knew a few days but was glad to call a friend. ☹️ ... View more

Hi ladies...have been absent for few days, last two lots of Docetaxel left me in hospital for more time than out with infections. Onc decided to dangerous to stay on it and Thursday had my first of six Paclitaxel plus my 2nd herceptin. It went ok, no anaphylactic reaction which was first plus. Friday Day 2 was my mums funeral and I coped ok. Today Day 3 I have slight nausea despite being on Emend and Ondansetron but not enough to put me off my food. Joint aches and fatigue today, I literally fell asleep sat up which haven’t done before. I know I have had a very stressful week but so far I am pleased with the change although I was disappointed that I have 5 more to go not 1 more but I’ll get over it. Keeping fingers firmly crossed I don’t get any infections or mucositis. Much love to you all xxxx ... View more

Hi Camilla...,I’m so sorry you are having such a bad time. It’s funny what out taste buds change our taste too...yours being soap and mine is cardboard. I’m sympathise with you and ‘good time’ also...I have had two rounds of Docetaxel and I haven’t had a good day yet. It’s very wearing when you don’t get some respite. Hi Kirsty....what a worrying time, especially when it isn’t expected. I had the same pain as you with chemo giving you pain then injections giving you more pain then I had shingles pain on top too. I didn’t know what to do with myself. Hospital put me on Zomorph, a long acting slow release morphine tablet and that is working. It’s mad the amount of tablets I am on. If your pain happens again it might be worth asking for Zomorph. Thinking of you all...willing us all nearing the end of chemo and ready for Rads. Xxx ... View more

Thanks Camilla...how is your jaw pain doing now? Xx ... View more

Hello ladies....I do hope you are all feeling a bit better. I’m back in hospital again I can’t believe it, only came out Thursday night. Seems I was discharged too early with a high temperature, I know they are desperate for beds but they need to finish dealing with the ones in the bed already! Oral antibiotics not strong enough so I’m back on IV for a few days again. Love and hugs to you all xxx ... View more

Hello lovely ladies...sorry I have been awol for a few days, I really have felt super-**bleep**e and just hankered down waiting for it to pass. I am home from hospital now, CT scan showed no blood clot and no new tumours so that’s a relief. I have got to have another heart scan as my heart rate keeps going really high. As for my mouth and throat...when I was admitted I had an ear infection and a throat infection with open pus areas. I have Mucositis again which gives you the biggest ulcers everywhere. On my discharge letter they said it is Grade 3/4. When I looked up grade 3/4 it says severe to life threatening due to open wounds causing septicaemia!! Thank god my neutrophils were 3.4 and not my usual 0.4 or I would have been in trouble! Throat has cleared up now but ulcers are still there and tongue still swollen. I had 3 days on IV fluids as I couldn’t swallow or chew. I did lose 7lbs this week so that was positive! I’m on morphine for the pain, I can’t believe a sore mouth could be so debilitating. I have only scanned the chat since I was last on and can see many of you still having issues. Sending you all big cyber hugs (((((O))))) xxxxxx Nikki 💜 ... View more

Hope you stay well Camilla...lots of love xx ... View more

Morning ladies....temp is up still but no where near as high as yesterday. I have decided I hate hospitals nowadays! So noisy and not much sleep isn’t a good combination. I have severe Mucositis and an ear infection and querying a blood clot so I’m waiting for a scan. I don’t know the symptoms of a blood clot but I think it’s having been really out of breath since chemo on Thursday and really high heart rate. Not to be a cynic...but it might a young doctor wanting to show he has been thorough! Hope you are all feeling ok today xxx ... View more

Evening ladies....well I’m back in hospital with 38.9 temp and heart rate over 140 that won’t go down. IV going through now and I assume they will probably keep me in but not sure yet. Hope you are all feeling a bit better xxx ... View more

Morning ladies...I started off ok yesterday then went downhill. Mostly fatigue that I can not shake and sore mouth and throat. Have been up two nights running with a sore throat. Temp is 37.9 this morning, come down to 37.4 with paracetamol so I’ll keep an eye on it for a couple of hours and phone in if it goes back up again. Hope you are coping with SE’s today. Xxx ... View more

Thanks Mishy I really appreciate your message. Getting through any one of the things that has happened recently is an ordeal on its own but with chemo and shingles (and struggling with the chemo as well) makes it harder. We were also burgled the day my dad died too, you couldn’t write my life if you tried now. My next chemo is the day before my mums funeral, I have been so exhausted and short of breath and the gcsf injection pains make my legs want to crumble, I’m actually worried about how I’m even going to manage the walk behind her. I am strong and I will get through it all but right now I’m beginning to get emotional and that is what I have tried to avoid until this is all over. I don’t want to be in tears in front of everyone. I had this chat with my husband at the weekend, he has been amazing but it is clear everyone is waiting for me to go to pieces. Emotionally I don’t know what to deal with first. I am seeing a psychologist but I’m really bad at letting my guard down so not sure what I’m getting out of it. I’m so sorry for your loss too...you know they say god gives his biggest battles to his strongest soldiers...that must be us. I’m not religious but it’s very apt. Big hugs to you xxx ... View more

Thanks Jay for your advice. Day 5 now.... furry, sore mouth and throat otherwise I’m feeling much better today. Will keep on with the gelclair mouthwash. Back pains and legs give way but I’m sure that’s the gcsf injections and last one tomorrow for this cycle. Chaffinch & Ali - hope you are feeling a bit better today xx ... View more

Yeah hopefully doesn’t hang around for too long, I’ve been warned a few weeks at least though. Are you having any issues with breathing. I have been out of breath since Thursday? Xx ... View more

Thanks so much Moijan...I’m sure things have had a delayed response inside as so many things happened so close together. My dad died suddenly and unexpectedly and my last conversation with him was telling him my cancer was worse than first thought and I needed another surgery. He was in tears. It plays on my mind so much, and especially that I didn’t get to say goodbye and tell him I loved him on the day he died. My mum was poorly with Lewy Body Dementia and I was with her when she died and said goodbye and told her I loved her. We haven’t had her funeral yet but it feels different. My family’s faces tell me how much they are worrying about me, especially on days like today, day 4 and feeling really crappy. I wish you well I really do xxx ... View more

My leg was a little sore Karebear but it was put in really slowly and I’m sure that helped avoid a dead leg after. Xx ... View more

Hi Chaffinch and Ali. I had my first herceptin on Thursday. I had one FEC and one EC and then had to stop as nasty allergic reaction so had Docetaxel on its own cycle 3 to be sure I didn’t have another reaction. Between cycle 3 and cycle 4 on Thursday I have been in hospital with an infection for a few days then I got shingles so it’s been all a bit pants. From day 2 I have felt totally exhausted and aches although I have an appetite. Today day 4 I had a sweating session solid for 5 hours, I assume this is the flu symptoms they say it can be. I know the shingles pain probably complicates things a bit. I’m also very bloated. Hugs ladies xxx ... View more

Hi Chaffinch...I had my first herceptin injection on Thursday so will have a look to join in there. Haven’t felt great. Hope you are ok xx ... View more

Thinking of you all today. I’m not as emotional today but have had a 3 hour sweat 💦 on that I assume is probably the herceptin kicking in. I’m white as a sheet and zilch energy but other than that ok, have dozed on and off on the sofa all day. Hope you are all having a better day. Love Nikki xxx ... View more