Thank you so much WREN - this post has really helped me, I stopped raking letrozole after 1month and have continued to experience joint pain. My alcohol and sugar intake may be contributing 😟 @Wren wrote: Dear Bibi44 Yes it has been more than 2 years for me and I still have all the aches and pains. These include neuropathy aching joints and even that burning sensation inside my veins. I had stage four so they hit me hard with paclataxel and taxol. I had my treatment in South Africa with the same doctor that treated me first time around. I am a scientist so we have a very open patient-doctor relationship. He does not hold back. Here is the deal. 1. The chemo hardens the arteries so blood flow through your body and the osmosis of fluid through your cells will never be the same again. 2. You are most likely on estrogen inhibitors like tamoxifen or Arimidex. These cause menaupausal symptoms so prepare to feel 10 years older every morning when you get out of bed. Arimidex is worse. It removes ALL the estrogen and the side effects after 3 to 5 years, is osteoperosis. 3. Joints. Estrogen helps promote bloodflow to joints and cartledge so expect ancle, knee, wrist, thumb etc pains. 4. Skin. Your skin and muscles need collagen to regenerate. Estrogen helps with that. No estrogen no collagen uptake. Fighting back; You fought this horrible desease and won. Your body might feel weeker but your soul and mind is stronger. How to fight back: 1. Bloodflow. I can't espress enough how crucial it is to keep your juices flowing. MOVE .....a lot! don't sit still for more than an hour and do excercise every day. Treat yourself. Have a good firm massage (sports or limf drainage) at least once a week. If this is too pricey invest in a massager that you can use at home yourself. consider it a long term investment. They are cheaper than a Zimmer Frame! 2. Nothing is going to bring the estrogen back but I find that acupuncture and a healthy diet of oily fish and green vegetables (especially broccoli) makes all the difference. Get loads of collagen into your system anyway. Broth made from boiled organic chicken is an excellent source. 3. Joints and other aches. It sounds counter intuitive but I PROMISE the more you exercise the less pain you will have and the better you will sleep. It really is a case of use it or loose it! It is so hard to go for a jog with sore acillies tendons or get on a bike with sore hips I know but try. Mix the exercise up so that you don't cause more damage. When your ancles start to ache during a jog move to a walk. When your hips and knees ache after a cycle change to swimming. I invest in a good personal trainer. I spend the same on him a week than I used to spend on painkillers and alcohol. 8 glasses of wine at a pub can buy you a session. He is brilliant! he watches how I move and identifies the weak and unbalanced parts of my body. He then corrects them with the right exercises. This prevents injury and his positive up-beat attitude is like a therapy session to me as well. Also remember that alcohol and sugar causes inflimation and inflimation causes pain. 4.Skin. Your skin is going to be slow on the repair so do not allow damage. Keep hydrated. I dehydrate easily from all the knight sweats so I often pop some electrolytes in my water. Slap on the moisturiser. I keep a nice eye cream in my handbag and continually re-apply. Have as much sex as possible. It stimulates some hormone production and his testosterone every now and then is quite healthy. If like me, you are just not in the mood.....make a plan....;) Last but not least. Whenever that deep dark depression hits me once a month around the time I am suppose to have a normal period but don't - funny that - I try and remind myself that there is more to me than just a body. Nobody ever misses bits of somones body when they pass away, they miss their essence. I think this is a great time to get to know and love ourselves again. Good luck Xx
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This is my first ever posting but my husband too won't come near me - he seems very easy put off and although we have been together 15 years, I can tell genus struggling with me as a sexual partner, he seems to see me as a patient now.
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